The Man with no Short Time Memory (Amnesia Documentary) | Only Human — Transcript
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- 0:06Clive Wearing has one of the worst cases
- 0:08of amnesia in the world.
- 0:18I know what it's like to be dead now.
- 0:20Day and night the same, blank.
- 0:22No difference in dreams or anything like
- 0:24that. No senses at all. The brain has
- 0:25been totally inactive.
- 0:27No dreams, no thoughts of any kind
- 0:29whatever.
- 0:31Clive was a renowned conductor living in
- 0:33London when he was struck down by a
- 0:35virus in 1985.
- 0:38Parts of his brain were completely
- 0:39destroyed, including his memory.
- 0:42However, his ability to play music is
- 0:44unaffected.
- 0:46Do you feel different when you play
- 0:48music?
- 0:48I never heard a note since I've been
- 0:49ill. I don't know what it's like to play
- 0:51music.
- 0:53I'm unconscious.
- 0:54You played us some music about 2 minutes
- 0:56ago.
- 0:57Not known to me.
- 0:59Totally unknown to me. I've never heard
- 1:00a note here.
- 1:05Clive's case became known to millions
- 1:07when a television documentary was made
- 1:09about him in 1986.
- 1:12Alone and confused in hospital without
- 1:15his memory, the only person he
- 1:17recognized was his wife, Deborah.
- 1:20What's been wrong? Can you just tell me
- 1:21what the answer would be? You know very
- 1:23well I can't get to this answer. I am
- 1:24actually conscious now for the first
- 1:25time. I just want to find out what the
- 1:26bloody hell they've been doing, what's
- 1:27been wrong with me. Cuz there hasn't
- 1:29been a [ __ ]
- 1:30I've never seen anyone at all.
- 1:3520 years later, Clive only has a
- 1:377-second memory before his mind goes
- 1:40blank.
- 1:41What has life been like for Clive and
- 1:43his family?
- 1:55Do you know that we're making a film
- 1:57about you?
- 1:57No, I
- 1:58No, that's news to me.
- 2:00You're being filmed for a television
- 2:01program.
- 2:02Oh, no.
- 2:04Oh, I thought I'd be posture right.
- 2:07Of course.
- 2:07Because you're very famous.
- 2:09Oh, lucky story.
- 2:11You're full of jokes, aren't you? Are
- 2:12you two laughing as well?
- 2:15About 20 years ago, a film was made
- 2:17about you.
- 2:18Oh, no.
- 2:19Just after you became ill.
- 2:21Called a prisoner of consciousness.
- 2:24And 20 years on, we're making a new film
- 2:26about you.
- 2:27Because millions of people watched the
- 2:29film and wanted to know how you were.
- 2:31Good heavens.
- 2:32So, millions of people know you.
- 2:36How embarrassing.
- 2:39They know too much about me now, don't
- 2:41they?
- 2:43And we've been coming to see you for
- 2:44several weeks.
- 2:46I see.
- 2:47Are you paid to come here?
- 2:49Thankfully, we are.
- 3:00Clive is 67 and lives in a brain injury
- 3:03unit, where he's under constant
- 3:05supervision.
- 3:10His wife, Deborah, lives 85 miles away
- 3:13in Reading.
- 3:15His illness has made it impossible for
- 3:16them to live together for 20 years.
- 3:31If Clive went out of the front door
- 3:34unsupervised,
- 3:36unaccompanied,
- 3:38he would have
- 3:40it would be like being separated from a
- 3:42spaceship. It would be like if you were
- 3:44space walking and the rope broke, he
- 3:46would have no way of getting back, ever.
- 3:50So, does Clive know his name?
- 3:52Yes.
- 3:53Does he know how old he is?
- 3:54No.
- 3:55Does he know where you live?
- 3:57No. No idea.
- 3:58Does he know your job?
- 4:00No. No idea.
- 4:01Does he know the day of the week?
- 4:03No.
- 4:04Does he know the date?
- 4:06No.
- 4:07Can he read a book?
- 4:09No, cuz he can't remember the sentence
- 4:11before last.
- 4:12Can he watch a film?
- 4:14No. He'll watch the rugby or he'll watch
- 4:16the cricket.
- 4:18Uh he or he won't know who's playing or
- 4:19what the score is, but each stroke and
- 4:22each try
- 4:24is satisfying for him to watch.
- 4:36Clive now has islands of memory.
- 4:38Just as we can ride a bike or drive a
- 4:40car without remembering how we were
- 4:42taught,
- 4:43Clive can play and respond to music
- 4:45because his innate musical abilities are
- 4:47still there
- 4:49and weren't totally destroyed by the
- 4:51virus.
- 4:56Deborah visits Clive on average once a
- 4:58month.
- 5:01What sort of man is he?
- 5:03Passionate, very loving, funny, very
- 5:06very comical.
- 5:08And he's very very self-effacing.
- 5:11You know, he doesn't want to be a
- 5:12nuisance to anyone. He often apologizes
- 5:15to me and says, "I must have been such a
- 5:17nuisance to you. I'm so sorry." I mean
- 5:22They told me you were arriving.
- 5:24Welcome to our home.
- 5:28He knows me.
- 5:30He might not remember anything about me,
- 5:33but he knows me. And he knows what I'm
- 5:34like. And um
- 5:37we're still very much a team. I mean, it
- 5:39sounds odd that when we see so little of
- 5:41each other, but we're very much a team.
- 5:44Come on.
- 5:46No hanging around on the other side of
- 5:47the room.
- 5:48Thank you, darling.
- 5:50What does it mean to you when Deborah
- 5:52comes to visit?
- 5:54Heaven on earth arrives.
- 5:55And what does it mean to you when
- 5:57Deborah can't come and visit?
- 5:59Well, I don't know. I haven't been
- 5:59conscious since I've been ill.
- 6:01I don't know what I've been thinking
- 6:02when she's not here. I'd never seen her
- 6:04before, either.
- 6:06Never heard a word. Yes. I've never seen
- 6:08any human beings since I've been ill.
- 6:09You're the first four people I've seen
- 6:11in 30 years.
- 6:13And if you're unconscious, you don't
- 6:14like it much, do you?
- 6:16What does being unconscious mean?
- 6:19Same as death.
- 6:21No difference between day and night. No
- 6:22thoughts at all.
- 6:24Day and night the same.
- 6:26And what does love mean, Mr. Waring?
- 6:29Zero in tennis and everything in life.
- 6:32Good answer.
- 6:34Good answer.
- 6:36That's what it's about, love, isn't it?
- 6:37Everything.
- 6:39Clive became ill before he and Deborah
- 6:41could start a family.
- 6:43But Clive has three children from his
- 6:45first marriage.
- 6:47I thought of my father as a wonderful
- 6:49person. Mostly absent
- 6:52because of my parents split up when I
- 6:53was very young. Um but when I did see
- 6:56him, he was always very jolly, um
- 6:58very giving, always laughing, and we all
- 7:01missed him.
- 7:04I never dared to ask him what my name
- 7:05is.
- 7:06I don't know if that's
- 7:08my fear for him or my fear for myself,
- 7:10but
- 7:11I've never asked him uh what my name is.
- 7:14He knows I'm his son, and he'll always
- 7:16say we you should be this tall cuz he
- 7:17left home when I was that tall.
- 7:21I can hear music in the distance.
- 7:24What music can you hear?
- 7:32Since his illness, Clive has auditory
- 7:35hallucinations.
- 7:40I What I struggle with the most is that
- 7:43the intellectual colossus that was my
- 7:45father
- 7:46is reduced to making word games out of
- 7:49car number plates.
- 7:50You know, it
- 7:52it's just
- 7:53there's a tiny fraction of him left now.
- 8:0220 years ago, Clive was a well-known
- 8:04musician, conductor, and early music
- 8:06producer for Radio 3.
- 8:10He was a very charismatic conductor. He
- 8:14was working in a field that
- 8:17was just cutting new ground all the
- 8:18time.
- 8:21He would transcribe from
- 8:23original manuscripts and recreate the
- 8:25music for a particular meal that the
- 8:29Duke of Bavaria had with his
- 8:30mother-in-law, and what they wore, and
- 8:33what they had to eat, and this was the
- 8:34music, and then he would make a radio
- 8:36program.
- 8:39Took all his energy. There wasn't much
- 8:41time to sleep. There were no weekends.
- 8:43He poured his whole being into his work.
- 8:47Everybody
- 8:48used to say to him, "Clive,
- 8:52slow down."
- 8:54He couldn't.
- 8:58No one had any idea that Clive was about
- 9:01to become one of the most extreme cases
- 9:03of amnesia in the world.
- 9:12Clive's descent into brain damage came
- 9:14frighteningly quickly one week in March
- 9:161985, when he came home from work
- 9:19looking flushed and feverish.
- 9:22On Saturday, his headache started.
- 9:25By Tuesday, he was no better, and he
- 9:27hadn't slept. His temperature was 102.
- 9:31By Wednesday, he was very confused and
- 9:33couldn't remember Deborah's name.
- 9:35His temperature was 104.
- 9:38Doctors came and went, and Deborah left
- 9:40him sleeping.
- 9:42But when she came home, Clive had
- 9:44disappeared from their flat.
- 9:46I called his name. There was no reply. I
- 9:49went into the bedroom, the bed was
- 9:51empty, and I knew something terrible had
- 9:55happened.
- 9:57Over the next few hours, Deborah rang
- 9:58hospitals and police stations across
- 10:00London.
- 10:02No one had seen Clive.
- 10:05We sat, we sat, we sat,
- 10:07and then
- 10:09a man's voice
- 10:11The phone rang and a man's voice said,
- 10:13"Are you Mrs. Wearing?"
- 10:15"Yes."
- 10:17"We've got your husband."
- 10:19"Thank God."
- 10:21Clive had gone out
- 10:23fully dressed with his overcoat and a
- 10:24copy of The Times under his arm, hailed
- 10:27a cab,
- 10:28but couldn't remember where he lived. He
- 10:30wanted to go home, and he couldn't
- 10:31remember where he lived.
- 10:33And the cab driver had dropped him at
- 10:35West Hampstead police station, and the
- 10:37police had traced him by his Barclay
- 10:39card.
- 10:40So we got there,
- 10:41and uh we we we took him home, and Clive
- 10:44went to walk past the gate, and I
- 10:46stopped him, and I said, "No, it's
- 10:47here." And he said, "Oh, is this where
- 10:49we live?"
- 10:50And I said, "Yes."
- 10:52And he didn't recognize the building.
- 10:57Two doctors made home visits and
- 10:58concluded that Clive was suffering from
- 11:00a severe bout of flu that was doing the
- 11:03rounds in North London.
- 11:06But the Friday morning, he wasn't
- 11:09answering me, and I picked up one of his
- 11:11arms, and it was floppy. So I rang the
- 11:14doctor again. I said, "He's gone floppy.
- 11:17He's gone floppy. Get here now."
- 11:20And the doctor came,
- 11:22took one look at Clive, and dialed 999,
- 11:26went out of the front door, walked down
- 11:28the stairs, and as he turned the
- 11:30landing, he said,
- 11:31"This is the strangest case I've ever
- 11:33seen."
- 11:38When we got to the hospital, and I just
- 11:40remember going through these clear
- 11:42plastic rubber doors. They were like a
- 11:45valve.
- 11:46And that as those doors flapped shut
- 11:49behind us, you know, it was just like
- 11:53our life as we knew it was over.
- 12:01Once Clive was inside St. Mary's
- 12:02Hospital, the doctors fought to halt his
- 12:05fever and desperately conducted tests.
- 12:08They realized that Clive's brain was
- 12:10being attacked by the herpes simplex or
- 12:12cold sore virus.
- 12:17Occasionally, this virus crosses the
- 12:19blood-brain barrier and gets into the
- 12:22brain. Nobody knows why or how.
- 12:24Incredibly rare. It happens in about
- 12:26It's a one in a million chance that it's
- 12:28going to happen.
- 12:30And it caused an inflammation of the
- 12:32brain, which was called encephalitis.
- 12:37From what the doctors said
- 12:41about how bad
- 12:43um
- 12:44the temperature had been and how
- 12:47ill he'd been, I was very concerned that
- 12:50he wasn't going to live.
- 12:53Uh I was I was fairly convinced that I'd
- 12:56come to see my dad die.
- 13:05And then he didn't.
- 13:09Clive was given a new drug called
- 13:11acyclovir.
- 13:12It saved his life, but came too late to
- 13:15prevent brain damage.
- 13:17The virus had destroyed Clive's
- 13:18hippocampus, an area of the brain
- 13:20crucial for memory and learning,
- 13:23leaving him with dense amnesia.
- 13:33How many years have I been ill?
- 13:35About 20.
- 13:36About 20.
- 13:38Can you imagine what it's like to have
- 13:39one night 20 years long
- 13:41with no dream?
- 13:43That's what it's been like.
- 13:45Just like death.
- 13:47No difference between day and night, no
- 13:49thoughts at all.
- 13:51And in that sense it's been totally
- 13:53painless.
- 13:56Which is not something which is very
- 13:57desirable, really, is it?
- 14:00Cuz it's precisely like death.
- 14:03If you have no spent senses of pain, you
- 14:05have no sense of any kind working,
- 14:06either.
- 14:08I don't remember sitting down on this
- 14:10chair, for example, or this city, as it
- 14:12is. That was unknown to me.
- 14:14I've never seen a human being since I've
- 14:16been the last first photograph I've seen
- 14:17of anybody.
- 14:18And who is that photograph
- 14:19of my sons.
- 14:21I can't remember his name.
- 14:23It's gone now.
- 14:25Last time I knew him he was still at
- 14:26school.
- 14:27That's how many years it's been.
- 14:30A few years before he would have died
- 14:31from it.
- 14:33Um and a few years later they might have
- 14:35spotted it quicker, or maybe a different
- 14:37doctor might have spotted it quicker, or
- 14:38whatever.
- 14:39So, it was just on the cusp of
- 14:42of that that change, and and that's
- 14:45yeah, he's suffered for that, I think.
- 14:47And in my own mind it was the question
- 14:48of
- 14:49is it right that he's been ill for so
- 14:52many days, and how much damage has been
- 14:54done to his brain in that time?
- 14:57And uh whether
- 14:59it was the right thing or the wrong
- 15:01thing that
- 15:02he was treated and everybody fought for
- 15:04him as much as they did.
- 15:07Clive remained at St. Mary's, Paddington
- 15:09for 7 years. There was nowhere else
- 15:12suitable for him to go.
- 15:14His mood swung from euphoria to sadness
- 15:17within weeks, and confusion and despair
- 15:20set in.
- 15:22He was in severe shock, so he was just
- 15:23crying all the time. You'd come in and
- 15:26you'd say, "Oh, hi, I'm your son."
- 15:27"You're my son? I don't recognize you."
- 15:29And then he'd be crying again, and
- 15:31you're just stuck in that loop for
- 15:32months.
- 15:34I said, "Clive, can you
- 15:36tell me why you're crying?"
- 15:38And he said, "No."
- 15:40And I I handed him a little notepad and
- 15:42a pen, and I said,
- 15:44"Can you write it?" I said, "Just write
- 15:47quickly
- 15:48why you're crying." And he wrote,
- 15:51"I am completely incapable of thinking."
- 16:04I'm talking to you. It's Clive here. I
- 16:06don't care about anybody else in the
- 16:07world but you. Please, please come. Love
- 16:10you. Bye-bye, darling.
- 16:16These messages were recorded on
- 16:18Deborah's answering machine minutes
- 16:20after she'd left him.
- 16:21I love you. I love you. I love you,
- 16:22darling.
- 16:22Can Can you come and see me, please?
- 16:24I'm the clue what's happened that time.
- 16:26Deborah visited Clive daily, but he
- 16:28couldn't remember her being there.
- 16:31I don't care how late it is. Come for me
- 16:33at midnight or 1:00 in the morning. I
- 16:34don't mind. I just love you, and I want
- 16:37you to come as soon as you can, please,
- 16:38darling.
- 16:39Take care. I love you. I haven't seen
- 16:41you yet, and I want to. Please come,
- 16:42darling. Bye-bye.
- 16:49I let myself in.
- 16:58First time I've seen a human being.
- 17:04Every moment for Clive is the first
- 17:07moment because the amnesia is rubbing
- 17:10everything out immediately after it
- 17:13happens. Not only does he not remember
- 17:16anything that's happened to him since he
- 17:17was ill. He doesn't remember anything
- 17:21that's ever happened to him in the whole
- 17:23of his life.
- 17:25He knows about things. He knows that he
- 17:28worked for the BBC.
- 17:30But he does not
- 17:32have any events in his mind that he can
- 17:35bring to his mind's eye. He knows that
- 17:38we are married.
- 17:40He does not remember the wedding.
- 17:47Where's your diary, Mr. Wearing?
- 17:49No idea.
- 17:50Never seen it.
- 17:53It says 7:16 a.m. first actual. I don't
- 17:56remember that at all. I was on the
- 17:57train.
- 18:14First diary entry I've made consciously.
- 18:18Clive keeps a diary every day and has
- 18:21done for 20 years in an effort to make
- 18:23sense of his life.
- 18:25He writes multiple entries recording his
- 18:27last conscious moment.
- 18:30He would look at his watch to see what
- 18:33time was this momentous event occurring
- 18:37of first consciousness. And so he would
- 18:40write down 10:06 awake first time.
- 18:44And then
- 18:45have the same sensation and put 10:07.
- 18:49Awake first time, truly awake first
- 18:52time.
- 18:53Ignore the last entry. Now I'm awake.
- 18:56This is the first real awakeness. And so
- 18:59the the diaries are line by line a
- 19:02succession of astonished awakenings.
- 19:09That's 1990 when he'd been suffering
- 19:12amnesia
- 19:14for just 5 years.
- 19:16And this is the effect on him 7 years
- 19:20on, but you can see that he's by no
- 19:24means
- 19:25resolved his anguish. By no means. He
- 19:29writes the time now in big
- 19:32in a big hand. And a And a tick a tick
- 19:35to say yes, that's authentic. I I wrote
- 19:38that. It's authentic. That's definitely
- 19:39me awake. He has to then cross through
- 19:42the previous ticks and do a new tick
- 19:45with a circle round it to say this is
- 19:47the real one. And that wasn't the real
- 19:48one next time he comes back and so on.
- 19:51So there's a constant desperate series
- 19:54of scrubbing out all the previous
- 19:57entries and saying now I'm awake.
- 19:59Now I'm awake. And the the pencil just
- 20:02becomes
- 20:03blurred and it goes on and I mean it's
- 20:05so thick the pencil it's almost as if
- 20:07he's using the pencil to dig himself
- 20:10into back into time to try to fix
- 20:13himself in a continuum to have more than
- 20:16one moment at a time.
- 20:18But he never can.
- 20:21People's entries in the diary are
- 20:23rubbish. What does that mean?
- 20:24I've no idea.
- 20:25Did you write that?
- 20:26I've no conscious conscious knowledge of
- 20:27it at all.
- 20:28I was saying to you now for the first
- 20:29time.
- 20:30But it's Is it your handwriting?
- 20:31Yes, it is. But I know nothing about it
- 20:32at all.
- 20:33So how do you think it got there?
- 20:34I don't know.
- 20:36I presume the doctor did that.
- 20:37But you must
- 20:37No, I haven't. I haven't seen the book
- 20:39at all until now.
- 20:40No, I'm All I've said is
- 20:41me. That means I haven't seen it. I have
- 20:43no knowledge of it at all.
- 20:45That's all. There's no knowledge of that
- 20:46book at all. It's entirely new to me.
- 20:48But you put Who would put that in there?
- 20:49I don't know, but you have got No, no,
- 20:52oh for heaven's sake use your
- 20:52intelligence for heaven's sake. I
- 20:53haven't read this read a bloody thing.
- 20:55Well, use your intelligence.
- 21:04The The don't know why Clive's
- 21:06aggressive outbursts have gradually
- 21:08stopped.
- 21:11Have you written in your diary today?
- 21:13Sorry?
- 21:13Have you written in your diary today?
- 21:15I never seen a diary since I don't know.
- 21:17I don't know.
- 21:18No idea what today is.
- 21:20That's something new.
- 21:24That's at least an hour out of date, an
- 21:26hour and 3 minutes out of date.
- 21:42Yeah.
- 21:43First time I've seen my writing.
- 21:46First time I've seen my room, first time
- 21:48I've seen human beings.
- 21:52Do I have a dream or a thought? They are
- 21:54not the same.
- 21:56The thoughts of humankind.
- 22:03It says you're here.
- 22:06Is that you?
- 22:09It's your here. It says coffee, drinking
- 22:11it. 3 minutes past 10.
- 22:13That was unknown to me. I've never seen
- 22:15anyone except you three people, two men
- 22:17and one lady.
- 22:26Clive's condition was hard for Deborah
- 22:28to bear.
- 22:31You asked me when did I decide to
- 22:33divorce him and when did I decide to to
- 22:36leave?
- 22:37It wasn't really a decision, it was an
- 22:39imperative.
- 22:41There was no way any human being could
- 22:44continue in that way. We had the same
- 22:48dialogue in a loop tape, repeated
- 22:50verbatim, with the same inflection, the
- 22:53same tone of voice, the same expression
- 22:55on the face
- 22:57for
- 22:58well,
- 22:59nine
- 23:00the whole nine years until I left and we
- 23:02were still having that conversation as I
- 23:05was backing out of the room.
- 23:11Clive became ill and hospitalized only
- 23:1318 months after marrying Deborah.
- 23:163 years after the virus attacked his
- 23:18brain, the strain on their lives was
- 23:20beginning to show.
- 23:23It's like being a wife and widow
- 23:26simultaneously.
- 23:28I lost Clive almost of Clive 3 years
- 23:31ago.
- 23:33Because without consciousness,
- 23:35he's in many senses dead.
- 23:39To ease her pain, Deborah campaigned for
- 23:417 years to find Clive a secure and
- 23:43permanent home with around-the-clock
- 23:45care that he needed.
- 23:48In 1992, he was finally moved to a new
- 23:50specialist brain unit outside London.
- 23:55Deborah's mission was accomplished, but
- 23:57she had exhausted herself and Clive was
- 23:59increasingly having fits in her
- 24:01presence.
- 24:04With no hope of living together again,
- 24:06Deborah divorced Clive and flew to
- 24:08America.
- 24:11I was in my mid-30s. I wanted kids. I
- 24:14didn't want to be on my own all the
- 24:16time. It was very lonely and I thought
- 24:18maybe having a relationship with
- 24:20somebody else and having kids would help
- 24:22to heal the pain.
- 24:26I rang him up
- 24:28to say, "Hello, darling. I've arrived."
- 24:29Although of course he didn't know I'd
- 24:31left cuz he didn't know I'd ever been
- 24:32there. And it didn't really make any
- 24:34difference where I was. It didn't matter
- 24:35whether I was in London or New York or
- 24:37Timbuktu.
- 24:40I tended to fall for just completely
- 24:42impossible people. Uh who are all
- 24:45artists of some kind.
- 24:47And um as soon as I came
- 24:50became close to anybody had
- 24:52conversations with them, you know, the
- 24:54relationship just
- 24:56dissolved because
- 24:58uh
- 25:00they weren't Clive, basically.
- 25:05I was looking for Clive, I guess.
- 25:10Did he ever ask you when you were coming
- 25:11home?
- 25:12No.
- 25:13Did he ever ask you what you were doing?
- 25:16No.
- 25:17He showed no curiosity.
- 25:19He just wants to let me know that he was
- 25:21awake.
- 25:24He'd say Yeah, he'd say, "When are you
- 25:26coming?"
- 25:27And I'd say,
- 25:30"As soon as I can." And then he'd say,
- 25:33"Oh, please come at the speed of light.
- 25:35Come at the speed of light. Come by
- 25:37helicopter."
- 25:44In 1996, Deborah had to make a choice
- 25:47whether to remain in America and apply
- 25:49for permanent residency and a green
- 25:51card.
- 25:55She returned to the UK, drawn back to
- 25:57Clive.
- 25:59She settled in Nottingham, working for
- 26:01the brain injury charity Headway.
- 26:03Deborah had come full circle.
- 26:09And I came back still not knowing how to
- 26:11live, still with that huge emptiness, a
- 26:14great sucking emptiness inside that
- 26:16could never be filled.
- 26:18Still with a sense of needing to go
- 26:20home, but not have, you know, where's
- 26:22home?
- 26:23Cuz home was where he was, but I
- 26:24couldn't be with him.
- 26:34I was just going round and inevitably
- 26:36sing circles. It was the same. It was
- 26:38just more of the same.
- 26:40I'd reached really the end of my tether,
- 26:42and I rang a friend, and I asked her to
- 26:45pray for me.
- 26:46She was the only Christian I knew.
- 26:49And as she was whispering away to God.
- 26:51And I just felt this extraordinary
- 26:55power
- 26:56coming into me.
- 26:59And I knew that God was in my room.
- 27:03I just had this incredible sense
- 27:06that I was really really loved.
- 27:11I mean so loved. And that emptiness that
- 27:13I had been trying to fill all those
- 27:15years
- 27:17with relationships,
- 27:19with food,
- 27:20with alcohol,
- 27:22I was filled.
- 27:24That emptiness
- 27:25was gone.
- 27:37steps
- 27:41This is the Ethelred's place. It's an
- 27:43Ethelred's place.
- 27:48Clive is visiting St. Ethelred's Church
- 27:51in London for the first time since he
- 27:53recorded a concert there in 1982.
- 28:00It's amazing to have the acoustics of
- 28:02the churches is quite unlike that of a
- 28:04concert hall.
- 28:04Yeah. Yeah.
- 28:06There's lots of echoes and and long
- 28:08reverberation. It's very special in that
- 28:09way.
- 28:10Listen. See how quiet it is.
- 28:13I can hear some music in the distance.
- 28:16I remember last time we were here
- 28:19you were conducting the Lassus Requiem.
- 28:21All right.
- 28:22And it was for the the Lassus
- 28:25international Lassus Festival that you
- 28:28put on. And you you came in here
- 28:31and none of the pews were here. And you
- 28:33used the whole building.
- 28:35for the acoustics
- 28:36And you had uh
- 28:37it was far from a concert. It was
- 28:40actually a celebration
- 28:43of the mass
- 28:45as if Lassus had just died.
- 28:48It was extraordinary. And it was so
- 28:50moving that there were people here
- 28:53who were crying.
- 28:55And it was broadcast live
- 28:57to five countries.
- 28:59Divisions.
- 29:00And you were directing it.
- 29:02And it was so moving. It was so moving
- 29:04that everyone was in tears.
- 29:11That's how good you is how good a
- 29:13director you a musical a director you
- 29:15were. It was just live. And you gave the
- 29:19audience, whether they were sitting at
- 29:20home listening to the radio or whether
- 29:22they were walking around here in the
- 29:24dark with candle light flickering, you
- 29:26gave them an experience of
- 29:29something deep and profound and
- 29:31spiritual. And they went away after your
- 29:33concert and they were never the same
- 29:34again.
- 29:36You did, darling.
- 29:38I don't know
- 29:38if you can say that. I can't think that.
- 29:40Oh, you were marvelous.
- 29:42Yeah.
- 29:42You still are marvelous.
- 30:14See the car rather WCD fine wearing key.
- 30:18Extremely pleasant garage that came
- 30:19from.
- 30:20Clive makes phrases out of the letters
- 30:22on car number plates as they flash past.
- 30:25The great king of kings. Two double
- 30:27kings. This is really sad.
- 30:31Thank you, my love.
- 30:31Peace first forever.
- 30:33Thank you.
- 30:34Cheers. Cheers.
- 30:40Guess what my job is.
- 30:41Head of the United Nations.
- 30:43No.
- 30:43No. Head of the British Empire.
- 30:45Mhm.
- 30:45No.
- 30:46Guess.
- 30:47PR?
- 30:48PR?
- 30:49WOW, that's amazing.
- 30:52Yeah, I do.
- 30:54That's very clever.
- 30:58Well done, darling.
- 31:00I'll give you a kiss.
- 31:09You astound me. Sometimes you take my
- 31:11breath away.
- 31:13I know you didn't lose your breath.
- 31:16You're not to stop breathing now.
- 31:17No, I won't.
- 31:19Till God tells me to.
- 31:20Um
- 31:22Do you know what I do for a living?
- 31:24You earn money.
- 31:25Yeah. What do you think my job is?
- 31:27Running the United Nations.
- 31:28No, really. What do you think it is?
- 31:30Guess.
- 31:31Head of the United Na- No. British
- 31:33Empire.
- 31:33Guess.
- 31:35What can you see me doing?
- 31:39Being famous.
- 31:40Stop. No, really. Guess.
- 31:41I don't know.
- 31:42PR. Public relations.
- 31:44Oh, is she?
- 31:44Mhm. Well done.
- 31:47That's an exciting life, though, isn't
- 31:48it?
- 31:49No two days are the same, really. Always
- 31:51different down there.
- 31:59Deborah renewed her marriage vows with
- 32:01Clive 3 years ago, although they'll
- 32:03always have to live apart.
- 32:07What does this house mean to you?
- 32:10The opposite of walking in the open air.
- 32:13A necessity for life.
- 32:15This This house. What is it?
- 32:16seen it before.
- 32:21What does this place mean to
- 32:22I don't know. Doesn't mean anything.
- 32:23I've never seen it. Before.
- 32:27Hello.
- 32:29Hello is heaven though. Hello is very
- 32:31hello.
- 32:33It's not familiar then, the house. this
- 32:35I've never seen a human being since I
- 32:37was a little boy.
- 32:38Where do you think it is?
- 32:39No idea.
- 32:40Guess.
- 32:40year is it?
- 32:41Guess where it might be.
- 32:42It could be anywhere from Scotland to
- 32:44Cornwall.
- 32:44Do you think there's anyone that
- 32:47Do you think you've ever been here
- 32:48before?
- 32:48No.
- 32:53There's my initials backwards, WDC.
- 32:56Should we go in?
- 32:56Please.
- 32:57What do you think we'll find when we get
- 32:58in?
- 32:59Alcohol.
- 33:01Let's hope, eh?
- 33:03Champagne, I want really.
- 33:05What do you think life's been like for
- 33:07your father?
- 33:08Hell.
- 33:09I can't imagine anything worse.
- 33:13Must be really frightening
- 33:16to be constantly waking up to something
- 33:18that you don't recognize
- 33:21you
- 33:22every 7 seconds or however however long
- 33:25that he's
- 33:27he can remember anything for to to sort
- 33:29of turn around and
- 33:31where am I? And you do it again and you
- 33:33don't know where you are. I can't
- 33:35imagine anything more frightening.
- 33:37Must be like a nightmare.
- 33:40Really must.
- 34:06Deborah is planning a momentous trip for
- 34:08Clive.
- 34:11Where would you Where would you like to
- 34:12go?
- 34:13Best pub in the country.
- 34:13If you could go anywhere, where would
- 34:15you like to go?
- 34:15No idea. No idea.
- 34:16Well, I'm going to take you home.
- 34:19No, I see you tomorrow. I'll see you.
- 34:20Do you know where home is?
- 34:21No.
- 34:22Guess.
- 34:23Uh yesterday.
- 34:25Home is yesterday.
- 34:27Yes, it was yesterday.
- 34:28That's That's not a bad answer,
- 34:30actually. Home is yesterday.
- 34:32That's true.
- 34:33Yesterday never saw me.
- 34:34And Tom is also next Tuesday.
- 34:35Oh, I see.
- 34:37We're going
- 34:38I live in Reading.
- 34:39Oh, I see.
- 34:40You have a
- 34:41It looks like reading where it's
- 34:42spelled, isn't it?
- 34:43Do you think you've ever been to
- 34:44Reading?
- 34:44Yes, I have been there.
- 34:45Have you?
- 34:46Yes. I've been driving ever since he was
- 34:48never there.
- 34:49you could have gone when Howard was
- 34:50studying there.
- 34:52Yeah, I didn't know you'd ever been
- 34:53there.
- 34:53Yes, I have been.
- 34:54mentioned Reading.
- 34:55No, it's not it's not very interesting
- 34:57because I have a memory of going there.
- 34:58Yeah, not a very interesting
- 35:00No.
- 35:00No.
- 35:06Can you name a town in Berkshire?
- 35:07No, I can't. I can't remember the dog
- 35:09[ __ ] town.
- 35:09know where I live?
- 35:10No.
- 35:12Guess.
- 35:13No idea.
- 35:14It begins with a R.
- 35:15No idea.
- 35:16Reading.
- 35:16Oh, Reading?
- 35:17Yeah.
- 35:18Spelt wrong. It's really Reading.
- 35:22What's that word?
- 35:23King of notes.
- 35:23Clive is going home for the first time
- 35:26in 13 years.
- 35:28Do you remember the car your parents
- 35:30drove? Your father drove?
- 35:31No, I can't remember. It was a Ford.
- 35:33Do you remember the number plate?
- 35:34You want 941?
- 35:36E O N 941? You do?
- 35:38I can't remember the car.
- 35:39Do you remember the phone number when
- 35:41you were a little boy?
- 35:41Phone was 3164.
- 35:43Yeah.
- 35:46Remarkably, Clive can still recall
- 35:48details from his childhood. Numbers
- 35:51embedded in his memory before he became
- 35:53ill.
- 35:57There's another guest expected for
- 35:59lunch. Clive's youngest son, Edmund, who
- 36:02has not seen his father for 7 years.
- 36:05Things that I used to do with my father
- 36:08um always revolved around his work.
- 36:10It was we'd be either going to see going
- 36:14to places such as the British Museum for
- 36:15his research, or we'd be going to
- 36:18concert venues or recording venues. Uh
- 36:21we would often end up in churches. And
- 36:23he could walk into a church or a
- 36:25cathedral anywhere in Europe and read it
- 36:27like a book.
- 36:28He had a vast amount of knowledge and
- 36:31that's just been
- 36:32wiped out.
- 36:33It It's been a difficult time.
- 36:41Seconds before Edmund's arrival, Deborah
- 36:43has primed Clive to expect him.
- 36:46Ah,
- 36:48there he is, darling. Hello.
- 36:51Oh.
- 36:52Oh, well done.
- 36:53Hello.
- 36:54How are you?
- 36:55Yeah. May I be the first to see a human
- 36:57being for the first time?
- 36:58Ah, you've never seen anyone since I've
- 36:59been here.
- 37:00I brought some flowers for that lovely
- 37:01wife of yours.
- 37:02She's gorgeous.
- 37:07Thank you.
- 37:08It's not quite red, white, and blue,
- 37:09though, the color, is it?
- 37:10They're lovely.
- 37:11They're more pinky.
- 37:12Those countries don't have pubs. It's a
- 37:14strange situation.
- 37:15What does normality feel like to you
- 37:17now?
- 37:18Certainly at the end of the day, it's
- 37:19Great luxury. Something that, you know,
- 37:23to be really
- 37:24values and appreciates. It's very
- 37:26precious.
- 37:27We haven't had a family meal in 20
- 37:30years.
- 37:37Deborah, what will this day mean to
- 37:38Clive?
- 37:40Nothing.
- 37:42Nothing in his conscious memory. I mean,
- 37:44even while he's here, he doesn't know
- 37:46we're here.
- 37:47And when he's in the car, he won't know
- 37:49we've been here.
- 37:50And he won't remember anything of it?
- 37:52Nope.
- 37:53He doesn't remember anything that's ever
- 37:54happened in the last 20 years, ever.
- 37:57What do you say to Clive when he gets
- 37:59confused and disorientated? How do you
- 38:01deal with that?
- 38:02Well, he's disoriented all the time.
- 38:05But it doesn't matter
- 38:07because we don't need to be in time. We
- 38:09don't need to be in any particular
- 38:11place.
- 38:12Cuz we're We're in We're on another
- 38:13plane, Clive and I.
- 38:16We're um
- 38:17We're in a world where um there is no
- 38:19time.
- 38:21After 4 hours, Deborah has to take Clive
- 38:24back to the brain injury unit.
- 38:26Has it gone well?
- 38:29Um
- 38:32I don't really want to answer that.
- 38:33Thank you.
- 38:43Sorry.
- 38:44That was baby.
- 38:46That was really me.
- 38:47Um
- 38:49That was really me.
- 38:52I was just wondering how the day had
- 38:53been.
- 38:55Um
- 39:01Well, it's just so sad that it's not,
- 39:03you know, that's not our reality. And
- 39:05it's just so sad.
- 39:18And why have you stayed away for 7
- 39:20years?
- 39:21It's too painful.
- 39:24Was it easier to stay away?
- 39:26Oh, yeah.
- 39:27Yeah, it was the easy way out.
- 39:32There didn't seem any point, either, cuz
- 39:33he didn't remember.
- 39:35He'd write it in his diary, but he'd
- 39:37turn over the page and start writing the
- 39:38next day.
- 39:40Um
- 39:41Did he know who you were?
- 39:43Uh more or less. He needed to Sometimes
- 39:45he'd need a bit of prompting.
- 39:48He's got a quick mind. If friends came
- 39:51up that he didn't recognize,
- 39:52um and he understood that he was
- 39:55supposed to recognize these people,
- 39:57then
- 39:58he would greet them like long-lost
- 40:00friends, and he'd he'd work on on that
- 40:03until somebody told him what he needed
- 40:05to know.
- 40:06Um so, he he was always a difficult man
- 40:08to fool,
- 40:09you know? And those were the things, you
- 40:11know, that I was always pleased to see,
- 40:13because I knew that his mind was working
- 40:15overtime, and I knew that that was him.
- 40:19I mean that is just
- 40:20a shadow.
- 40:31Today, Clive's sister Adele has come to
- 40:33see him.
- 40:40And I used to take the children to see
- 40:41him, but he used to get very aggressive.
- 40:43He was very angry. You know, there was
- 40:46one occasion when I went to see him on
- 40:47my own and he he just when I said who I
- 40:49was, he he
- 40:51attacked me.
- 40:52Almost, you know, grabbed hold of me
- 40:55very aggressively.
- 40:56And the staff came in and sort of calmed
- 40:59it down.
- 41:00But he'd remember me when I was younger.
- 41:02He just said, "No, you know, you're too
- 41:04old."
- 41:05And that's all the four of us, isn't it?
- 41:06That's That's what That's what Adele
- 41:08looked like when she How old do you
- 41:10think you all were then?
- 41:1210 or 11.
- 41:13I I think I'm about four there,
- 41:14actually.
- 41:15About four?
- 41:15Yeah, so you were about nine or 10
- 41:17there.
- 41:17Yeah.
- 41:18And how
- 41:19looked ignored compared with us.
- 41:20And he went off to sea when he was 15,
- 41:22didn't he?
- 41:22Yeah, so he went to the Merchant Navy.
- 41:24Yeah, but the ships traveled really
- 41:26quite slowly compared with the aircraft,
- 41:27didn't they?
- 41:28Oh, very slowly. Yes. I I used to go and
- 41:30visit him. Just found it just so
- 41:32difficult.
- 41:33Um
- 41:35and and not easy to talk to him at all.
- 41:38My husband who'd got no connection with
- 41:40him found it much easier. He could talk
- 41:42about things that were totally
- 41:44irrelevant and could happily carry on a
- 41:46conversation with him, but I have always
- 41:48found that extremely difficult thing to
- 41:50do.
- 41:51Aw, shame.
- 41:52It's been lovely to see you.
- 41:54I wasn't sure if I'd see you or you'd
- 41:55see me.
- 41:56Yeah.
- 41:57I've seen you.
- 41:58All right.
- 41:58Oh, wonderful.
- 41:59Bye-bye for now.
- 42:00All right.
- 42:03You stay there and I'll
- 42:04You open the door.
- 42:05I will.
- 42:06You going?
- 42:07I'm going.
- 42:07Aw, shame.
- 42:09Bye-bye.
- 42:09Back at the speed of light, please.
- 42:11I'll do my best, but
- 42:14Isn't she wonderful?
- 42:20Do you remember Adele sitting next to
- 42:22you?
- 42:22No.
- 42:23No.
- 42:24Can you remember what she was wearing?
- 42:26No.
- 42:27Never seen that.
- 42:34You're the first human beings I've seen,
- 42:35three of you.
- 42:37Two men and one lady, the first piece of
- 42:38people I've seen since I've been here.
- 42:41No difference in day and night. No
- 42:43thoughts at all. No dreams.
- 42:45Day and night, the same blank.
- 42:48It's just like death.
- 42:52Is it very hard?
- 42:54No.
- 42:55It's exactly the same as being dead,
- 42:56which is not difficult, is it?
- 42:58Being dead is easy.
- 43:00You don't do anything at all.
- 43:03You can't do anything when you're dead.
- 43:07It's been the same.
- 43:09Exactly.
- 43:11Do you miss your old life?
- 43:13Yes.
- 43:14I've never been conscious to think that.
- 43:17So, I've never been bored or upset.
- 43:19Never been anything at all. It's exactly
- 43:21the same as death.
- 43:23No dreams, even. Day and night, the
- 43:25same.
- 43:28When you miss your old life, you say
- 43:29yes, I miss my old life. What do you
- 43:32miss?
- 43:33The fact that I was a musician
- 43:36and in love.
- 43:38He'll say things like, "Do you know what
- 43:40it's like?" And that's really dangerous,
- 43:41cuz if you I actually did, I said yes at
- 43:43once, cuz I was just saying yes to
- 43:45everything.
- 43:46That was disastrous.
- 43:48I've never said that again since.
- 43:50Why?
- 43:52Because he says, "You don't know what
- 43:53it's like. How do you know?" Of course,
- 43:55he's right, isn't he?
- 43:56You know, so there's no way you're going
- 43:57to know what it's like.
- 43:59Um
- 44:00So, he's still got some fight in him.
- 44:01Oh, yeah. Yeah, but that that's the
- 44:03thing is
- 44:04probably three quarters of his
- 44:06personality is still there functioning
- 44:08normally. He would analyze what's
- 44:10happening. He'd say, "Well, the doctors
- 44:11must be very interested in this. You
- 44:12know, it's a very unusual case." He
- 44:14worked it all out over and over again
- 44:16because he doesn't really remember that
- 44:17he worked it out an hour ago.
- 44:36David's done more for Dad than any other
- 44:38single person.
- 44:40And I very much doubt
- 44:43that I could have done that for him.
- 44:46And that's hard.
- 44:49That's very hard.
- 44:51I think I'd have given up.
- 44:55When did you last see your father?
- 44:57I wouldn't like to say when it was cuz I
- 44:58really can't remember.
- 45:00It's too hard.
- 45:04I wanted him to walk me down the aisle
- 45:05when I got married.
- 45:07And he couldn't.
- 45:11I wanted him to
- 45:14know that I'd had his grandchildren. And
- 45:16he couldn't.
- 45:19So, he's he's
- 45:21a lovely person.
- 45:27He's he's Clive now.
- 45:31That's gone.
- 45:49Considering
- 45:50he's still one of the most amnesiac
- 45:52people in the world,
- 45:53he's pretty peaceful. Considering
- 45:57he doesn't know where he is or what
- 45:58century it is,
- 46:00or where Well, what time he got up that
- 46:03morning, or or that he's in a place
- 46:06where he lives.
- 46:08Considering all of that, his state of
- 46:11mind is extraordinarily
- 46:13calm, happy,
- 46:15content,
- 46:18and very much himself. He's himself.
- 46:23If you could do anything now,
- 46:26if you had free choice, what would you
- 46:27do next?
- 46:29I would jump
- 46:30Tony Hancock.
- 46:33I would have a cigarette.
- 46:36And then, of course, waiting for time to
- 46:38elude and disappear.
- 46:41And her arrival.
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