Why is diagnosing Thoracic Outlet Syndrome so difficult? — Transcript
Full transcript
- 0:07hey everybody i'm dr scott warden the tos guy welcome to our next live stream we have
- 0:12a really special guest today dr art jenkins was on the faculty at mount sinai new york
- 0:18neurosurgery he's written dozens of papers basic science research hundreds of talks and he's here
- 0:26today to speak about the difficulty in diagnosing tos thanks art thanks john thanks for having me
- 0:32it's a pleasure to be here um first thing whenever you give a talk you got to say hey do i have any
- 0:38conflict of interest is there anything that would make me my my words not be valid because i've
- 0:44got a vested interest in something else and the answer is no i just do spine surgery um
- 0:50what is thoracic outlet syndrome it's actually it's a collection of multiple diagnoses it's no
- 0:55one diagnosis but it impacts on the neurovascular bundle the blood vessels and nerves that travel
- 1:02between the heart and the arm the thoracic means it's in the chest area
- 1:08outlet means it's in the area where structures leave the chest and go out
- 1:14into the arm and of course syndrome just means stuff that goes wrong
- 1:19the anatomy is hard to understand because it's a very high value real estate area
- 1:26it spans from the beginning of the brachial plexus right here the brachial plexus are
- 1:31the nerves that come out of the spine and go down into the arm and it goes all the way laterally to
- 1:37the connection of the clavicle or the collar bone that goes out to where it meets the shoulder blade
- 1:46so the entire root of the collarbone from here to here is the span of the thoracic outlet from
- 1:52top it goes from the level known as c5 which is the first nerve that goes out into the arm
- 1:58all the way to the bottom on the surface of the ribcage itself or the thoracic wall
- 2:06it has a whole bunch of different symptoms it's determined by which structure in that
- 2:11complex area that's actively being compressed it can cause pain it can cause tenderness it can
- 2:17cause numbness tingling weakness in the hand or in the arm it can cause in extreme cases
- 2:24atrophy or just a a loss of muscle in the hands or in the arms but that is a late
- 2:31finding and you don't want to get to that point if you can avoid it if it's already
- 2:35happened it's that's unfortunate but there may still be some things that can be done for that
- 2:45these entrapments can be caused by different things there are compression against one of
- 2:52these structures between the clavicle or the uh or your collarbone and the first rib the top of the
- 2:58rib cage you can also have something called the pec minor syndrome where your neurovascular bundle
- 3:06is pinched under the tendon to a minor muscle that controls the shoulder blade position the
- 3:13pectoralis minor scalene muscles on top of the rib itself can pinch nerves or even the artery
- 3:23if they're either overgrown or if they're there's some process that causes them to be abnormal
- 3:30there is a process called a cervical rib it's a congenital anomaly where you have an extra
- 3:36rib above the normal ribcage and that can pinch the nerves coming through in addition there are
- 3:43fibrous bands that are very hard to see on imaging but those can cause twisting or pinching of the
- 3:49nerves trauma to the area can sometimes cause a fracture or a sprain that is now the dislocation
- 4:00that's pinching one of the structures going through there there are certain congenital numbers
- 4:04where you're just born with weird anatomy and then there are variants on any one of these that
- 4:10may be slightly different than the normal flavor of any of the ones that we've mentioned already
- 4:19now no one clinical test or radiographic test is universally reliable or specific there's
- 4:27no one test that says this is definitely tos and there's no test that says this is not tos
- 4:35but you have to look at the entire picture of what are the symptoms what are the radiographic
- 4:40findings what are the clinical findings to determine is it tos or is it not tos
- 4:47east test east the um the external um the elevated uh arm stress test is when you lift
- 4:57your hand up and squeeze the hand while it's lifted up and that stresses the hand and shows
- 5:03if you have impaired circulation or impaired nerve stimulation so that the nerves tire very quickly
- 5:11electrophysiology which is where they might wire up your muscles for to determine how well they're
- 5:16functioning and determine the nerve conduction is helpful but not always in fact one of the
- 5:23more most experienced neurologists that i've ever spoken to treating this says it's not uncommon to
- 5:29have a completely negative test even when the patient is having active symptoms so it's not
- 5:35a precise test nor does it eliminate people who don't have tos when they think they do
- 5:42in addition to that there's all sorts of different types
- 5:44of imaging there's cat scans there's mris there's different types of x-rays
- 5:49there are even other types of tests that we can do that we don't usually find useful
- 5:55now one of the other issues that makes it so hard to diagnose is there are other
- 6:00orthopedic and neurologic symptoms syndromes that overlap with thoracic outlet syndrome
- 6:07and there are shoulder problems people have slapped hair or they have a dislocation or they
- 6:13have some other problem in their shoulder and it may pinch a nerve but it may not be thoracic
- 6:18outlet syndrome it's a primary shoulder problem not a primary thoracic outlet region problem
- 6:25in addition to that there are problems in the elbow even sometimes in the wrist with carpal
- 6:31tunnel syndrome there are other problems where if you have a rib fracture that can
- 6:36cause or or mimic thoracic outlet syndrome a tumor of the rib can also cause similar symptoms
- 6:44in addition to that neurologic problems like a pinched nerve in the neck
- 6:49or a tumor or trauma to the nerves in the brachial plexus but not necessarily from
- 6:55thoracic outlet syndrome and then cubital tunnel a nerve entrapment in the elbow carpal tunnel
- 7:02nerve entrapment in the in the wrist all of these can make very similar symptoms to tos so deciding
- 7:08which one this is it result you know you have to make sure you eliminate other possibilities
- 7:14in addition to that either tos is associated with other conditions or other conditions have
- 7:21symptoms that are very similar to tos so there are collagen vascular disorders that often
- 7:28result in thoracic outlet syndrome symptoms but it profoundly complicates the management
- 7:36ehlers-danlos is one in particular that it make most patients with ehlers-danlos actually are
- 7:41more likely to have a very complicated course if you treat them surgically but they frequently
- 7:48spiral out of physiologic control if they don't get treatment so it's a difficult
- 7:54position to be in is having patients you you're kind of damned if you do and damned if you don't
- 7:59but you do the best you can to navigate between the waves and the rocks
- 8:04in addition there are certain vascular conditions and uh one of my colleagues in new york is one of
- 8:09the world's experts on a condition known as may thurner syndrome and we've found that there are
- 8:14a number of patients who have a vascular problem in their pelvis that when we treat that their
- 8:20thoracic outlet syndrome symptoms just feel better and so that the relationship between
- 8:26the vasculature the pelvis and the vasculature or other anatomic structures in the in the
- 8:32shoulder region is fascinating and we're still exploring that um a lot of patients with neck
- 8:38trauma are more likely to develop thoracic outlet syndrome prior spinal surgery renaud syndrome
- 8:44mimics because it causes a vascular problem in the limb but not in the thoracic outlet other
- 8:52arthritic conditions either contribute to or can result in similar symptoms of tos including
- 8:59ankylosing spondylitis rheumatoid arthritis and even generic garden variety osteoarthritis
- 9:08so one of the the next issues is well let's say you've made a diagnosis of tos what do you do next
- 9:15and that's part of the complexity and i think it's one of the things that confuses
- 9:19a lot of clinicians is there's still no great uniform understanding of what the best
- 9:26next step is for every single patient and we'll get into that in a minute but first
- 9:32the first line of treatment for tos is always physical therapy but not all physical therapy
- 9:37is beneficial for patients with tos and in some cases can make the symptoms worse
- 9:43second bracing has been used as an option and one of the reasons that seems to work we'll get to
- 9:51in a minute but the the issue is what drives the pinching is the position of the shoulder blade
- 9:58and if we can brace and elevate that shoulder blade so it doesn't pinch as much that can help
- 10:03alleviate some of the symptoms in addition to that if you have pinching from one of the muscles
- 10:09either doing injections or botox botulinum toxin injections into those muscles may help and they
- 10:17may um alleviate some of the compression at least on a temporary basis hydrodissection
- 10:24is a process where a usually a pain management doctor will take a needle and inject saline or
- 10:31something like saline around the nerves to try to push the soft tissue away from the nerves
- 10:39it's a tech it's a new and relatively uh novel technique for for trying to manage the symptoms
- 10:47i'm not sure it's a long-term treatment but it may give patients some temporary relief and that that
- 10:52that's usually better than getting no relief then finally surgery and surgery
- 10:58comes in a lot of different shapes and sizes depending on what the condition is
- 11:03there's arterial venous and neurogenic each have different need that needs to be addressed
- 11:10and then once you have figure out what the need is what's the underlying source of the
- 11:15compression or the problem there are different approaches on how to get there uh and there's
- 11:20a supraclavicular there's an infraclavicular meaning whether you're going above or below
- 11:24your collarbone uh there's a transaxillary where you're going in under the armpit
- 11:29and then there's also this new technique that i just recently published for taking out cervical
- 11:35ribs from the back um of the neck through a tiny little uh half inch incision so there are a number
- 11:41of different approaches literally ranging from the front to the back and so which one is right
- 11:48once again the answer is it depends so interpreting the imaging is actually
- 11:54another reason this is so hard is that these are very complicated images first of all you got to
- 12:01know what image to order and the average clinician just doesn't know what to order
- 12:07if you really don't know what to order and you can't get in contact with someone like scott
- 12:12who's got his own patented system of preparing and performing these mris that are dedicated just
- 12:20to thoracic outlet the basic is get a mri of the chest but important to understand get it with the
- 12:28arms up and the arms down because most patients with thoracic outlet syndrome are only symptomatic
- 12:33when their arms are up so that's where you want to see what the anatomy looks like but it's good to
- 12:38compare it to the arms down but there's a whole and i'm sure uh doctor ward is going to explain
- 12:44or has explained previously some of the nuances of his very specific and tailored protocols
- 12:52which i love looking at and some of them i have examples of here but you can imagine that when
- 12:58an mri let's say you've ordered the right mri but interpreting it requires a whole different level
- 13:05of expertise that most even neuroradiologists don't have and i'll tell you that most of these
- 13:12mris don't come with these colored arrows already applied these are my annotations that i have made
- 13:19when i've looked at individual patients films and you can imagine that sometimes this stuff looks
- 13:25like you're looking at tea leaves i mean how do you figure out what's what practice man practice
- 13:31when you're looking at cat scans they look at a totally different type of anatomy
- 13:36they're looking at bone at tissue density whereas mris are primarily looking at tissue water content
- 13:43what's the difference it's honestly it's like night and day but if you put both together you
- 13:48get the whole picture or at least the majority of the picture why what's another barrier to the
- 13:55clinicians being able to make the right diagnosis knowing how to take a cat scan image like this
- 14:02and turn it into a 3d model like this one which will allow you to actually rotate it around in
- 14:10three dimensions and actually see where the nerves and the vessels are being pinched
- 14:16between two structures and most clinicians either don't have the time or don't have the
- 14:21inclination or don't have the budget to buy the 3d modeling software to do this
- 14:26in addition there are some newer studies where we're doing dynamic fluoro imaging where we're
- 14:31actually getting x-rays of the arm up and arm down to look at what the differences are so the imaging
- 14:38is not simple interpreting it is not simple and so understanding what the next step is is not simple
- 14:47this is a blown up view just because i think this is really cool to see this and
- 14:51and so i want to drag you through this here's the the collar bone up here these are the blood
- 14:56vessels that are coming through here's a blood vessel coming through here is a coming between the
- 15:01the the rib and the clavicle and you can see it's really getting pinched
- 15:06here and here and on this side these blood vessels these veins are actually significantly
- 15:11larger because the blood is backing up into the arm when the the vessel is being pinched
- 15:20so right here i'm backing it up a little bit and you can actually see
- 15:27that the rib and the and the collar bone here are literally scissoring this poor blood vessel
- 15:35it's no wonder she's very symptomatic
- 15:39so once you've assuming you've gotten through the ordering the right imaging interpreting the
- 15:46imaging correctly now you got to figure out what's the right treatment well the problem is there are
- 15:51some tos surgeons out there but all they do is one surgery they they all everybody gets a first
- 15:58river section whether that's the right procedure or not um now granted first resection is probably
- 16:0590 percent of all tos but it's not a hundred percent and so if you do a first rib resection on
- 16:13somebody who's got pectoralis minor syndrome how are they going to get better if you do a first rib
- 16:18resection on somebody with a cervical rib how are they going to get better you really have to make
- 16:22sure the right diagnosis that made because without the right diagnosis you can't have the right
- 16:27treatment and so the other issue is for example in in venous vtos venous thoracic outlet syndrome
- 16:37one of the problems is that the chronic trauma to the vein results in internal bands that develop
- 16:44that promote more clotting so many patients with venous tos may present with a clot in there in
- 16:50a major blood vessel that it can be cleared but if it the the injury's been going on long enough
- 16:57that clot can recur unless appropriate measures are taken to prevent the clot from coming back
- 17:03and the longer it goes on the less effective any of those treatments are
- 17:07arterial tos actually one of the major mechanisms of injury is you damage the artery so badly you
- 17:15form an aneurysm and so if you don't resect the aneurysm and reconstruct the artery wall
- 17:22you're not treating the underlying problem you're actually throwing clots into the arm
- 17:28so on top of the whole issue of identifying the individual components one of my
- 17:35new current hypotheses is that all of this is being caused not because the clavicle
- 17:41the the collar bone is in the wrong place but that the collarbone is in the wrong place because the
- 17:47scapula the shoulder blade itself is not supported properly because of damage to one or more muscles
- 17:53in that area and that bigger picture issue is not adequately being addressed because if you
- 17:59if you fix the to take the rib out for example and take the compression off the shoulder blades
- 18:04just going to fall a little further until it starts to pinch it again against the second rib
- 18:11so we need to start addressing the big picture items as well as the little picture items
- 18:18one of the other barriers to getting the right diagnosis is a lot of clinicians have kind of
- 18:23given up on tos there are some some very good outcomes and a lot of papers that report 94 95
- 18:32successful outcomes from surgery for up to five years but a lot of clinicians have been practicing
- 18:38for more than five years and they noticed that after more than 5 10 15 years a lot of these
- 18:44patients symptoms come back well i think they're coming back because we aren't addressing the
- 18:48scapula problem and so this the shoulder blade just falls until it starts pinching against the
- 18:54second rib as well as the chronic injury to the artery or the vein leading to further downstream
- 19:01you know subsequent problems and so it's not without reason that many clinicians think oh well
- 19:06in the long term these patients ultimately don't do as well as we would like so why bother even
- 19:11making the diagnosis in fact i know some thoracic surgeons who have essentially stopped doing
- 19:18thoracic outlet uh syndrome surgery because of the long-term lack of efficacy and so i think
- 19:27that you're doing a disservice at least for the short-term benefits that you can get from this
- 19:32but i also think the focus has to be on coming up with both a short-term treatment
- 19:36and a long-term treatment and so we've got some work to do
- 19:42plus also another reason i think not fair to the patient but there are a lot of patients
- 19:47with in the workers compensation system and there are a lot of clinicians who think that
- 19:52a lot of the workers comp patients they're just out to get out of work and that's just not fair
- 19:57to the patients who want to get back to work and just are being treated like they don't
- 20:06so why are the long-term outcomes not as good well i've already kind of addressed this
- 20:09if all you have is a hammer everything starts to look like a nail um if the the
- 20:16the recanalization if the if you get the clot out and then it develops clot again well we got to
- 20:24find a better way of preventing that clot and then we need to come up with other treatments
- 20:29for some of the underlying conditions especially ehlers-danlos um which will treat the underlying
- 20:37genetic deficiencies that lead to developing tos in the first place
- 20:45this is kind of one of my central practice philosophies seeing is believing but
- 20:53believing is necessary for seeing if you don't believe in a diagnosis you're never ever going
- 20:59to make it and so if you don't believe in a diagnosis you're never going to look for it
- 21:03on the films that you order you're just going to blow right by it and that's true of a number of
- 21:08other what i would call the minor or the orphan conditions and tos has kind of become an orphan
- 21:13condition in america today so most clinicians they diagnose what they're used to seeing regularly and
- 21:19often skip over the things that are a little bit rarer what we call in medicine the zebras
- 21:24instead of the the horses there's an old saying in medicine when you hear hoof beats think horses not
- 21:31zebras but if you live in africa you should think zebras not horses so it really depends on what you
- 21:38expect to see but also kind of keep in the back of your mind there may be more than one type of
- 21:43hoofed animal that's running around another issue is there's this com this term called disputed tos
- 21:53and it's i i take it as a pejorative term disputed means you don't really believe in
- 21:58it there are people who dispute that it's really tos and the and the the definition of disputed tos
- 22:04is it's thoracic outlet syndrome without hard emg findings we've already mentioned that you can have
- 22:11tos and not have emg findings but for some people they use that as their threshold as
- 22:17saying well if you don't have emg findings i'm not going to make the diagnosis well making the
- 22:23diagnosis shouldn't be dependent upon one single test if the rest of the tests all support it
- 22:30so i i actually don't call it disputed tos i just call it emg negative tos
- 22:36it's really early tos because you typically start to see emg findings
- 22:41at the point where you start to get nerve damage that's so bad that the muscles are dying
- 22:48so where do we go from here the first thing is for the clinicians out there and for people
- 22:55who are seeing a clinician make sure that you or your doctor takes the time to listen
- 23:00to what's going on and it's very hard in today's data-driven and finance-driven medical environment
- 23:08where hmos obamacare medicare reimburses poorly per hour per minute spent with the patient so they
- 23:15want to get through the list quickly so stopping and listening is almost a bit of a lost art
- 23:21um all these algorithm-driven treatments in electronic medical records that basically
- 23:28take the top five diagnoses for a given set of symptoms and expect you to make one of those five
- 23:33diagnoses well what if tos is number six and it doesn't pop up on your list of the the most five
- 23:39syndromes to test for it requires a detailed physical examination you have to test for
- 23:45tenderness in multiple places you have to do an east test you might want to do a rights test there
- 23:49are a number of different tests that we can do to try to identify where the pain is coming from
- 23:55and the first issue is you need to believe the patient has the pain and then you need to believe
- 24:00you can find the cause of the pain and ultimately this just comes down to the concept of treat the
- 24:06patient treat the patient that's in front of you before you start thinking about the next patient
- 24:12we need to get better research to validate a lot of the things that we're talking about here even
- 24:18better because a lot of the naysayers out there in medicine will say well there isn't great class
- 24:251 evidence to describe what you're saying and the answer is well i guess we've got to get together
- 24:30and the the tos treating physicians need to band together more and come up with large databases
- 24:38pooling all their patients to have class one data do prospective studies instead of just
- 24:44looking back on you know a dozen two dozen three dozen patients you've operated on really do joint
- 24:50multi-center prospective studies where we all follow the same rules
- 24:54there's better we need better modeling of the underlying conditions in coming up with computer
- 24:59models physical models and other and a better mathematical model concept of what's going on
- 25:06will help us to then develop even better treatments that are more effective and
- 25:11less invasive so that's where we're at i want to thank you guys for your attention
- 25:18um and uh if there's any questions out there now is a great time to send them in all right that was
- 25:25really great to listen to that uh it hits a whole lot of points that are challenging for clinicians
- 25:32and patients alike uh if i could start you with a question from me first you brought up disputed tos
- 25:39how many patients come to you that you find have tos that have been told by other doctors
- 25:45that the diagnosis is disputed i just had one last week where i had a i won't say it was a a
- 25:54heated discussion but it was certainly um one-sided with the patient's neurologist and he
- 26:01flat out said she doesn't she has at most disputed tos i think she's primarily got fibromyalgia um
- 26:09and fibromyalgia is i think it's 90 over diagnosed i think there is an entity of fibromyalgia out
- 26:16there but i think more often than not fibromyalgia is the bucket that people put patients into when
- 26:21they can't figure out or haven't taken the time to figure out what the real diagnosis is um you know
- 26:27for example 10 of fibromyalgia patients have been found to have chiari malformations which cause
- 26:32almost the exact same symptoms that we ascribe to fibromyalgia how do the patients respond when you
- 26:41tell them that in fact the diagnosis is not disputed they're just different stages of it
- 26:46right i mean most of them are internally grateful that somebody's actually listening to them
- 26:53i'm going to read you a couple questions we have from our viewers first one is hi i've
- 26:58seen multiple physicians in the area that i live i think i have tos but none of the physicians i have
- 27:04seen agreed do doctors like yourself do telehealth consults and this is from gina in phoenix
- 27:11um hi gina yes as a matter of fact i've been doing telehealth for about 10 15 years now
- 27:19and then it this it's actually blown up in the time of covid um if you go to my
- 27:23website jenkinsneurospine.com um there's a process for registering to do a telehealth
- 27:31process in fact we actually have an initially a free consult with one of my one of my treating
- 27:38clinicians who will do a first pass and he's great everybody loves him
- 27:44dr wood so if you wanted to go to my website that's a great place to uh to start on the
- 27:50process and we'll give you our two cents as best we can after if if dr wood goes through
- 27:57your stuff and thinks that it's worth having a second-tier consult with me we can arrange
- 28:02for that too the next question says how can i find a doctor that does hydro dissection for tos i live
- 28:11in san francisco well san francisco is a huge medical community and um i would bet that there
- 28:19are any one of a number of uh places that you could look online and and uh just i would google
- 28:26pain management and hydro dissection and see who who is doing it and you can contact me through my
- 28:34website i can help find local docs here too next question says i had first rib resection surgery
- 28:42for neurogenic tos 11 months ago i have cervical ribs that are still there because my surgeon did
- 28:49transaxillary approach i have muscle atrophy in my thumb will it just get worse the arm still aches
- 28:58um i think the answer is yes we know that typically if you haven't treated um all of the
- 29:05issues that are leading to neurologic dysfunction um it often will get worse
- 29:12but it probably got a little bit better because you probably had more than one compression issue
- 29:17at the time and so they did the one they knew how to do i would certainly recommend you go online
- 29:24to my website as well and we'd be happy to do uh you know the the uh get that first level consult
- 29:31get in the door um and see if you're a candidate for my minimally invasive cervical ribs section
- 29:38and what you've implied from your lengthy discussion is how many variants the rftos and
- 29:44implied is many different kinds of treatment it's not a one-stop shop right correct so we both know
- 29:53some surgeons who just say i don't need imaging i know what the disease is yeah going in there and
- 29:58taking everything yeah is there i mean haven't we evolved beyond that in surgery in a more dedicated
- 30:05detailed surgery over the past few decades i think the answer there
- 30:09is it depends on what you consider a successful outcome rate my goal is 100 of my patients do
- 30:17well with the surgery that i do for them if you accept a 90 successful outcome rate
- 30:25then you're accepting the fact that you're doing the wrong operation in 10 percent of your patients
- 30:30um and so if all you want to do is you follow one of two or three different tests you you may miss
- 30:42the the variance if you don't do the thorough like the 12 point inspection right you got it
- 30:47you can't just do a three-point inspection you got to make sure you do the full 12-point inspection
- 30:53we have another question from ben who is a tos patient that i know
- 30:57uh young man he said i just want to say i've had the same experience with a neurologist who did an
- 31:03emg and said i was negative for neurogenic tos i had it diagnosed later fortunately
- 31:10glad you are spreading awareness thank you very much
- 31:13yeah i gotta say as a spine surgeon and i do emgs on almost every single one of my surgeries if you
- 31:21don't have weakness already your emgs are going to be negative so if you just have pain if you have
- 31:26numbness if you have other physical findings or if you have temporary weakness that goes away because
- 31:32you're weak when your arm is up but but gets strong again when your arm is down okay that's
- 31:38called you know differential strength testing and that's also considered a variant of these tests
- 31:43if your pain is not if your weakness is not persistent throughout if you're not 24 7 week it's
- 31:49going to be negative on the mgs i don't consider atrophy i don't consider permanent weakness to be
- 31:56one of the diagnostic criteria of tos and that's why i think that disputed tos
- 32:03it's it's an oxymoron it's a contradiction it's it makes no sense
- 32:09i think uh for our viewers ace of willborn at the cleveland clinic who was a widely respected
- 32:14neurologist was the one who came up with this classification and i would point out and i'm sure
- 32:20i would agree with me that in any other entrapment neuropathy doctors try to treat it first of all
- 32:26to diagnose it secondarily treat it before you get this muscle involvement because muscle involvement
- 32:33usually means it's permanent damage so what ace of woolworn did in my eyes is he took early and late
- 32:39stage tos late stage would have muscle atrophy and positive emgs and he would say wait until we
- 32:46get to the late stage before you diagnose it to my eye that seems to connem patients to a lifetime of
- 32:55disability what are your thoughts about that actually i think it's it's a little bit of um
- 33:04it's it's actually it's very myopic it's basically saying if you don't have a finding
- 33:10in the thing that i do i do emgs therefore if you don't have an emg abnormality it's not real
- 33:17that's just that misses like the entire rest of medical school of listen to your patient
- 33:22examine your patient and understand that transient nerve compression doesn't lead to
- 33:28emg com findings permanent nerve compression leads to permanent nerve findings it's also
- 33:35honestly a little bit of a warning that maybe you shouldn't step outside your field of expertise
- 33:40well yeah you know but they think that they they they're so used to seeing what they see that it's
- 33:46a um it's a self-confirmation bias they think that if it's not positive on emg it isn't real
- 33:52and that's not the definition then the the patient that just asked the question had that experience
- 34:01and he um i think he he felt badly that the person who did the emg said it couldn't be tos
- 34:07just couldn't be sure fortunately ben was very proactive and a smart guy and he went out and
- 34:12found the answers himself otherwise he could have been searching down 10 other diagnoses
- 34:16instead of the good diagnosis he has now let me read you another question from terry
- 34:23i think a part of that answer is patience i refuse to allow our local vascular surgeon to touch me
- 34:29because he only knows of the rib removal once we have a bit more clarity i'll be sharing so
- 34:36this is another patient i know as well and um i think we we're bringing up two things there are
- 34:42docs who don't know other specialties who don't know other bases of knowledge so as you said
- 34:47they could be myopic and say without my test can't be positive but then they're also the
- 34:53docs who at least when they recognize tus they'll only treat it one way now you said before that
- 35:00a significant proportion of these patients don't need a rib resection could you expand
- 35:05on that a little um i i think it's it's about three to five percent of patients have um
- 35:12we'll have a pec minor syndrome either isolated or in conjunction so you might do a river section
- 35:18but if you don't also release the pec minor tendon you're not going to get as good as if you
- 35:23just do one or if you do both the cervical ribs and i saw there was a question on there also about
- 35:29the cervical rib approach um you know if you have a cervical rib and you don't release the
- 35:35issues about that that are related to that which includes additional fiber spans
- 35:39it includes compression on on the vessel as well as on the nerve at the at c8 which is hand um
- 35:46and so if you don't treat that you're not going to be in the process of getting better
- 35:53and it will likely continue to get worse and cervical ribs also make up like three to five
- 35:58percent of the uh of the cases so granted uh the remaining ones are either uh compression from the
- 36:05scalene muscles um which attach to the first rib or compression between the the um the clavicle
- 36:14and the first rib um which therefore is involves the first rib so if you take out the first rib
- 36:20you take and you take it all the way back to the scalene muscles you'll release the scalene
- 36:25muscles so you'll get both the entities with the same operation so that's why a lot of people will
- 36:31do well with one operation as long as the one operation is done right and if you take a lot of
- 36:36things out if you take everything out you're more likely to have complications so i i don't advocate
- 36:43that um so i saw there's a question just about the cervical rib operation um it's actually it's
- 36:50a half inch incision on the back the way i do it is day surgery and i just i basically i sneak in
- 36:58um at a very very particular angle it's different than what other people do and i was able to figure
- 37:05this out with a lot of 3d modeling that we did with virtual fly-throughs and things like that
- 37:11and the answer is i just come down on the outside of the spine and i follow
- 37:16the cervical rib around and just drill it out and disconnect it from the fibrous attachments
- 37:21that it may have all the way to the front and that releases um any compression that there was
- 37:27on the either the the vein or the um or the usually it's the eighth nerve but it could
- 37:33also get the seventh nerve um in that area uh so it's uh it's a beautiful operation it takes
- 37:40about an hour hour and a half to do out it's an outpatient procedure a half inch incision
- 37:46and um but it's not you know it's published but it's not widely practiced
- 37:55and then one thing i'd like to reinforce which you talked about all of these tests that we have
- 38:00are challenging imaging tests because that's my field are challenging to produce and to read
- 38:07and i i have found it incredibly valuable for the patients that i interact with art
- 38:12to be able to work with someone like you because the combination of the clinical team a doc
- 38:19whether it's a neurologist with a surgeon along with physical therapists or other
- 38:24parallel healthcare workers along with a radiologist i think that has tremendous power i
- 38:29uh if this were low-hanging fruit we would have had one specialist dedicated to it but as you
- 38:34know in some cities it's vascular surgeons some cities it's neurologists would you care to comment
- 38:40on that value of a team helping patients with i couldn't agree more i mean i think that it takes
- 38:46a village to take care of patients um and you have to have a team of people that you can work with
- 38:52um you can talk you that i if i've got a question about a particular patient maybe i i call you up
- 38:59and i say hey i need a variation i mean we need to do it a little bit off the normal menu
- 39:04because this patient has slightly different symptoms than normal we've got to image them
- 39:07in a slightly different position and when you have people who understand the anatomy
- 39:12and they're imaging and can help tailor the treatment to the individual patient
- 39:17then you can really help a larger swath of people but i also think that the key is you
- 39:23got to find people who are bridge builders not damn breakers um and that so for example
- 39:30i do my surgeries with vascular surgeons so we're actually working there's a vascular surgeon on one
- 39:36side neurosurgeon on the other doing the operation together um and then that allows us to communicate
- 39:41we share patience we share information we share insight they teach me i teach them and that
- 39:48spreads knowledge instead of keeping knowledge in the silo where you're doing the same thing
- 39:52over and over and nobody's telling you that maybe there's a better way or maybe some of the things
- 39:58you're doing aren't working also for example if i ask you are why do you need to get this piece
- 40:03of information why does this make a difference you know i have to challenge myself when you
- 40:09say to me scott i don't get this right i have to learn something i have to figure it out right no
- 40:15pushing each other is is a much better place than getting complacent and doing the same thing over
- 40:19and over and thinking everything is just fine as shown by your new minimally evasive approach
- 40:25something that wouldn't happen if you did the same thing for 20 years right awesome
- 40:30i'm going to let you make any closing comments you want to make is a great talk to listen to
- 40:35we also heard we have another talk coming up
- 40:39i'm talking to our moderator here because we have another talk coming up and i am going to
- 40:43find it and let people know when that is bear with me for a second as i look at my calendar
- 40:52february 16th 2021 the limitations of standard physical therapy with thoracic outlet syndrome
- 40:57looks interesting i mean that's as a surgeon we don't always get the insight on the uh
- 41:02on the physical therapy nuances and that's uh that's something i think not only patients but
- 41:07clinicians need to know more about too excellent all right do you have any closing comments
- 41:14i i would just say for clinicians out there who are who are observing listen to your patient
- 41:21learn what you don't know because it's not what you don't know that gets you in trouble in life
- 41:27it's what you know that ain't so and so you've got to keep an open mind you've got to believe
- 41:33in your patience and you got to believe in the diagnosis before you can see it
- 41:37um and as the for the patients out there you know you hear it before you'll hear it again
- 41:42you got to be your own advocate if you don't feel people are listening to you and if you don't feel
- 41:48if the doctor can't explain to you in a way that makes sense to you what's going on and
- 41:54what the treatment plan is going to be and why the treatment plan is going to be the way it is
- 42:00find somebody else i mean it is what it is um i i hate to say it um but by the definition of average
- 42:10half of all doctors of every specialty are below average half are above average
- 42:16and half are below average and average is right down the middle so
- 42:2050 are above average 50 or below average if you wind up with somebody who's in the below average
- 42:26in a particular field find somebody who is above average
- 42:32words of wisdom advocate for yourself find good specialists and listen to your patients thanks
- 42:39to all of our viewers we really appreciate you attending go visit the website for our next talk
- 42:46go see neuro what's your neural spine jenkinsneurospine.com neurospine.com
- 42:54all right all right thank you very much thanks for having me this has been a real pleasure
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