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Menstrual Health at Work Webinar — Transcript

by Endometriosis UK · 7,417 words · 1,081 segments · language en · Watch on YouTube

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  1. 0:00uh good afternoon everyone uh thanks for
  2. 0:02joining uh me today um so in this
  3. 0:05webinar we're going to talk mental
  4. 0:07health atwork um I'm ganisha um and I am
  5. 0:10the workplace mental well-being manager
  6. 0:12here at endometriosis UK um so just in
  7. 0:16nutshell my role in the organization
  8. 0:18currently is um where is I'm running a
  9. 0:21project and the project focuses focuses
  10. 0:24on um mental health conditions obviously
  11. 0:27endometriosis is one of the conditions
  12. 0:29that we do highlight
  13. 0:30but there's a five other conditions that
  14. 0:32the project also looks into as well and
  15. 0:35um my main role um and responsibility is
  16. 0:38kind of ensuring the information is out
  17. 0:40there um ensuring that managers HR teams
  18. 0:45uh Employers in general are supported to
  19. 0:48um support their staff of mental health
  20. 0:51conditions um and allow women and you
  21. 0:53know those are months for have
  22. 0:54conditions to thrive out whack um so
  23. 0:58just going to a quick quick overview
  24. 1:00what we're going to talk about in the in
  25. 1:02the hour um that we have for the webinar
  26. 1:04so I am going to go through five months
  27. 1:06through health conditions endries will
  28. 1:08not be one of them um just because we
  29. 1:10are going to do a um kind of Silo
  30. 1:13presentation on that where it'll be
  31. 1:15endometriosis at work um that will
  32. 1:17happen in March during endometriosis
  33. 1:20Awareness Month um so do tap into that
  34. 1:22but obviously if you do have any
  35. 1:23questions um around Endo at work do um
  36. 1:27pop it into the Q&A um chat and I can
  37. 1:29answer to that all at the end um so I
  38. 1:32will go through five mental health
  39. 1:33conditions I'll talk a little bit about
  40. 1:35mental health at work the impact at work
  41. 1:38um and then the last um 10 to 15 minutes
  42. 1:42I will also talk about best practice
  43. 1:45example suggestions um and way in which
  44. 1:48you know colleagues can support their
  45. 1:51their colleagues as
  46. 1:53well so uh mental health conditions um
  47. 1:57so these are the conditions I'll be just
  48. 1:59quickly running through today so I'll
  49. 2:02start off with polycystic ovary syndrome
  50. 2:04premenstrual dysphoric disorder
  51. 2:07adenomiosis fibroids and heavy menstrual
  52. 2:10bleeding so we're going to start with
  53. 2:12polycystic ovary syndrome also known as
  54. 2:15PCOS um so PCOS is a chronic lifelong
  55. 2:19condition affecting one in every eight
  56. 2:21women in the UK it is is is a common
  57. 2:24condition that affects how a woman
  58. 2:26woman's ovaries
  59. 2:27work um common symptoms of pdos include
  60. 2:31irregular periods or a complete lack of
  61. 2:34periods um irregular ovulation or no
  62. 2:38ovulation at all and this can lead to
  63. 2:40subfertility um unwanted facial or body
  64. 2:43hair oily skin acne uh thinning hair or
  65. 2:48complete hair loss um from the
  66. 2:51scalp um and weight problems so this
  67. 2:54could be being overweight you could
  68. 2:56experience rapid weight gain um but also
  69. 3:00difficulty losing weight as
  70. 3:02well PC affects women in different ways
  71. 3:05so not everyone would have all these
  72. 3:07symptoms um some may only have mild
  73. 3:09symptoms While others may have wider
  74. 3:12range of more severe symptoms um and
  75. 3:16just want to highlight the symptoms such
  76. 3:18as unwanted facial or body hair the oily
  77. 3:21skin acne Etc the thinning of hair and
  78. 3:24the weight problems you may sit here and
  79. 3:26think you know how does that impact
  80. 3:28someone at work it you know it does it
  81. 3:30can knock their confidence um you know
  82. 3:33their mental capacity and their mental
  83. 3:35well-being it can have an impact on and
  84. 3:37therefore it would also have an impact
  85. 3:39on their work um for example if you know
  86. 3:42they have to do a lot of Frontline
  87. 3:44delivery or if they have um to do a lot
  88. 3:47of talks in front of people or
  89. 3:49communicate a lot of their work around
  90. 3:51people and be kind of in the Forefront
  91. 3:53they may not feel comfortable they might
  92. 3:55lack a bit of confidence um if they feel
  93. 3:58that you know they have severe acne
  94. 4:01because of their PCOS or if they have
  95. 4:02oily skin or if they you know losing
  96. 4:04their hair they may not feel comfortable
  97. 4:06in their body um so it's just also being
  98. 4:08really mindful around those symptoms as
  99. 4:10well because you might think that it's
  100. 4:12not directly linked to the womb because
  101. 4:15you know I think people think about
  102. 4:16menal health conditions and it being
  103. 4:17kind of part of reproductive um system
  104. 4:20but you know there are other um there
  105. 4:23are other things that do amp amplify uh
  106. 4:26the conditions there are other symptoms
  107. 4:28as well that you must keep keep in mind
  108. 4:30as employers and I think that's really
  109. 4:31important to
  110. 4:33highlight uh the diagnosis of PCOS is
  111. 4:35done via a blood test um which can be
  112. 4:38arranged by your GP um and some
  113. 4:40individuals may also need follow-up
  114. 4:42appointments as well so be really
  115. 4:43mindful of allowing your staff um to go
  116. 4:46to these doctor's appointments and if
  117. 4:48you are here today as an employee don't
  118. 4:50be afraid to ask for your doctor's
  119. 4:52appointments um or just let your
  120. 4:54employers know that you know you're will
  121. 4:55needed to step away from the screen or
  122. 4:57you know this is something really
  123. 4:58important you're trying to be diagnosed
  124. 5:00condition and you must attend this
  125. 5:01doctor's appointment I will highlight
  126. 5:03the importance of appointments um and
  127. 5:07you know navigating your work around
  128. 5:09that um later on as well the treatment
  129. 5:12of PCOS um is tailored to each
  130. 5:14individual so as a symptoms May differ
  131. 5:17the the treatment will also
  132. 5:19differ um and they may include
  133. 5:21medication to regulate periods and
  134. 5:23improve
  135. 5:24ovulation um and I just want to
  136. 5:26highlight so some of the work that we do
  137. 5:28with or around PCOS we work very closely
  138. 5:30with a charity called Verity so if you
  139. 5:33are here today and you want further
  140. 5:35information on PCOS or you want um you
  141. 5:38know resources takeway if you go on to
  142. 5:40the Verity's website there are tons of
  143. 5:42information there's tons of resources
  144. 5:44that you can access and you can take
  145. 5:46away from that as well I will also again
  146. 5:48there's a slide at the end that covers
  147. 5:50all the resources so I will reiterate
  148. 5:52that again as
  149. 5:54well up next I'm going to talk a little
  150. 5:57bit about Prem menal dysphoric disorder
  151. 6:00also known as pmdd so premenstrual
  152. 6:03dysphoric disorder is a cyclical
  153. 6:05hormone-based mood disorder um symptoms
  154. 6:08arise during the premenstrual Lal phase
  155. 6:11of the menstrual cycle and last until
  156. 6:13around the time the period starts each
  157. 6:14month this will happen every menstrual
  158. 6:17cycle when ovulation occurs it is
  159. 6:19commonly still misdiagnosed as bipolar
  160. 6:22disorder or written off as just a bad
  161. 6:25PMS um
  162. 6:28so some of the kind of I guess symptoms
  163. 6:31someone with pmdd will experience are
  164. 6:33mood or emotional changes and this could
  165. 6:35be mood swings feeling suddenly sad or
  166. 6:37tearful or increased sensitivity to
  167. 6:40rejection um they may also experience
  168. 6:42irritability anger or increased
  169. 6:45interpersonal conflict um they will
  170. 6:47experience depressed moods feelings of
  171. 6:49hopelessness feeling worthless or guilty
  172. 6:52and they will also probably experience
  173. 6:53anxiety tension or feelings of being
  174. 6:55keyed up or an
  175. 6:56edge a diagnosis of pmdd it's a little
  176. 7:00bit trickier um but you must
  177. 7:04um it requires a presence of at least
  178. 7:07five of the symptoms I've just mentioned
  179. 7:11um because these are the core emotional
  180. 7:14symptoms associated with
  181. 7:16pmdd um the only way to currently be
  182. 7:19diagnosed with pmdd is tracking your
  183. 7:22symptoms on a daily basis for at least
  184. 7:24two menstrual cycles um and then from
  185. 7:27that once you tracked it make a note of
  186. 7:30them make a note of how you're feeling
  187. 7:32um when you're feeling it Etc um and you
  188. 7:35can do this through you know there's of
  189. 7:37apps scors of period apps that you can
  190. 7:38track or you know notepad and Pen as
  191. 7:41long as you're tracking it you can go to
  192. 7:42your GP you can showcase um you know the
  193. 7:46different symptoms that you've
  194. 7:47experienced in the last two period
  195. 7:49Cycles um and just want to also again
  196. 7:52here highlight that we do a lot of work
  197. 7:54with um the International Association
  198. 7:56for premal dysphoric disorder um and if
  199. 7:59you go on to their website again loads
  200. 8:00of resources but they also have a kind
  201. 8:03of um pmdd Checker so you can um answer
  202. 8:06a few questions um and at the end of it
  203. 8:09it can kind it won't obviously give you
  204. 8:11a diagnosis but it will start to give
  205. 8:13you um a kind of Pathway to a diagnosis
  206. 8:18so definitely check that out if you
  207. 8:19haven't done so and if you do think that
  208. 8:21you know you might you feel you're here
  209. 8:23today that you might have um symptoms of
  210. 8:27pmdd I would highly recommend tapping
  211. 8:30into the International Association for
  212. 8:32Prem menstral dysphoric disorders
  213. 8:35website again we'll link it in at the
  214. 8:37end
  215. 8:39um so going to move on from P pmdd
  216. 8:43to the next side which is adenomiosis
  217. 8:47now adenomiosis occurs when the tissue
  218. 8:50that normally lines the uterus grows
  219. 8:52into the muscular wall of the uterus now
  220. 8:55on the right hand side you can see three
  221. 8:57different images so you have focal you
  222. 8:59have adenomyoma and you have diffuse so
  223. 9:02all um all within the line of the uterus
  224. 9:06but in terms of the adenomiosis it's
  225. 9:09they're kind of different so the focal
  226. 9:10is quite again very um explanatory there
  227. 9:14it's focal um it's in one place you then
  228. 9:17have an adenoma it's a lot larger um it
  229. 9:21kind of obviously that can you see it's
  230. 9:23kind of coming out of the muscular wall
  231. 9:24as well and then on the last image you
  232. 9:26have diffuse so you have you have um
  233. 9:29adenomiosis in different sections and in
  234. 9:31different areas um but still within the
  235. 9:34muscular wall of the
  236. 9:36uterus um symptoms of
  237. 9:39adenomiosis um are painful menstrual
  238. 9:42cramps uh heavy menstrual bleeding
  239. 9:45abnormal
  240. 9:46menstruation pelvic pain painful
  241. 9:50intercourse an enlarged uterus bloating
  242. 9:54and pain related to bowel
  243. 9:56movement um I have read that list out
  244. 9:59and some of you might be here today
  245. 10:01thinking there's very um common uh
  246. 10:05symptoms in terms of it overlaps with
  247. 10:07stuff like endometriosis or fibroid
  248. 10:09unfortunately that is the case and that
  249. 10:11kind of does also lead to um the
  250. 10:13difficulty in diagnosis because there
  251. 10:14such an overlap um again as an employer
  252. 10:18to understand that it's quite difficult
  253. 10:21to be diagnosed because of the of all
  254. 10:22the overlaps it's you know being really
  255. 10:26mindful that an individual's journey of
  256. 10:27a diagnosis will take time time um just
  257. 10:30because of the way you know the tests
  258. 10:33and the diagnosis systems are set up um
  259. 10:36so if you do have a straff member or an
  260. 10:38individual who is going through a
  261. 10:39diagnosis be really mindful be kind
  262. 10:42being compassionate because they are
  263. 10:43going through something in their life
  264. 10:45where they just want an answer but it is
  265. 10:47taking a long time where they know they
  266. 10:49have something that isn't right you know
  267. 10:52their menstrual cycle isn't normal and
  268. 10:54it is impacting their day-to-day life so
  269. 10:56again just being really open-minded and
  270. 10:58being mindful of their Journey as well
  271. 11:00through the diagnosis it's not just
  272. 11:02they've got the condition and that's
  273. 11:03that there is a lot of pre-work to be
  274. 11:05done as well in terms of a diagnosis of
  275. 11:09adenomiosis um you can have a pelvic
  276. 11:12exam um so during a pelvic exam um your
  277. 11:15provider May notice that your uterus has
  278. 11:17gotten larger softer or is painful to
  279. 11:20touch uh you may be then offered an
  280. 11:22ultrasound and this is a transversional
  281. 11:25ultrasound which uses like a wave um
  282. 11:27sound waves to produce images of your
  283. 11:29pelvic organs um and these images can
  284. 11:32also show the thickening of your your
  285. 11:33uterine your uterine wall um and then
  286. 11:37also you might have um MRI scans and
  287. 11:40these can show the uterine enlarged and
  288. 11:43the thickening of areas in your uterus
  289. 11:45as
  290. 11:46well in terms of treating and managing
  291. 11:48um
  292. 11:49adenomiosis um the treatments can ease
  293. 11:52pain and help the bleeding the heavy
  294. 11:54menual bleeding um so in some of the
  295. 11:58ways we can combat this this is um
  296. 12:00through pain medication or hormonal
  297. 12:02medications so when I mean pain
  298. 12:04medications I mean anti-inflammatory
  299. 12:06drugs such as ibuprofen or nioxin and
  300. 12:09hormonal medications such as the
  301. 12:11contraceptive pill um and any other
  302. 12:14hormonal medications around that as well
  303. 12:16but this is a conversation that you
  304. 12:17should be having with your specialist
  305. 12:19nurse or your GP to better suit the need
  306. 12:22the treatment needs for um what you need
  307. 12:25treating and finally um you can have um
  308. 12:30non hormonal treatments as well um and
  309. 12:33that is stuff like transic acid which
  310. 12:36can reduce the amount of heavy menstrual
  311. 12:38bleeding the final treatment with
  312. 12:40adenomiosis um and again this is one
  313. 12:43that I would highlight you have a very
  314. 12:45indepth conversation with you know your
  315. 12:47loved ones with your family your
  316. 12:49partners um but also a very in-depth
  317. 12:52conversation with your your doctor and
  318. 12:54your uh specialist nurse um because
  319. 12:57there is a treatment um there a surgery
  320. 12:59that can remove obviously a uterus
  321. 13:02hysterctomy um which obviously will
  322. 13:06remove the adenomiosis because it's
  323. 13:07within and it's contained within the
  324. 13:09wall the muscular wall of the uterus but
  325. 13:12obviously this would mean you're not
  326. 13:14having a menstrual cycle and obviously
  327. 13:16meaning that you will not be able to get
  328. 13:17pregnant so it is a it is a treatment
  329. 13:20option but is a treatment option that
  330. 13:22you must um have an in-depth
  331. 13:24conversation about with everyone kind of
  332. 13:26around you and people within your
  333. 13:28support system
  334. 13:29um so just wanted to highlight
  335. 13:32that up next I want to talk a little bit
  336. 13:35about fibroids um so fibroids are the
  337. 13:38most common gynecological Condition it's
  338. 13:41closely followed by endometriosis in
  339. 13:43second place fibroids are non-cancerous
  340. 13:45growth and are found in or around the
  341. 13:48womb the exact cause of fibroids is not
  342. 13:51fully understood but we do know that
  343. 13:52there is a link to estrogen uh fibroids
  344. 13:55are more common from puberty up until
  345. 13:57menopause as this is when estrogen
  346. 13:59levels are high on the right hand side
  347. 14:01you can see four different types of
  348. 14:03fibroids so on the top right you have
  349. 14:05sub mucosal fibroids um underneath that
  350. 14:08you have an image showing pendulate
  351. 14:11fibroids um just kind of going clockwise
  352. 14:14anticlockwise you clockwise sorry uh you
  353. 14:16have subserosal fibroids and then
  354. 14:18finally you have intramural fibroids um
  355. 14:21the symptoms of fibroids are or can be
  356. 14:25heavy periods prolonged periods they're
  357. 14:27bleeding that last a long time time
  358. 14:30painful periods swelling in your tummy
  359. 14:33pain or pressure in your pelvis or lower
  360. 14:35back pain with sex um constipation
  361. 14:39needing to pee more often and also
  362. 14:42difficulty getting pregnant in terms of
  363. 14:44a diagnosis of fibroids um you would
  364. 14:47first go and speak to your GP your GP
  365. 14:50may suggest that you have some paric
  366. 14:51exams and depending on your results they
  367. 14:54may refer you to a
  368. 14:56gynecologist a gynecologist will then
  369. 14:58run some further the test and these may
  370. 15:00include um a blood test to check um if
  371. 15:03you if you have anemia you will then um
  372. 15:06also be offered a an ultrasound and you
  373. 15:08might have two ultrasounds you might
  374. 15:10have um the one that looks at your womb
  375. 15:12and your ovaries through your tummy
  376. 15:13using a probe and the other one would be
  377. 15:15a vaginal
  378. 15:16scan um you can also have a hysteroscopy
  379. 15:21so this a procedure that go looks inside
  380. 15:23your womb uh using a narrow tube like
  381. 15:26telescope with a camera um and during
  382. 15:28this if they do find small um fibroid
  383. 15:32they can also remove them and if they do
  384. 15:34have this if you do have this treatment
  385. 15:36they may also um take a bioy as well at
  386. 15:39the same time um and finally again you
  387. 15:42may be offered an MRI um scan as well in
  388. 15:45terms of treatment there are several
  389. 15:48treatments to fibroids um but again the
  390. 15:51treatment will depend on the individual
  391. 15:54um and the individual symptoms um
  392. 15:58because we are trying to impact
  393. 16:00obviously your daily life um so you want
  394. 16:02the best for an individual so they can
  395. 16:04continue to live a good quality of life
  396. 16:08um and also there will be an impact in
  397. 16:10regards to if there's conversation
  398. 16:11around having children as well so all
  399. 16:13these kind of factors will take into
  400. 16:15your treatment option um and there's two
  401. 16:17different types of treatment options so
  402. 16:19you can have medicine so painkillers you
  403. 16:21can reduce heavy menual bleeding you can
  404. 16:24also take medication that can shrink
  405. 16:25fibroids as well um but then also there
  406. 16:28is other treatment such as surgery so
  407. 16:30you can remove the
  408. 16:31fibroids um you can have a trans
  409. 16:34cervical reection an endometrioid
  410. 16:36endometrial um ablation and many more
  411. 16:39surgeries as well but again these are
  412. 16:41the conversations that you need to be
  413. 16:42having with your specialist nurse and
  414. 16:44you know put in a lot of research into
  415. 16:45into which kind of pathway you want to
  416. 16:47go
  417. 16:50to and up next I just want to touch Bas
  418. 16:52on heavy mental bleeding um heavy
  419. 16:55periods again are normal um and are
  420. 16:58common um and you may just be an
  421. 17:00individual that does experience heavy
  422. 17:01meal bleeding um but you may experience
  423. 17:05you know in terms of the condition you
  424. 17:06may have heavy periods if you need to
  425. 17:10change your pad or t point every 1 to
  426. 17:11two hours or empty your menstrual cup
  427. 17:13more than often then is recommended you
  428. 17:16might need to use two types of period
  429. 17:17product together such as a pad and a
  430. 17:19tampon um you may have periods that last
  431. 17:22more than 7even days uh you may pass
  432. 17:25blood clots larger than 2.5 cm and
  433. 17:28that's a size a Tempe coin um you might
  434. 17:31bleed through your clothes or your bed
  435. 17:32in um you may experience heavy tional
  436. 17:36bleeding where it's impacting again your
  437. 17:37day-to-day activities like exercise or
  438. 17:39you're having to take time off work
  439. 17:41because of your period and you may also
  440. 17:43feel tired or short of breath a lot and
  441. 17:46in terms of the causes of heavy menure
  442. 17:48bleeding um as I mentioned it is common
  443. 17:51but there can be some causes such as
  444. 17:52conditions affecting your womb your
  445. 17:54ovaries or hormones so all the
  446. 17:56conditions that I've just previously
  447. 17:57mentioned um you might be on some
  448. 17:59medication and treatments we have
  449. 18:01obviously found that um you know
  450. 18:03individuals who might be going through
  451. 18:05um treatments such as chemotherapy may
  452. 18:08experience heavy menual bleeding um
  453. 18:11stress and depression can also cause
  454. 18:13heavy menal bleeding so just you know
  455. 18:15kind of just reassessing um you know
  456. 18:17life situations Etc and just kind of
  457. 18:19reflecting on you know your stresses um
  458. 18:23but also very rarely is this the case um
  459. 18:25heavy periods can also be a sign of
  460. 18:27wound cancer so just make sure you're
  461. 18:29regularly going for checkups Etc um but
  462. 18:32that is quite rare in terms of treatment
  463. 18:35um they don't always need to be treated
  464. 18:38um but there are treatments that can
  465. 18:40help if you if it is impacting your
  466. 18:42day-to-day life um and this will be
  467. 18:44treatments that you can access through
  468. 18:46your GP so it can be types of
  469. 18:48contraception such as a combined
  470. 18:50contraceptive pill um medicine to help
  471. 18:53reduce the bleeding as I mentioned
  472. 18:54earlier tranexamic acid can reduce heavy
  473. 18:56menal bleeding
  474. 18:58you can also be given anti-inflammatory
  475. 19:00painkillers such as methanic acid or
  476. 19:03noroxin or
  477. 19:05ibuprofin um you should request a blood
  478. 19:08test as well just to check your iron
  479. 19:11deficiency um and if these treatments do
  480. 19:14not work um do go back to your GP um and
  481. 19:17they will refer you to do um more tests
  482. 19:20with a
  483. 19:22specialist um just before I move on
  484. 19:24because we are going to move on to a
  485. 19:25little bit more about you know more
  486. 19:27workplace scenarios situations I know
  487. 19:30obviously it was kind of a whirlwind um
  488. 19:32and if you do want to obviously have
  489. 19:33questions do pop them into the chat and
  490. 19:35I will get to them um I know it's quite
  491. 19:38that first couple of size were quite
  492. 19:40medically heavy in terms of explaining
  493. 19:42the condition Etc and the reason why I
  494. 19:44want to explain the condition along with
  495. 19:46the symptoms and the treatment options
  496. 19:47because if you are here today as an
  497. 19:49employer it's again being really mindful
  498. 19:52of you know all the different obstacles
  499. 19:53an individual has to go through to even
  500. 19:56get a diagnosis but when they do have a
  501. 19:57diagnosis to understand that treatment
  502. 20:00options are so different from you know
  503. 20:02each other for every individual some
  504. 20:04treatment options may not work for the
  505. 20:06individual so they might have to
  506. 20:07continue trying different treatment
  507. 20:09options um so again it's a whole you
  508. 20:12know Whirlwind of finding out the
  509. 20:15condition and then and then kind of
  510. 20:16treating the condition and managing your
  511. 20:18life um so you know as employees I can
  512. 20:21totally understand it be so difficult
  513. 20:24through your journey trying to figure
  514. 20:25this out but also manage you know your
  515. 20:27life your personal life life work
  516. 20:29commitments Etc um but as employers you
  517. 20:32know again be really mindful have a have
  518. 20:34a culture of openness and have a culture
  519. 20:37of um you know where Staff feel
  520. 20:39confident and comfortable coming to you
  521. 20:41to be able to ask questions or let you
  522. 20:43know what they're going through so
  523. 20:46that's going to segue quite nicely into
  524. 20:48the next bit uh which I'll talk a little
  525. 20:50bit about workplace um mental he in the
  526. 20:53workplace and supporting your colleagues
  527. 20:55so one thing I ask is I ask employees to
  528. 20:59consider consider a few following things
  529. 21:01and I also ask employers to consider a
  530. 21:03few things so I'll start with the
  531. 21:04employees so with the employees share
  532. 21:07information as I mentioned earlier share
  533. 21:09what you're going through share you know
  534. 21:11how it's impacting you share what your
  535. 21:14condition is what it means um how it
  536. 21:17impacts you how it affects you and
  537. 21:19continue discussing treatment options um
  538. 21:22and kind of you know if you are
  539. 21:23comfortable with an individual with your
  540. 21:24manager with your supervisor kind of
  541. 21:26where you are in your treatment option
  542. 21:28because again that would be quite um
  543. 21:31empowering for each for you both to
  544. 21:34understand but be able to at least map
  545. 21:36how your employer can support you um and
  546. 21:40just continue explaining what you're
  547. 21:41experiencing and how it affects you like
  548. 21:44I mentioned every condition will impact
  549. 21:46an individual differently so if you
  550. 21:48continue to explain how it's impacting
  551. 21:51you um that will really go a long way
  552. 21:54seek advice and support so you have you
  553. 21:56know you might have your HR team uh tap
  554. 21:59into the NHS website which has great
  555. 22:01resources um endometriosis UK we have an
  556. 22:04area on our website um that's called
  557. 22:06useful links um and we have a range of
  558. 22:09different um resources on there not just
  559. 22:12not just specifically on and Demetrios
  560. 22:14but other other areas of work as well
  561. 22:17and also create your own support network
  562. 22:19and this could either be in work or
  563. 22:21outside of work as
  564. 22:23well um be mindful of not assuming or
  565. 22:26expecting an employer to make reasonable
  566. 22:28adjustments automatically it might take
  567. 22:30a while so be open-minded about your
  568. 22:32working arrange Arrangements but if they
  569. 22:35stop working please do say so please let
  570. 22:38your employers know if you get to a
  571. 22:41point um in your reasonable you know
  572. 22:43you've made some reasonable adjustments
  573. 22:44but they're no longer working for you do
  574. 22:46speak up do let them know um just so you
  575. 22:49can work together and just create a
  576. 22:51better working environment for you know
  577. 22:52yourself but or overall organizationally
  578. 22:55as well and try to understand the
  579. 22:58challenge also from your employes
  580. 22:59perspective and I would like to
  581. 23:01highlight this because there are there
  582. 23:02are job roles that are front line you
  583. 23:04know front and center that can be quite
  584. 23:07difficult to step away from if you're
  585. 23:08here today you know perhaps you work in
  586. 23:10a hospital or you're a nurse um you know
  587. 23:12it's quite it's it is a lot harder to
  588. 23:15ask or seek reasonable adjustments
  589. 23:17because you're so front line so you know
  590. 23:20be mindful of the challenges but don't
  591. 23:22shy away from still having these open
  592. 23:23conversations with your employer because
  593. 23:25I think if your employer even
  594. 23:27understands what going through and
  595. 23:30understand your condition again that
  596. 23:32goes a long way they may be able to or
  597. 23:34they may not be able to say sorry um you
  598. 23:37can work from home today in some cases
  599. 23:39you can't do that because of your job
  600. 23:41sake but even for your employer or your
  601. 23:43manager to come to and be like I know
  602. 23:45you're struggling today just let me know
  603. 23:46what I can pick up on or if you need
  604. 23:48some time away from your desk or if you
  605. 23:50need some time off your feet just let me
  606. 23:52know I can rework the rotor or I can
  607. 23:55step in so having those conversations I
  608. 23:57think I really important um and to
  609. 23:59continue having
  610. 24:01them and on the right hand side what I
  611. 24:03ask employers to consider is continue
  612. 24:06learning knowledge is power so if your
  613. 24:08staff is coming to you and sharing
  614. 24:10information ensure that you're soaking
  615. 24:12that information in that you're going
  616. 24:14off you're doing kind of your own
  617. 24:15research and I'm not saying you spend
  618. 24:17you know hours and hours on it you know
  619. 24:19just tap into it or just read the NHS
  620. 24:21website um just you know do a bit of
  621. 24:23learning yourself because knowledge will
  622. 24:24go a very long
  623. 24:26way how can you think about how your
  624. 24:28organization implements best practice
  625. 24:30are there things already in place if
  626. 24:33there are things already in place do
  627. 24:34your staff know about them um I've
  628. 24:37spoken to many you know many employeers
  629. 24:39where they have great policies in place
  630. 24:41great processes in place but many of the
  631. 24:42staff just don't know about it um so
  632. 24:44just make sure that you know you're
  633. 24:46cascading that um learning and that best
  634. 24:49practice among all your staff members
  635. 24:51and and and everyone knows um and also
  636. 24:54start thinking about areas that you can
  637. 24:55improve and when you start thinking
  638. 24:57about areas of improve Improvement uh
  639. 24:59think about the challenges that go um
  640. 25:01hand in hand with that as
  641. 25:03well so up next I'm going to talk a
  642. 25:06little bit about best practice and and
  643. 25:08actually suggest best practice um
  644. 25:10examples I've split this up into three
  645. 25:12different sections so I have policies
  646. 25:14and support uh I then have awareness and
  647. 25:17I then have practical considerations as
  648. 25:19well so we're going to start with
  649. 25:20policies and support are your policies
  650. 25:23and procedures supportive of those in
  651. 25:25mental health conditions have you
  652. 25:27checked your existence
  653. 25:28uh existing policies do they ensure
  654. 25:31those with mental health conditions or
  655. 25:32potentially cyclical symptoms are not
  656. 25:35disadvantaged that's really important um
  657. 25:38that you know everyone feels that they
  658. 25:40are supported um through their policies
  659. 25:42and procedures that work and that's a
  660. 25:44really good starting point as employers
  661. 25:45to make staff members feel heard and
  662. 25:48feel seen um one other thing that I
  663. 25:51think is is not much of a policy but I
  664. 25:53guess you know it might come under your
  665. 25:54processes is if an individual if a staff
  666. 25:57member is logging in a sick day say
  667. 26:00they're experiencing a really bad flare
  668. 26:02art because they have
  669. 26:04endometriosis um and they cannot
  670. 26:06physically work on that you know they
  671. 26:07physically cannot get to their screen or
  672. 26:09they can't get into work and they need
  673. 26:10to they need a sick day what options
  674. 26:13have you got on your drop down when they
  675. 26:15log in their sick day because I've
  676. 26:17spoken to many employers and they don't
  677. 26:19have an option and it can be something
  678. 26:21as simple as menal health you don't have
  679. 26:24to be very you know explicit in regards
  680. 26:26to which condition it is you you can
  681. 26:28just have it as a Topline menstrual
  682. 26:30Health you're off sick because of a
  683. 26:31menstrual health condition it will it's
  684. 26:33so empowering for an individual to be
  685. 26:35able to kind of tap into the you know
  686. 26:37the open the drop down see that they
  687. 26:39there's an option for them rather than
  688. 26:41putting it down as a migraine or
  689. 26:43diarrhea or vomiting because that's not
  690. 26:45associated with what they're feeling and
  691. 26:47what they're what they're signing in
  692. 26:48with or you know signing their sick day
  693. 26:50with again just being really you know
  694. 26:52inclusive open-minded and making people
  695. 26:55feel heard and listen to as well
  696. 26:58uh facilitate conversations about
  697. 27:00individual needs and see what the
  698. 27:01flexibility can be applied to help them
  699. 27:03Thrive at work I think I've mentioned
  700. 27:05earlier having open conversations and
  701. 27:07continuing to have these conversations
  702. 27:09is key I encourage staff members to feel
  703. 27:12they have a space space safe space and
  704. 27:14colleagues who understand their
  705. 27:16experiences uh think about appropriate
  706. 27:18training for line managers uh who create
  707. 27:21the supportive working environment can
  708. 27:23they have training in effective training
  709. 27:26in mental health um but also think about
  710. 27:28you know away from mental health they
  711. 27:31need to be able to have confident
  712. 27:33conversations so can they be training
  713. 27:35around just you know boosting confidence
  714. 27:38um conversations um training around that
  715. 27:41or training around having difficult
  716. 27:43conversations with staff members um or
  717. 27:46maybe you know leadership training Etc I
  718. 27:49think all this will really really
  719. 27:51enhance managerial skills to be able to
  720. 27:54have conversations but also enable staff
  721. 27:57m MERS and enable line managers to allow
  722. 28:00staff members to feel really comfortable
  723. 28:02when they're having these conversations
  724. 28:04because as a staff member to come to a
  725. 28:06manager it can be quite vulnerable to
  726. 28:08explain what the condition is it's not
  727. 28:10the most easiest of um conditions if you
  728. 28:13have a mental health condition to
  729. 28:14explain what you're feeling what you're
  730. 28:15going through if you're still trying to
  731. 28:17get a diagnosis Etc it is quite you know
  732. 28:20quite draining to continue also speaking
  733. 28:23about it as well um and having to
  734. 28:25explain every so often what it you know
  735. 28:27how it's impacting you um but if you if
  736. 28:30a line manager makes you feel kind of
  737. 28:32comfortable and just going back to the
  738. 28:34safe space it will be a lot easier so
  739. 28:37just to make sure that there's effective
  740. 28:38training in place for managers as well
  741. 28:40um chronic pain conditions also coincide
  742. 28:43with managing symptoms so just be really
  743. 28:46mindful that a lot of these mental
  744. 28:47health conditions um do come with
  745. 28:49chronic pain come as a chronic pain
  746. 28:51condition um health and wellbeing
  747. 28:53initiatives what do you currently have
  748. 28:55in place for health and wellbeing
  749. 28:58Network and again is it supporting those
  750. 29:01with menstral health conditions if not
  751. 29:03that's a really great place to start
  752. 29:05looking into to allow um staff members
  753. 29:08feel like they are
  754. 29:09supported occupational therapist and HR
  755. 29:12gu guidance do you have that in place if
  756. 29:14not is that something you can and if you
  757. 29:16do have that in place do your staff know
  758. 29:17about it um acknowledge that some staff
  759. 29:20might be suffering without being
  760. 29:22diagnosed again be supportive um and
  761. 29:25just be kind and compassionate overall
  762. 29:29awareness um sorry move this out the way
  763. 29:33awareness uh so raising awareness around
  764. 29:36mental health at work to help Staff feel
  765. 29:39supported do all managers know the
  766. 29:41difference in conditions and how they're
  767. 29:43impacting their staff um it can be
  768. 29:45incredibly supportive and empowering and
  769. 29:47such a real relief for an employee to
  770. 29:49say to their line manager or supervisor
  771. 29:52I have peace your and for them to hear
  772. 29:54back I know what that is let's have a
  773. 29:57conversation around around how it
  774. 29:58impacts you and how we can support you
  775. 30:00that whole scenario and situation within
  776. 30:03itself again it can be so supportive for
  777. 30:06an individual to step into a room and
  778. 30:09just feel from the offset that they're
  779. 30:11they're heard they're understood um and
  780. 30:13that they're receiving the support that
  781. 30:15they they need or they you know that
  782. 30:16they should have in a
  783. 30:18workplace um make sure there's more
  784. 30:21mental health information within the
  785. 30:22organization I know you know loads of
  786. 30:24organizations have like e portals or e e
  787. 30:27um online kind of
  788. 30:28tools where they can post information or
  789. 30:31perhaps just go through the old school
  790. 30:33kind of way having leaflets around the
  791. 30:35office the toilets the bathrooms Etc
  792. 30:37just spreading that information more and
  793. 30:39more within the organization and we'll
  794. 30:41really start to navigate these
  795. 30:43conversations that should be happening
  796. 30:44in the workplace think about mental
  797. 30:47health groups so advocating for Women's
  798. 30:49Health could you start you know a little
  799. 30:51group um coming together it could be
  800. 30:54once a month just discussing you know
  801. 30:56how they're feeling things you know
  802. 30:58because a lot of learning will happen
  803. 30:59from each other as well but it can be
  804. 31:01really good to have a group that
  805. 31:03advocates for Women's Health at work and
  806. 31:04it can be very empowering and you can
  807. 31:06learn a lot from it collaborate with
  808. 31:09mental health experts and
  809. 31:11organizations um so you know lunch and
  810. 31:13learn talks um and Demetrios as UK do
  811. 31:16lots of lunch and learns we can either
  812. 31:17do it online or we can come into you
  813. 31:19face to face there are other
  814. 31:21organizations and experts out there that
  815. 31:22can also offer the same things um just
  816. 31:25star to think about collaborating with
  817. 31:26them and this can happen during like
  818. 31:28awareness months for example so
  819. 31:30endometriosis awareness month is in
  820. 31:32March could you possibly do something
  821. 31:34during March to highlight that so take
  822. 31:36action in the workplace take part in
  823. 31:38fundraising challenges join employer
  824. 31:41schemes to show commitment to creating
  825. 31:42supportive
  826. 31:44workplaces um Foster a workplace culture
  827. 31:46that values and supports mental health
  828. 31:49as well discourage stigma surrounding
  829. 31:51mental health conditions and encourage
  830. 31:53open conversations now the reason why
  831. 31:55I've highlighted mental health there is
  832. 31:57menal health and mental health do go
  833. 32:00hand inand um if I highlight pmdd it is
  834. 32:05a mood disorder so understanding first
  835. 32:08and foremost understanding pmdd but also
  836. 32:11understanding that an individual's
  837. 32:13mental well-being is also very important
  838. 32:16again we'll work very well hand inand
  839. 32:18and having those conversations openly
  840. 32:20will be very advantages of an employer
  841. 32:23but also employee as
  842. 32:25well again going back to taking time to
  843. 32:28learn about conditions and don't use
  844. 32:30language such as oh they're PMSing again
  845. 32:34that is not the language you know you
  846. 32:35should be using in a workplace even if
  847. 32:37it is a bit of a joke or banter it's not
  848. 32:40nice for someone who has a condition and
  849. 32:42they're just being put down as their
  850. 32:43PMSing again it's a little bit more than
  851. 32:45just PMSing um it's not you know it's
  852. 32:48not the correct language that you should
  853. 32:49be using in your workplace um nor should
  854. 32:52you kind of be associating with you know
  855. 32:55something happening in the workplace if
  856. 32:56someone's not feeling great or not
  857. 32:57looking great um just putting it down to
  858. 32:59they on their period it's a little bit
  859. 33:01more than that um and just taking that
  860. 33:03time to learn about a condition can go a
  861. 33:05long
  862. 33:09way up next practical adjustments um
  863. 33:12this might not be for all um it can be
  864. 33:16quite different for everyone in terms of
  865. 33:18the employer you're setting where you're
  866. 33:20based um but just start thinking about
  867. 33:22someone with mental health conditions
  868. 33:23and for example if your office Bas you
  869. 33:25know do you have easy access to toilet
  870. 33:28um access to private spaces if an
  871. 33:30individual is experiencing pain um if
  872. 33:33you're a Workforce that requires to wear
  873. 33:35uniform consider having different sizes
  874. 33:38um and different options so for example
  875. 33:40someone with endometriosis may
  876. 33:42experience bloa in um as I mentioned
  877. 33:45earlier PCOS if someone has PCOS they
  878. 33:47may fluctuate in weight so do you offer
  879. 33:49multiple sizes to ensure sta feel
  880. 33:52comfortable um also offer darker colors
  881. 33:54for those experiencing heavy menal
  882. 33:56bleeding um just just a few things just
  883. 33:58to highlight that if you have got a
  884. 34:00uniform in place the difference you know
  885. 34:02just there are small small changes but
  886. 34:04it can impact an individual tremendously
  887. 34:07to feel more comfortable at
  888. 34:09work consider flexibility around working
  889. 34:13hours um this will benefit those who mon
  890. 34:15through health conditions and enable
  891. 34:16them to thrive at work and as I
  892. 34:19mentioned earlier about doctor's
  893. 34:20appointments some appointments have to
  894. 34:22be taken first and foremost doctor
  895. 34:25doctor's appointments are very rare to
  896. 34:26come by so if someone does come up um or
  897. 34:29does get a doctor's appointment do allow
  898. 34:31them to take them um and some
  899. 34:34appointments are synced with menstrual
  900. 34:36cycles and some may even need to be
  901. 34:39conducted at certain times in the month
  902. 34:40and even within the day so be as
  903. 34:44open-minded as you possibly can can um
  904. 34:46and just be really compassionate to
  905. 34:48understand that unfortunately this is
  906. 34:50kind of what needs to happen um they
  907. 34:53need to attend that doctor's appointment
  908. 34:54especially if they're trying to get a
  909. 34:56diagnosis
  910. 34:57um it's you know I can't highlight more
  911. 35:00like how important it is to allow them
  912. 35:03to be able to just relieve get relieve
  913. 35:05from the desk for half an hour go to the
  914. 35:06doctor's appointment do the tests that
  915. 35:08they need to be done and just you know
  916. 35:10hop back on um and also reassign work or
  917. 35:14duties again I know not everyone can do
  918. 35:16this but if you do know or if you know
  919. 35:18of a staff member who might be flaring
  920. 35:21or if you know some people can know when
  921. 35:24they're going to be experiencing a flare
  922. 35:25up or not be feeling very well so just
  923. 35:28having open conversations with your
  924. 35:29supervisor or your manager just to
  925. 35:31highlight that you know I may not be
  926. 35:33able to get to x y and Zed um I can get
  927. 35:36to it next week but for a manager to be
  928. 35:38like do you know what I can take that
  929. 35:39off you I'll focus on that today you can
  930. 35:41focus on this so just a few you know a
  931. 35:43few changes in the and reassigning work
  932. 35:46or duties can go again a very long way
  933. 35:48to support those mental health
  934. 35:50conditions um so just wanted to show you
  935. 35:53um a balanced scales um so at the top
  936. 35:56you have an individual that might have
  937. 35:57repeated absences because there isn't
  938. 35:59you know the support that they need or
  939. 36:01the the processes in place for them to
  940. 36:04be able to uh take time of work or just
  941. 36:06take a sick day or just step away from
  942. 36:09the screen without having to log it as a
  943. 36:10sick day um might obviously trickle into
  944. 36:13poor sta retention performance levels
  945. 36:16might drop a little bit um they might
  946. 36:18start to feel isolated but at the bottom
  947. 36:21if you have an organization or if you
  948. 36:23have an employer who has a culture of
  949. 36:25openness they are open to making
  950. 36:27adjustments and adaptations you have
  951. 36:30supportive line managers in place and
  952. 36:32you are you know signposting your staff
  953. 36:35and you know showing resources it can
  954. 36:38balance out and it can balance out so
  955. 36:41great that the staff member feels
  956. 36:44exactly where they need to be they're
  957. 36:45thriving at work they feel supported um
  958. 36:48they feel heard but also from an
  959. 36:50organization organizational point of
  960. 36:52view and in you know in regards to
  961. 36:54business needs it is balanced out and it
  962. 36:56can work it can work very well together
  963. 36:59if you have the bottom if you have that
  964. 37:02bottom bit of the scale happening it
  965. 37:04will definitely um benefit your employer
  966. 37:08your employee and overall business um
  967. 37:11business needs as
  968. 37:13well um just a few quotes um that I've
  969. 37:16you know I'd like to share from some of
  970. 37:18the work that I've been doing with um
  971. 37:20mental health at work um so the first
  972. 37:23one we've started Women's Health
  973. 37:24Initiative at work I can let you know
  974. 37:26that that has been actually been going
  975. 37:28really great um for this organization um
  976. 37:31and they are being listened to more so
  977. 37:33that's fantastic um suffering from under
  978. 37:35metriosis and not really knowing what I
  979. 37:37can and can't do it's good to see I can
  980. 37:39ask for some flexibility I feel
  981. 37:42empowered to speak to my manager about
  982. 37:44flexibility around my working hours and
  983. 37:46days I have a woman in the team who has
  984. 37:48endometriosis so it's helped me better
  985. 37:50understand the condition and how to best
  986. 37:52support her discussing menal half in the
  987. 37:55workplace with the same attitude that
  988. 37:56one would discuss a broken ankle has
  989. 37:59really helped to normalize words spread
  990. 38:01awareness and made me feel so supported
  991. 38:04as a result I've had to ask for support
  992. 38:07from my employer in relation to
  993. 38:08fertility fertility treatments access to
  994. 38:11toilets and flexibility regarding
  995. 38:12medical appointments again I can
  996. 38:14highlight that for this employee it has
  997. 38:16she has come away from this being very
  998. 38:18supported from her employers just
  999. 38:21because she highlighted the support that
  1000. 38:23she needs and finally they allow me to
  1001. 38:26go back to my home town and work from
  1002. 38:28there so I can be closer to F to my
  1003. 38:30family when I'm not doing well with my
  1004. 38:32mental health due to physical symptoms
  1005. 38:34of adenomiosis and
  1006. 38:38endometriosis um so people you need in
  1007. 38:41your support team and this might be in
  1008. 38:44work or outside of work but if you're
  1009. 38:46here today as someone who is looking to
  1010. 38:48support an individual who has a
  1011. 38:51condition these are the kind of things
  1012. 38:53that I would like you to kind of take
  1013. 38:54away from today as well so some someone
  1014. 38:57who celebrates your wins no matter how
  1015. 39:00big or small but also shows up during
  1016. 39:02the High Times someone who takes things
  1017. 39:04off your plate to make those days uh
  1018. 39:07hard days easier without being asked
  1019. 39:10someone who makes you feel seen
  1020. 39:12validated and normal someone who tries
  1021. 39:14to learn and understand through asking
  1022. 39:16and listening instead of making
  1023. 39:18assumptions someone who can someone who
  1024. 39:20asks how they can help I understand that
  1025. 39:23individual individuals with mental
  1026. 39:25health conditions have different
  1027. 39:26experiences is someone who checks in
  1028. 39:29from time to time people with mental
  1029. 39:31health conditions often struggle
  1030. 39:33maintaining the energy levels and
  1031. 39:34attending social Gatherings so you know
  1032. 39:37checking in from time to time will again
  1033. 39:39feel um for the individual that they are
  1034. 39:41very supported um and they're not kind
  1035. 39:43of feeling isolated or left out and
  1036. 39:46finally someone who does not judge you
  1037. 39:48um mental health conditions overall are
  1038. 39:50complex and it's challenging for
  1039. 39:53individuals to predict when they
  1040. 39:54experience a flare up or pain or energy
  1041. 39:57flu situation so again don't judge be
  1042. 40:00mindful be kind and be
  1043. 40:03compassionate so I just want to
  1044. 40:05highlight some of the resources that I
  1045. 40:06spoke about earlier um so PCOS you have
  1046. 40:09Verity um who do great work with
  1047. 40:11supporting individuals with polycystic
  1048. 40:13ovary syndrome um you have the
  1049. 40:16International Association for Prem menal
  1050. 40:18dispor disorder pmdd um again tons of
  1051. 40:22stuff that they're doing um adenomiosis
  1052. 40:25um currently there isn't a charity that
  1053. 40:27focuses solely on osis um but there is a
  1054. 40:31an individual that we work very closely
  1055. 40:33with um the adino gang um she does Tanya
  1056. 40:36does great work around supporting those
  1057. 40:38of
  1058. 40:39adenomiosis I can also just highlight
  1059. 40:41that you know endometriosis will be
  1060. 40:43looking into adenomiosis as well a
  1061. 40:44little bit more deeper and we do have a
  1062. 40:46few things already on our website so you
  1063. 40:48can also tap into that as well um
  1064. 40:50fibroids NHS have great um a great kind
  1065. 40:54of resources pool on the NHS website as
  1066. 40:56well as heavy menal bleeding to do have
  1067. 40:58a look on that as well um and again I
  1068. 41:01mentioned earlier around the other
  1069. 41:03useful links are on our website so do
  1070. 41:05have a look through that as well if you
  1071. 41:07if you need support um and if you need
  1072. 41:09further you know guidance or support or
  1073. 41:12you just like to email a few other
  1074. 41:13questions that might come up um do
  1075. 41:16contact me I know I sent an email to you
  1076. 41:18all today um but you can also email
  1077. 41:21employees at endometriosis
  1078. 41:25d.org um you can also email them as well
  1079. 41:28and the correct staff will pick up the
  1080. 41:31questions or the guidance that you may
  1081. 41:33may need

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