Jonah Care Team Video — Transcript

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1. 0:03You really want to be a part of his
2. 0:04success story. And it just really
3. 0:07rejuvenates and inspires all of us. I'm
4. 0:09Jeff Shilt, I'm a pediatric orthopedic
5. 0:11surgeon and the president of Texas
6. 0:12Children's in Austin. So, the care that
7. 0:14we're bringing to Austin is elevating
8. 0:16the care for kids with cerebral palsy
9. 0:18and other conditions that require really
10. 0:21complex multi-disciplinary care. Meeting
11. 0:24Jonah for the first time, I knew that he
12. 0:25was really struggling with a lot of
13. 0:27musculoskeletal impairments. And so,
14. 0:29what we really do is focus on having
15. 0:33multi-specialists come together and then
16. 0:36decide on the treatment we provide them.
17. 0:38So, I met Jonah back in 2023.
18. 0:41Dr. Shilt and our PM&R team had started
19. 0:45this multi-disciplinary spasticity
20. 0:47clinic. And Jonah was one of those
21. 0:49patients that I met through that clinic.
22. 0:52I'm Dr. Debshau Patel. I'm a pediatric
23. 0:54neurosurgeon and I'm also medical
24. 0:56director for neurosurgery at Texas
25. 0:58Children's Hospital in Austin. We came
26. 1:01up with a plan that included
27. 1:03neurosurgery, PM&R, and orthopedic
28. 1:06surgery as well as rehabilitation.
29. 1:09So, Jonah's procedure from neurosurgery
30. 1:11side was focal selective dorsal
31. 1:14rhizotomy.
32. 1:16This procedure is not available at all
33. 1:18the hospitals in the United States. And
34. 1:21I'm able to do this because I'm at Texas
35. 1:24Children's Hospital. It's one of the
36. 1:25pioneering hospitals in this procedure.
37. 1:28For Jonah, this shows how much research
38. 1:31has come to help patients in their
39. 1:35outcomes. I think research is synonymous
40. 1:37with
41. 1:39neuro surgery and Texas Children's
42. 1:40Hospital. Because in order to do the
43. 1:43best for children, you have to know
44. 1:46what's out there.
45. 1:48Jonah had a really complex
46. 1:50musculoskeletal set of deficiencies
47. 1:53in essence because of his underlying
48. 1:56medical disorders. And so, what we were
49. 1:58able to do is go back and realign all
50. 2:01these different bones and joints to
51. 2:03transform and and impact his life in
52. 2:05such a positive fashion. We're always
53. 2:07grateful that the families here in
54. 2:09Austin come to us and entrust their
55. 2:11care. And the reality is if you're the
56. 2:13best in Texas, you're the best anywhere
57. 2:15in the country, maybe in the world.
58. 2:18We all think about this a lot. Like,
59. 2:20what brings you to the top, right? I
60. 2:23think we are able to coordinate a very
61. 2:28comprehensive and collaborative plan
62. 2:30that's very particular for each child.
63. 2:33I'm thankful for so many people here. I
64. 2:36don't think anything can replace
65. 2:40what Texas Children's Hospital provides.
66. 2:42I am so grateful for our patients, our
67. 2:46staff, faculty, and our system. Um we're
68. 2:50all here just to elevate the care. It's
69. 2:52truly an honor to be part of that, and I
70. 2:54couldn't be more grateful to
71. 2:56wake up every day and be part of this
72. 2:57team.