大人になるまで気づかない・・“見えない障害” 「大人の発達障害」CBCドキュメンタリー — Transcript

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1. 0:03I can't concentrate when there are too
2. 0:04many sounds at once, so when I'm out in
3. 0:06the city, I wear earphones. Eyes. An
4. 0:24invisible disability. I had no friends,
5. 0:29couldn't hold a job, and kept switching
6. 0:30careers, wondering if there was
7. 0:32something wrong with me.
8. 0:36The reason for the struggle I'd carried
9. 0:38for so long. There are people who
10. 0:42learned they have a developmental
11. 0:43disability only as adults.
12. 0:49This is Mr. Shirahama, who lives in
13. 0:51Nagoya. He is 31. Three
14. 0:55years ago, he was diagnosed
15. 0:58with autism spectrum disorder, a type
16. 1:00of developmental disability.
17. 1:04Autism spectrum disorder, also known as
18. 1:07Asperger's syndrome, is characterized
19. 1:08by difficulties in communicating with
20. 1:10others.
21. 1:14But as I covered his day,
22. 1:18It feels like you're talking and
23. 1:19communicating just fine, though.
24. 1:21Yeah. That's right. Well, yeah. It's
25. 1:25fine for short interactions, but when
26. 1:27it comes to long-term relationships or
27. 1:29work, misunderstandings and assumptions
28. 1:31start to happen over time.
29. 1:35That disability isn't easy to see.
30. 1:40Mr. Shirahama had no particular trouble
31. 1:42with schoolwork, but he says many
32. 1:44difficulties awaited him after he
33. 1:46graduated from vocational school and
34. 1:47started working. I'd think something
35. 1:54should be done a certain way, but it
36. 1:56would turn out to be different from
37. 1:57what my boss or others expected,
38. 1:59leading to conflicts. I tried to be
39. 2:05careful, but I kept repeating the same
40. 2:07patterns, failing at work, getting the
41. 2:09same warnings, and eventually feeling
42. 2:11like I didn't belong, so I'd quit.
43. 2:16Unable to read the room. Unable to
44. 2:18grasp how others feel. Misunderstood by
45. 2:23those around him, Mr. Shirahama kept
46. 2:25making mistakes at work and has changed
47. 2:27jobs five times. He is currently
48. 2:31continuing his job search, considering
49. 2:33roles specifically for people with
50. 2:35disabilities. It made sense to me;
51. 2:43realizing that the isolation and the
52. 2:45struggles I felt were actually
53. 2:47characteristics of my disability gave
54. 2:49me clarity.
55. 2:54What saved Mr. Shirahama was talking
56. 2:56with others in similar situations.
57. 3:00Oh, right.
58. 3:01Many people like us actually enjoy
59. 3:03working. Uh, w-what, like wanting to
60. 3:06help others? Oh.
61. 3:08People are, like...
62. 3:11Hinata Mizuki holds gatherings in
63. 3:12Nagoya to support people with
64. 3:14developmental disabilities.
65. 3:18She says the number of people diagnosed
66. 3:21with developmental disabilities as
67. 3:22adults, like Mr. Shirahama, has been
68. 3:24increasing recently. It seems children
69. 3:31born around 1993 can be identified
70. 3:33through childhood screenings. But those
71. 3:38born earlier didn't have that; they
72. 3:40didn't know. They struggled in school
73. 3:45but managed if they could study, then
74. 3:47started hitting walls once they had to
75. 3:49multitask as working adults. Nanami
76. 3:55Okada, 32, who attended the gathering
77. 3:57that day.
78. 4:02At 20, I was diagnosed with ADHD, the
79. 4:04inattentive type. You know, forgetting
80. 4:10things, not being able to keep time, or
81. 4:12being unable to tidy up. ADHD is
82. 4:18characterized by a short attention span
83. 4:20and difficulty focusing on anything
84. 4:22other than one's own interests.
85. 4:28When I was a student, I was just seen
86. 4:30as a bit eccentric or clumsy. It wasn't
87. 4:37until I had to live by society's rules
88. 4:39that I first stumbled, was told I was
89. 4:41doing things wrong, and went to the
90. 4:42doctor. Hello.
91. 4:50Hello.
92. 4:51I visited her home in Nagoya.
93. 4:54The camera's here!
94. 4:58Okada lives with her husband and their
95. 5:00five-year-old and three-year-old
96. 5:01children. Taking a look at her daily
97. 5:05life:
98. 5:13It is her husband, Shuichi, who cleans
99. 5:15up the toys the children scatter.
100. 5:21Because I can't tidy up, things I take
101. 5:24out stay exactly where they are for a
102. 5:26day or two. So, yeah, it happens.
103. 5:35Preparing the daily meals is Okada's
104. 5:37role.
105. 5:39Hey, hey, Shi-chan, is it okay if I
106. 5:41cover my ears?
107. 5:43Sure.
108. 5:45Okay.
109. 5:46Thank you.
110. 5:48Cooking while wearing earphones.
111. 5:51There is a reason for this. I think it
112. 5:54falls under auditory sensitivity.
113. 5:58People talking. The noise of toys. I
114. 6:02get distracted by what they're doing.
115. 6:06I end up burning things or leaving the
116. 6:08stove on, which is becoming quite
117. 6:09dangerous.
118. 6:12A trait often seen in those with
119. 6:13sensory sensitivity, where surrounding
120. 6:15sounds feel louder than they do for
121. 6:17others. They say that by using one
122. 6:22earphone to play music, focusing on a
123. 6:24single sound helps prevent them from
124. 6:26getting distracted. Talking in an
125. 6:37environment like this is quite...
126. 6:39It's quite tough.
127. 6:41The noise is intense.
128. 6:43Hearing...
129. 6:45Between the noise here and my own voice
130. 6:47, right now, my ears are just...
131. 6:50The sound is echoing inside.
132. 6:53He was also diagnosed with autism, a
133. 6:58developmental disorder. Whew.
134. 7:04Thank you for the meal. I did.
135. 7:05In the past, because of his
136. 7:07developmental disorder, there were
137. 7:08issues like...
138. 7:11He wouldn't sleep. The lack of sleep
139. 7:15was the biggest struggle; from about
140. 7:17the age of one, he'd wake up at 8:00 AM
141. 7:19and have no naps, remaining energetic
142. 7:21until 3:00 or 4:00 AM. I couldn't tell
143. 7:25what he was trying to say. I had to
144. 7:28stay up until morning every single day.
145. 7:34Difficulty falling asleep is one of the
146. 7:35traits often seen in children with
147. 7:37developmental disorders. Although she
148. 7:42had her husband's support at the time,
149. 7:44Ms. Okada says she was exhausted and
150. 7:46reached a breaking point due to the
151. 7:47grueling childcare. I couldn't even do
152. 7:54that, so I was, how should I put it,
153. 7:55struggling—I didn't know what the
154. 7:57right thing to do was.
155. 8:02Every family faces parenting struggles,
156. 8:04but when a developmental disorder is
157. 8:06involved, that difficulty can be
158. 8:08multiplied many times over.
159. 8:12Yes. I think sharing those feelings
160. 8:19with people who understand what you're
161. 8:20going through is incredibly important
162. 8:22and effective. Ms. Hinata, who provides
163. 8:28support for individuals with
164. 8:30developmental disorders and their
165. 8:31families. The reason she started these
166. 8:35activities came from her own personal
167. 8:37experience. In my case, my child had a
168. 8:41very obvious developmental disorder,
169. 8:43and...
170. 8:44Both of us had similar...
171. 8:45My eldest daughter, Rina.
172. 8:48She was diagnosed with a developmental
173. 8:50disorder in her third year of junior
174. 8:51high. Like running away from school—
175. 8:57if she didn't like a class, she’d
176. 8:58just leave. It wasn't exactly
177. 9:03unexpected, but those kinds of actions
178. 9:05kept me on edge every single day.
179. 9:09Wondering if she had messed up again
180. 9:10that day. Until she was diagnosed, Rina
181. 9:15was simply treated as a problem child
182. 9:17at school, and she says her
183. 9:19relationship with her mother, Mizuki,
184. 9:21was not good. "Why can't she do it at
185. 9:26school? Is it poor parenting?" People
186. 9:28would constantly ask me, "Are you
187. 9:30disciplining your child properly?"
188. 9:38There is a place Mizuki visits without
189. 9:40fail once every month. My child is also
190. 9:50buried in this grave. She passed away
191. 9:54in 2005. Mizuki’s eldest daughter,
192. 9:59Rina, fell from a building in her third
193. 10:01year of middle school due to a
194. 10:02misunderstanding. The accident happened
195. 10:07just six months after she was diagnosed
196. 10:09with a developmental disorder. At the
197. 10:14time, even though our communication had
198. 10:16improved quite a bit after the
199. 10:17diagnosis, I still feel that if I had
200. 10:19stepped in a little more and asked, "
201. 10:21What is it you're doing?", I might have
202. 10:25been able to prevent the accident. It's
203. 10:28just my own self-reproach, but
204. 10:29developmental disabilities are
205. 10:31invisible; even for those affected,
206. 10:33they are hard to notice, let alone for
207. 10:35someone like me who didn't know.
208. 10:39However, Mizuki says that the situation
209. 10:41can be improved if those around them
210. 10:43change their perspective.
211. 10:46When she saw a psychiatrist, they
212. 10:48simply told me she had typical
213. 10:49Asperger’s. And at that moment, my
214. 10:53child asked me, "Why couldn't you have
215. 10:55figured this out sooner?" I have many
216. 10:59regrets after losing her, like I did,
217. 11:01but if you can understand even a little
218. 11:03bit, things can change. So, I hope to
219. 11:08be of some help to those who are in a
220. 11:09similar situation.