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Building a stronger, more innovative accessibility community I Axe-con 2026 — Transcript

by Deque Systems · 5,307 words · 902 segments · language en · Watch on YouTube

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  1. 0:03Hello everyone, welcome. Thank you for
  2. 0:06being here. My name is Habin Germa.
  3. 0:10I'm Zimeian from California.
  4. 0:13I am going to start with a visual
  5. 0:16description.
  6. 0:17I'm a woman with medium dark skin,
  7. 0:21dancing hazel eyes, black hair, and I'm
  8. 0:25wearing a teal dress, and there's a blue
  9. 0:28curtain behind me.
  10. 0:30Now, I'm going to pause and reflect. Why
  11. 0:34did I do a visual description? Some
  12. 0:37people might be thinking, "This is a
  13. 0:39conference about digital accessibility.
  14. 0:42Why are we talking about appearance?"
  15. 0:45I have a story for you many years ago.
  16. 0:51I met an acquaintance.
  17. 0:55He was blind and we were getting to know
  18. 0:58each other. And he asked me, "Have you
  19. 1:01ever traveled outside the United
  20. 1:03States?" And I told him, "Oh yes, I was
  21. 1:06recently in Sweden visiting visiting
  22. 1:08family
  23. 1:11all summer long." He assumed I was a
  24. 1:15white woman with blue eyes, blonde hair.
  25. 1:19And at the end of the summer, his wife,
  26. 1:22who is cited, met me and helped him
  27. 1:26realize those assumptions that were
  28. 1:29going on.
  29. 1:31A lot of us
  30. 1:33live in societies that teach us to make
  31. 1:36assumptions.
  32. 1:38Part of accessibility is unlearning
  33. 1:41those assumptions.
  34. 1:43When we post content online,
  35. 1:47photos, videos, those have visuals and
  36. 1:52blind people should have equal access to
  37. 1:55visuals.
  38. 1:57I post a lot of photos and videos on
  39. 2:00social media to teach people about
  40. 2:02accessibility.
  41. 2:05I add visual descriptions.
  42. 2:08I actually do not describe myself every
  43. 2:12single time.
  44. 2:15Context matters.
  45. 2:17How much you describe and when you
  46. 2:20describe it depends on context. My
  47. 2:24photos and videos are for my audience.
  48. 2:28And many people know me, know my
  49. 2:31appearance,
  50. 2:33but I also get new followers, new people
  51. 2:37who are learning about me. So, every few
  52. 2:41posts or so, I'll add in a self-
  53. 2:44description
  54. 2:46just to help new people to help people
  55. 2:50unlearn assumptions
  56. 2:54for your own work.
  57. 2:56Think about the point, the message you
  58. 3:01want to communicate with a photo or a
  59. 3:04video and allow that message to guide
  60. 3:08how you describe it. What details you
  61. 3:11describe depends on context. So if it's
  62. 3:15for a fashion audience, you might go
  63. 3:18into great details about the outfit and
  64. 3:22the jewelry.
  65. 3:24If it is a mathematical and science
  66. 3:27conference, you might go into more
  67. 3:30detail about the equations on the board
  68. 3:33rather than just saying there's math on
  69. 3:36the board. So context matters and for a
  70. 3:41lot of people describing your work for
  71. 3:44the first time can feel overwhelming,
  72. 3:47but it gets easier over time.
  73. 3:51During this presentation, I'm going to
  74. 3:53be sharing photos and videos,
  75. 3:57and I will be describing them so you'll
  76. 4:00get more examples of how to build your
  77. 4:04descriptive skills. It gets easier with
  78. 4:08practice.
  79. 4:10I've learned a lot about this because I
  80. 4:13myself am deaf blind and I can't see
  81. 4:17photos and videos. I access the
  82. 4:20information through descriptions
  83. 4:23and I also know many talented disabled
  84. 4:28people and non-disabled allies who are
  85. 4:32doing a wonderful job describing
  86. 4:35their content. So if you increase the
  87. 4:38number of disabled leaders and allies
  88. 4:42you follow, you could also learn how to
  89. 4:46increase those skills.
  90. 4:48Deaf blindness is a spectrum of
  91. 4:51different levels at vision and hearing.
  92. 4:54And we all access technology in
  93. 4:57different ways.
  94. 4:59Some people have some vision and will
  95. 5:02use large print magnification software.
  96. 5:08Other people might use assisted
  97. 5:10listening devices, hearing aids.
  98. 5:15And when we are designing for
  99. 5:18accessibility, we need to make sure we
  100. 5:21give people many different options to
  101. 5:24access information.
  102. 5:27I felt there weren't enough options when
  103. 5:30I was growing up as a kid. It was really
  104. 5:34hard to get access to information,
  105. 5:37even just conversations around me. How
  106. 5:40would I access those conversations?
  107. 5:44That led me to think about what can I do
  108. 5:49to create the solutions I need in my
  109. 5:52life.
  110. 5:53My sense of touch is excellent. I was
  111. 5:56lucky enough to have been taught braille
  112. 5:59as a kid. My teachers taught me braille
  113. 6:02and braille technology has evolved over
  114. 6:06time. One year a new piece of tech came
  115. 6:09out that had Bluetooth support and
  116. 6:12braille.
  117. 6:13It had me thinking, what if we connected
  118. 6:17this to an external Bluetooth keyboard?
  119. 6:21And I started trying that for
  120. 6:23conversations. I would read what people
  121. 6:26were saying on my braille computer and
  122. 6:29they would type their words on a
  123. 6:31keyboard.
  124. 6:32At first, some people said, "No, that's
  125. 6:35weird. That's different. We're not going
  126. 6:37to do that."
  127. 6:39But more and more people said yes. Let's
  128. 6:43give this a try. Let's make this work.
  129. 6:46And I want to share a photo of one
  130. 6:48person who said yes. Photo, please.
  131. 6:54This is a photo from the 25th
  132. 6:56anniversary of the Americans with
  133. 6:58Disabilities Act. It's a scene from the
  134. 7:02White House where I am standing
  135. 7:06by a table reading from the Braille
  136. 7:08computer. Across from me, President
  137. 7:11Obama is typing on a keyboard
  138. 7:15on the same table where my Braille
  139. 7:17computer is. We're having a conversation
  140. 7:21and also visible is President Biden,
  141. 7:26Valerie Jared, all watching the
  142. 7:29conversation.
  143. 7:31When I met the president, I told him I
  144. 7:34can't access information
  145. 7:38visually
  146. 7:39or through sound. But if he typed, I'd
  147. 7:44be able to access his words.
  148. 7:47Normally, President Obama communicates
  149. 7:50by voice, but he graciously switched
  150. 7:54from voicing to typing so I could access
  151. 7:57his words. He chose to make that switch.
  152. 8:02And when we have
  153. 8:05these examples of representation,
  154. 8:08it helps more people feel comfortable
  155. 8:11adapting, adjusting to meet everyone's
  156. 8:15different communication styles.
  157. 8:20Since sharing my work online through
  158. 8:24photos, videos, my website,
  159. 8:28I've been able to teach more deaf blind
  160. 8:31people to use different types of braille
  161. 8:34computers with external keyboards. It
  162. 8:38gives us the flexibility to interact in
  163. 8:41many different kinds of situations.
  164. 8:44And through the internet, I met a deaf
  165. 8:47blind friend in Australia who also uses
  166. 8:51a similar system. When I was in
  167. 8:54Australia,
  168. 8:56we found our sign languages are
  169. 8:59different. Australian sign language is
  170. 9:01different from American Sign Language.
  171. 9:05So, we learned a little bit of each
  172. 9:08other's signing languages, but the
  173. 9:11easiest way for us to communicate was
  174. 9:13through technology. We would use our
  175. 9:16Braille computers and keyboards and pass
  176. 9:18them back and forth to to chat and and
  177. 9:22connect in person.
  178. 9:25Technology
  179. 9:28has opened so many doors. Death
  180. 9:32blindness is not my barrier. My biggest
  181. 9:35barrier is abbleism. Abbleism is a set
  182. 9:39of beliefs and practices that is that
  183. 9:43train us to think disabled people are
  184. 9:46inferior to non-disabled people.
  185. 9:49Ableism shows up in technology
  186. 9:54in so many different ways. It's the
  187. 9:58decisions that decide not to prioritize
  188. 10:00accessibility.
  189. 10:04And it's also the decisions that
  190. 10:08hold back talented disabled people who
  191. 10:11want to be able to work in tech
  192. 10:13companies or study computer science in
  193. 10:17schools and are told by professors or
  194. 10:20hiring managers that they can't do the
  195. 10:23job.
  196. 10:24But we have more and more allies who are
  197. 10:28saying yes you are talented you belong
  198. 10:31here and our technology gets better more
  199. 10:35accessible when we have diverse teams.
  200. 10:39When I was in college I was struggling
  201. 10:42to find work. So many employers as soon
  202. 10:45as they realized I'm deafb blind would
  203. 10:48assume no she can't do the job.
  204. 10:52And I shared this frustration with a
  205. 10:55friend that it was so hard to get work.
  206. 10:59And my friend told me, "I know where you
  207. 11:01can get a job."
  208. 11:04Alaska.
  209. 11:06Well, I really wanted a job.
  210. 11:10So, we went up to Alaska.
  211. 11:12And before I even set foot in Alaska, I
  212. 11:16was hired to work as a tour guide for
  213. 11:19the Capitol building.
  214. 11:22in Chunau, Alaska.
  215. 11:24I studied Alaskan history. I memorized
  216. 11:27the details and facts for the Capitol
  217. 11:30building. I was ready that first day to
  218. 11:34give tours of Juna's capital. And during
  219. 11:38that first day, the manager pulled me
  220. 11:41aside and said, "It was a mistake to
  221. 11:43hire you."
  222. 11:45I was shocked. They knew about my
  223. 11:49deafness. I told them in advance and
  224. 11:51they seemed so supportive.
  225. 11:54What happened?
  226. 11:58Over time,
  227. 12:00many of us who live with multiple under
  228. 12:04represented identities develop a six
  229. 12:08sense for sexism, racism,
  230. 12:12abbleism, and other forms of oppression.
  231. 12:16But when we're younger, it's harder to
  232. 12:19know. You're still figuring out is this
  233. 12:23abbleism? Is this racism?
  234. 12:26And I I was struggling to understand
  235. 12:31what was going on in Alaska.
  236. 12:34So I asked the manager,
  237. 12:38"Are you firing me because I'm blind?"
  238. 12:41She said, "No, it's because you're from
  239. 12:43California.
  240. 12:48Once again, I was looking for work, but
  241. 12:52this time I was stuck in Alaska.
  242. 12:56And there were many job openings because
  243. 12:59of the tourism industry.
  244. 13:02Lots of people go up to Juno to see
  245. 13:04whales, eagles, the glacier.
  246. 13:09So, there were a lot of openings. I sent
  247. 13:11in applications. Employers were
  248. 13:14impressed with my resume and they'd call
  249. 13:18me in for interviews as soon as they
  250. 13:20found out I had a disability. They'd
  251. 13:23come up with all kinds of excuses not to
  252. 13:26hire me.
  253. 13:28And many of those jobs were tactile
  254. 13:30jobs, jobs that don't require sight.
  255. 13:35washing dishes in restaurants, folding
  256. 13:38laundry in hotels, those are tactile,
  257. 13:42but a lot of employees assumed you have
  258. 13:44to be able to see to do dishes or fold
  259. 13:48laundry.
  260. 13:50Those assumptions are ableist and they
  261. 13:54hold back talented disabled people. They
  262. 13:58also limit employers because they miss
  263. 14:02out on talented disabled people.
  264. 14:06I found a wonderful manager. She asked
  265. 14:10me, "How would you do the job?" I told
  266. 14:13her, she listened, and she hired me to
  267. 14:18work the front desk of her small gym in
  268. 14:22Juno, Alaska.
  269. 14:25That summer, I learned a lot about gym
  270. 14:27equipment.
  271. 14:30One day, a woman came up to the front
  272. 14:32desk and she said, "A treadmill isn't
  273. 14:35working." I followed her to the
  274. 14:37treadmill. I felt the machine from top
  275. 14:40to bottom and near the bottom there was
  276. 14:43a switch. I flicked the switch and the
  277. 14:46machine were to life.
  278. 14:49She told me, "Oh my goodness, I didn't
  279. 14:51see that switch."
  280. 14:54I told her I didn't see it either.
  281. 14:59Sometimes tactile techniques, be it
  282. 15:02visual techniques,
  283. 15:04there's so many ways to access
  284. 15:07information
  285. 15:08by touch, by smell, by taste. And if you
  286. 15:14can access it by sight and sound,
  287. 15:17we have more than that. There are
  288. 15:19additional senses.
  289. 15:22And science is starting to to gain more
  290. 15:25information about
  291. 15:27our senses beyond the main five senses.
  292. 15:33So when we design our technologies for
  293. 15:37multiple different senses, create
  294. 15:40multiple different access points, more
  295. 15:42people can share their talents. And when
  296. 15:46our teams are diverse, our teams are
  297. 15:48able to solve more problems.
  298. 15:53Disabled people have been contributing
  299. 15:56to society all throughout history all
  300. 16:00over the world. We are often the
  301. 16:02helpers. We may not get credit for this.
  302. 16:06The mainstream society might not notice
  303. 16:10but all throughout history disabled
  304. 16:12people have been there creating,
  305. 16:15innovating, solving problems in many
  306. 16:18different ways.
  307. 16:21If you cannot hear language,
  308. 16:25you can create other forms of language.
  309. 16:29And many deaf communities around the
  310. 16:31world have developed visual languages,
  311. 16:35sign languages.
  312. 16:38I have a video from Mexico.
  313. 16:42Video please.
  314. 16:45This is a video from a university in
  315. 16:47Mexico. In the video, we're in a
  316. 16:51gymnasium
  317. 16:53and I'm signing with a young man named
  318. 16:56Ya Alejandro. He was a student back
  319. 16:59then. He since graduated and now is a
  320. 17:03teacher.
  321. 17:05He knows
  322. 17:08American Sign Language,
  323. 17:10Mexican Sign Language,
  324. 17:13English and Spanish. He's deaf and
  325. 17:17sighted. So, in this video, he's
  326. 17:19watching my signs. We're signing in ASL,
  327. 17:23American Sign Language. And to read his
  328. 17:27signs, I hold my hands over his hands to
  329. 17:30feel his signs, tactile sign language.
  330. 17:35because I don't know Mexican sign
  331. 17:38language. Yay was my interpreter in
  332. 17:42Sonora, helping the bridge communication
  333. 17:46between me and the deaf community.
  334. 17:50Some people are surprised to learn that
  335. 17:52deaf people can serve as interpreters.
  336. 17:56It's not just in Mexico. All over the
  337. 17:58world, deaf people are bridges and
  338. 18:02interpreters supporting different
  339. 18:05communities.
  340. 18:07Blind people are also guides. I've had
  341. 18:12so many people ask me for directions all
  342. 18:15throughout my life.
  343. 18:18And many different disability groups are
  344. 18:22helping and supporting their communities
  345. 18:24in different ways.
  346. 18:27Some people argue that the word disabled
  347. 18:31is inherently negative because it has
  348. 18:35the word it has the phrase dis d i s.
  349. 18:41And in English they say that every word
  350. 18:45that has d i s in front of it is
  351. 18:49something negative.
  352. 18:51But that's not true. We actually have
  353. 18:55words in the English language that are
  354. 18:58positive or neutral and start with
  355. 19:01discover
  356. 19:06display.
  357. 19:12So language
  358. 19:14evolves.
  359. 19:16We can use the word disabled with a
  360. 19:20sense of pride. It does not need to be
  361. 19:23something negative. And many disabled
  362. 19:26advocates are taking back that word,
  363. 19:30giving it an infusion of pride and sense
  364. 19:33of community.
  365. 19:36And I know this is also happening in
  366. 19:39other languages. Other communities are
  367. 19:42also taking ownership of how we identify
  368. 19:46and how we and how we define ourselves.
  369. 19:52Death blindness does not hold me back.
  370. 19:56My ongoing barrier is ableism. And I'm
  371. 20:01going to share another way it shows up.
  372. 20:04Next video.
  373. 20:08This is a video of me salsa dancing at a
  374. 20:11club in New York City. I learned to
  375. 20:15salsa dance from a blind dance
  376. 20:17instructor. She taught me there's so
  377. 20:20many different ways to connect with
  378. 20:22people. And she allowed the low vision
  379. 20:28students to come stand near the front of
  380. 20:31the class to visually watch her
  381. 20:34demonstrate the different dance moves.
  382. 20:37She described all the different dance
  383. 20:41moves for the students who listen who
  384. 20:44learn best through listening
  385. 20:46and for those of us who learn by touch.
  386. 20:49She allowed us to feel her footwork
  387. 20:53and demonstrated with her hands to help
  388. 20:56us learn the different dance moves. And
  389. 20:59I loved it. And I've continued dancing
  390. 21:03all over the world. I danced in London,
  391. 21:07in Bangalore, Barcelona.
  392. 21:11One time I tried dancing in Washington
  393. 21:14DC and they said, "No, you can't come
  394. 21:16in. No dogs."
  395. 21:19The dog with me is a seeing eye dog,
  396. 21:23welltrained,
  397. 21:25well behaved.
  398. 21:27I told the the dance club, the salsa
  399. 21:31club in Washington DC that this is a
  400. 21:34sing dog, welltrained, well behaved.
  401. 21:37Don't worry, the dog's not going to
  402. 21:40dance.
  403. 21:43We have laws protecting access for
  404. 21:46disabled people and that includes access
  405. 21:50with assistance animals like guide dogs.
  406. 21:54And
  407. 21:56still people make assumptions and we
  408. 22:00need more allies, more advocates. I was
  409. 22:04able to eventually get into the salsa
  410. 22:06club because I had allies with me. A
  411. 22:10friend was there with me witnessing what
  412. 22:12was happening,
  413. 22:14supporting my advocacy and explanation
  414. 22:17to the salsa club. We had a line of
  415. 22:20bystanders watching and witnessing. And
  416. 22:23that audience eventually persuaded the
  417. 22:26club to let us in.
  418. 22:29We need allies. We need people to
  419. 22:34to voice, stomp, wave, and advocate in
  420. 22:39any way you can for access in all forms,
  421. 22:43online and offline.
  422. 22:47I'm an advocate for accessibility now. I
  423. 22:50was not always an advocate. I used to be
  424. 22:53very shy and the idea of standing out of
  425. 22:59of making a scene outside a club that
  426. 23:02would have been very nerve-wracking.
  427. 23:06But I've started to change because I
  428. 23:08realized it's not just about me. If I
  429. 23:12can make access at this one salsa club,
  430. 23:16it could help make things easier for the
  431. 23:18next disabled person with service
  432. 23:21animal.
  433. 23:24I learned that when I was in college, I
  434. 23:27went to Louiswis and Clark in Portland,
  435. 23:30Oregon.
  436. 23:32They'd never had a braille reader
  437. 23:33before. I was their first braille
  438. 23:35reader.
  439. 23:37and they purchased translation software.
  440. 23:41They purchased a braille embosser. The
  441. 23:44reading specialist trained herself to
  442. 23:47convert print to braille.
  443. 23:50So all my books were in braille. I got
  444. 23:54my exams in braille.
  445. 23:57There was just one problem. The
  446. 23:59cafeteria menu was only in print.
  447. 24:03sighted students could walk in, look at
  448. 24:06the menu on the wall, and then go on to
  449. 24:08their station of choice.
  450. 24:10I couldn't do that, not because of
  451. 24:13blindness, but because of the design of
  452. 24:16the menu.
  453. 24:18So, I went to the manager and I
  454. 24:20explained,
  455. 24:22"There's a braille embosser on campus.
  456. 24:26They've already bought translation
  457. 24:29software and if you could send them the
  458. 24:32menus ahead of time, they could emboss
  459. 24:35the menus for you. And the manager said,
  460. 24:39"We're very busy. We don't have time to
  461. 24:42do special things for students with
  462. 24:44special needs."
  463. 24:47Just to be clear, eating is not a
  464. 24:50special need.
  465. 24:52Everybody needs to eat.
  466. 24:56There's this myth that non-disabled
  467. 24:58people don't need help, but non-disabled
  468. 25:02people have millions of supports all
  469. 25:05throughout society.
  470. 25:08Just in that college cafeteria, there
  471. 25:10were tons of supports. You walk into the
  472. 25:13cafeteria and there are chairs all
  473. 25:16around the cafeteria.
  474. 25:18The schools spent thousands of dollars
  475. 25:21on chairs for students who needed to sit
  476. 25:25down and didn't bring their own chair.
  477. 25:29Students with wheelchairs rolled in with
  478. 25:32their own chairs.
  479. 25:34They didn't ask the school to buy all
  480. 25:37those chairs scattered around the
  481. 25:39cafeteria.
  482. 25:41So that is an investment
  483. 25:44the school made for non-disabled
  484. 25:47students to accommodate non-disabled
  485. 25:50students. Another example is also in the
  486. 25:54cafeteria along the ceiling were lights.
  487. 25:58The schools spent money to install
  488. 26:01lights for sighted students.
  489. 26:04Blind students didn't ask for the
  490. 26:07lights. In fact, the school would have
  491. 26:10saved money if they turned off the
  492. 26:12lathes.
  493. 26:14We have so many supports for
  494. 26:16non-disabled people. The only difference
  495. 26:20between supports for non-disabled people
  496. 26:23and supports for disabled people is
  497. 26:26ableism.
  498. 26:29Once we learn to notice ableism,
  499. 26:33we can help in removing it from our
  500. 26:36communities.
  501. 26:38When I was in college, I was still
  502. 26:41figuring out how to do that.
  503. 26:45When the manager said no,
  504. 26:48I I felt I had to tolerate it. There
  505. 26:52were so many things happening in the
  506. 26:54world.
  507. 26:56Who was I to complain?
  508. 26:59At least I was getting an education
  509. 27:02when so many blind students don't get
  510. 27:05the chance to go to college.
  511. 27:07Who was I to complain? Maybe I should
  512. 27:11use this as an experience to practice
  513. 27:15accepting
  514. 27:17that we would always be treated as
  515. 27:19secondclass citizens.
  516. 27:22I tried to ignore it.
  517. 27:25But the problem followed me day after
  518. 27:28day, three times a day.
  519. 27:31After a few months, I mentioned to my
  520. 27:34friends the frustration of not having
  521. 27:37access and they told me,
  522. 27:40"It's your choice.
  523. 27:43We can choose to accept unfairness
  524. 27:47or advocate for justice."
  525. 27:50I did research online.
  526. 27:54I found accessible websites, the
  527. 27:57detailed civil rights protections for
  528. 28:00students
  529. 28:02that helped me gain the information I
  530. 28:05needed to go back to the manager and I
  531. 28:08told him, "The Americans with
  532. 28:10Disabilities Act prohibits
  533. 28:12discrimination against students with
  534. 28:14disabilities. If you don't provide
  535. 28:16access to the menus, I'm gonna take
  536. 28:19legal action."
  537. 28:22The next day, the manager apologized
  538. 28:27and promised to make the menus
  539. 28:29accessible. They started emailing them
  540. 28:32in formats I could read. And using
  541. 28:35email, I could also use my Braille
  542. 28:38computer and read the menus.
  543. 28:43That was exciting.
  544. 28:45Suddenly, I had choices and I can go to
  545. 28:47the station that was serving the food I
  546. 28:51wanted.
  547. 28:52life became delicious.
  548. 28:55The next year there was a new blind
  549. 28:58student at the college.
  550. 29:00He gained access to the menus. My
  551. 29:04advocacy even for something small like
  552. 29:07menus made a difference. And that taught
  553. 29:11me when we advocate
  554. 29:14even for seemingly small things, it
  555. 29:17still makes a difference in our
  556. 29:19communities.
  557. 29:21All around the world, there are many
  558. 29:24different barriers.
  559. 29:26And sometimes we tell ourselves to
  560. 29:28tolerate the small things. But when you
  561. 29:32take the time to address a small
  562. 29:34barrier, you build up your skills to
  563. 29:38master the larger obstacles.
  564. 29:43I wanted to continue building up my
  565. 29:45skills and law school would help me do
  566. 29:48that. So, I applied to law schools and I
  567. 29:53started hearing back from the school.
  568. 29:55Harvard told me, "We've never had a deaf
  569. 29:58blind student before." I told them I'd
  570. 30:01never been to Harvard before.
  571. 30:04They didn't have all the answers, but
  572. 30:07they were finally at a point in their
  573. 30:09history where they were ready to try.
  574. 30:15And the biggest barrier I encountered at
  575. 30:19Harvard was ableism.
  576. 30:23There are
  577. 30:26professors,
  578. 30:28technologies
  579. 30:29that are only focused on visual access
  580. 30:35and don't provide access in other
  581. 30:37formats and that needs to change.
  582. 30:42So, I
  583. 30:46I remember during my first semester, we
  584. 30:50were at a networking event and I was
  585. 30:54standing at a table with my braille
  586. 30:56computer and I asked
  587. 30:59like many of the other students there to
  588. 31:02be able to connect with other people.
  589. 31:05So, my interpreter was looking around
  590. 31:07the room and describing what was going
  591. 31:09on in the room. It was a job festival
  592. 31:13and we had lawyers from the Boston
  593. 31:15community there to talk to students. So
  594. 31:18to network and tell us about job
  595. 31:20opportunities.
  596. 31:22I asked my interpreter to help me find
  597. 31:27someone an attorney to talk to and he
  598. 31:32came over but he didn't want to talk to
  599. 31:35me. He only wanted to talk to the
  600. 31:38interpreter. He told her, "That is an
  601. 31:41amazing dog. Does the dog go to class
  602. 31:44with her? That must be a smart dog."
  603. 31:48My guide dog was on the floor next to
  604. 31:51me. And I explained,
  605. 31:54"We have a braille computer and keyboard
  606. 31:56on the table. Everything you're saying
  607. 31:59is being typed and I'm reading it in
  608. 32:01Braille. I know interacting in this way,
  609. 32:06meeting a deaf blind person for the
  610. 32:08first time may be confusing, but it gets
  611. 32:11easier. You can try typing. Do you want
  612. 32:13to try typing
  613. 32:15again? He would not talk to me. He only
  614. 32:18spoke to the interpreter. He told her,
  615. 32:21"I've enjoyed watching you two tell her
  616. 32:23she's very inspiring."
  617. 32:25And he walked away. He was not inspired
  618. 32:29to offer me a job.
  619. 32:31When a lot of non-disabled people feel
  620. 32:34nervous, they call us inspiring.
  621. 32:39In that context, it's a mask for pity.
  622. 32:43I like inspiring when it's tied to
  623. 32:46action.
  624. 32:48Someone saying, "I'm inspired to make my
  625. 32:51website accessible or I'm inspired to
  626. 32:54increase hiring of disabled talent."
  627. 32:57That is beautiful inspiration. So if
  628. 33:00someone calls me inspiring, I ask, "What
  629. 33:04are you inspired to do?" Allow that
  630. 33:07emotion to guide you toward action.
  631. 33:14I graduated from Harvard Law School and
  632. 33:17I have the photo to prove it. Photo,
  633. 33:20please.
  634. 33:22This is a photo from graduation. Dean
  635. 33:25Minnow is handing me my diploma. The
  636. 33:28dean and I are wearing academic regalia
  637. 33:31and my guide dog is wearing a fancy fur
  638. 33:34coat.
  639. 33:38After graduation, I found there's still
  640. 33:42more ableism even in the legal field and
  641. 33:47technologies designed for lawyers and
  642. 33:50others in the legal field are
  643. 33:54are also having ableism built into their
  644. 33:58technology.
  645. 34:01It's not just in the legal field, but
  646. 34:03it's it's in a lot of our technologies.
  647. 34:07I'll I'll share another example, not
  648. 34:10specific to law, but something that I
  649. 34:14think a lot of us can relate to.
  650. 34:19So, because I can't see photos, I
  651. 34:23sometimes ask for chat GPT to provide
  652. 34:28visual descriptions of photos.
  653. 34:32and I had an amazing trip to Italy and I
  654. 34:37asked Chibi to describe some photos from
  655. 34:41Italy.
  656. 34:42Before I share the next slide, I'm going
  657. 34:45to describe it a little bit. On one side
  658. 34:48of the slide is a photo. On the other
  659. 34:51side of the slide is the prompt, the
  660. 34:55text of the prompt, and its answer. And
  661. 34:58all of that is going to be read in in
  662. 35:02the slide through the audio. Next slide.
  663. 35:08Describe the image to me.
  664. 35:11>> The image shows a woman with long dark
  665. 35:13hair and a dog looking at a detailed
  666. 35:15scale model of a building that appears
  667. 35:17to be St. Peter's Basilica in the
  668. 35:19Vatican. The woman is touching the model
  669. 35:22which is placed on a table with
  670. 35:23anformational plaque in front of it. The
  671. 35:26plaque includes text in Italian and
  672. 35:28Braille. The scene is set in a museum or
  673. 35:32exhibit space with statues visible in
  674. 35:34the background. The walls are made of
  675. 35:36brick, adding to the historic ambiance
  676. 35:39of the room.
  677. 35:42That's a pretty good description with
  678. 35:45one small problem that foreshadows
  679. 35:49what's to come.
  680. 35:51On the bottom of the image is a plaque.
  681. 35:56It's pretty small, but the description
  682. 36:01noticed it. It said there's Italian and
  683. 36:04Braille. That's not accurate. Braille is
  684. 36:08not a language. Braille is a reading
  685. 36:11system. It's a tactile reading system
  686. 36:15and it exists in multiple different
  687. 36:17languages. There's English braille,
  688. 36:20German braille, and Italian braille. I
  689. 36:25was able to catch this issue because I
  690. 36:29was there at the museum and I could
  691. 36:31remember many of the details from my
  692. 36:34experience.
  693. 36:35So I asked GPT to zoom in on that plaque
  694. 36:40on that sign and give me more
  695. 36:43information.
  696. 36:44And in this next slide, we again have
  697. 36:48the prompt and the answer from GPT.
  698. 36:53Next slide.
  699. 36:54>> Translate the sign for me. The sign
  700. 36:57reads
  701. 37:08copia carloana
  702. 37:11vaticano roma mantiquat
  703. 37:13in English it translates to St. Peter's
  704. 37:16Basilica scale one bell 100 boxwood with
  705. 37:20wood and resin inlays around 1875 to the
  706. 37:231880 copy of the model by Carlo Fontana
  707. 37:27Vatican City Rome 1694.
  708. 37:32So we know the sign is not too small.
  709. 37:36GPT is able to read the Italian forward
  710. 37:40and backward even translating it to
  711. 37:43English. But it's ignoring the braille.
  712. 37:47I love braille. I want to focus on the
  713. 37:50braille. So I get even more specific
  714. 37:53this time and ask for more details. And
  715. 37:56again, this next slide will include the
  716. 37:59prompt and the answer. Next slide.
  717. 38:04>> Translate the braille for me. Sure. Let
  718. 38:07me translate the braille for you. The
  719. 38:08braille text reads, "Please do not flush
  720. 38:11paper towels, sanitary products, etc.
  721. 38:13Thank you.
  722. 38:16>> That's not what it said.
  723. 38:19I was there. I remember that sign. And
  724. 38:22that's definitely not what it said.
  725. 38:26What I'm getting from this is that GPT
  726. 38:29cannot read Braille. It can read
  727. 38:33Italian, English, even Swedish, but it
  728. 38:38can't read Braille.
  729. 38:40Visual description. The dots in the sign
  730. 38:43are white dots against a black
  731. 38:46background. So there was high contrast.
  732. 38:49It would have been a very easy situation
  733. 38:51to read it. And it's something we can
  734. 38:54teach our machine, our our AI systems to
  735. 38:59read, but
  736. 39:02the investment, the time, the
  737. 39:04prioritization
  738. 39:06hasn't happened. And this is one example
  739. 39:09of how abbleism shows up in technology.
  740. 39:14Now you know and you can help design and
  741. 39:18build technologies that are accessible
  742. 39:21to everyone. Support the different sign
  743. 39:24languages of our world. Support braille
  744. 39:28and all the many braille languages we
  745. 39:32have in our world.
  746. 39:34Uh I should correct that. not braille
  747. 39:37languages, but braille representation of
  748. 39:41languages from around our world. We're
  749. 39:44going to move on to Q&A now, and Glenda
  750. 39:49will be reading out loud questions.
  751. 39:52I have Gordon here typing what Glenda
  752. 39:57says. I'll read it in Braille and
  753. 39:59respond by voice. So you might notice a
  754. 40:02delay between when Glenda speaks and
  755. 40:05when I respond and that's because
  756. 40:07communication is coming through and
  757. 40:10patience is part of accessibility.
  758. 40:13On to you Glenda.
  759. 40:15>> Awesome.
  760. 40:17Amazing insights how attendees are
  761. 40:21loving what you have to say and they
  762. 40:25have so many questions here. Here is a
  763. 40:29first comment. when you were talking
  764. 40:32about disability
  765. 40:34being a word we can own,
  766. 40:37um, Adam suggested some other wonderful
  767. 40:41words that began with dis that are
  768. 40:43positive,
  769. 40:45including distinguished,
  770. 40:48discipline,
  771. 40:50disco, and discussion.
  772. 40:59>> Yes. Yes, disco is a fun one. Those are
  773. 41:04great examples.
  774. 41:06We should continue owning our language
  775. 41:10and choosing our words. And when people
  776. 41:13make arguments, saying, "Oh, disability
  777. 41:15should and can only be negative." These
  778. 41:19are arguments we can share with them to
  779. 41:21explain language evolves. Language is
  780. 41:24whatever we want it to be.
  781. 41:28Anna asks, "I help cities become more
  782. 41:33digitally accessible and most of them
  783. 41:36are on board with closed captions, but
  784. 41:39something new for them is visual
  785. 41:42descriptions for the videos. What are
  786. 41:45some ways to incorporate visual
  787. 41:48description without the overall task
  788. 41:51seeming overwhelming to already
  789. 41:54overworked public servants?
  790. 42:08So when I post videos, I do captions
  791. 42:16on the video. So um so people who are
  792. 42:22accessing the videos visually can see
  793. 42:25the captions.
  794. 42:27The descriptive transcripts though I
  795. 42:30usually post either in the body
  796. 42:34assoc a body of text associated with the
  797. 42:37video or a link that gives people the
  798. 42:41full access to the descriptive
  799. 42:43transcript. And the descriptive
  800. 42:45transcript is a combination of the
  801. 42:48captions
  802. 42:49and usually people have already created
  803. 42:52the captions. So it's easy to copy and
  804. 42:55paste those captions, remove the
  805. 42:58timestamps
  806. 42:59and then weave in the audio
  807. 43:02descriptions.
  808. 43:05Audio descriptions are descriptions of
  809. 43:08the audio that are usually embedded
  810. 43:11within the video.
  811. 43:14So descriptive transcripts take that or
  812. 43:17write that originally and because it's
  813. 43:20in a separate transcript you don't have
  814. 43:23the time constraints that audio that
  815. 43:26audio description has. So you can add in
  816. 43:30more descriptions that you weren't able
  817. 43:32to fit in the main video. So,
  818. 43:35descriptive transcripts
  819. 43:39are are fantastic for deaf blind people.
  820. 43:44They're great for researchers who want
  821. 43:47to be able to quote from a video or need
  822. 43:50more time processing video. In many
  823. 43:54places, it's hard to to load a video.
  824. 43:59Videos take more data. So if someone
  825. 44:02can't load a video, they can at least
  826. 44:05get the information from a descriptive
  827. 44:08transcript.
  828. 44:09So you are giving people information in
  829. 44:13multiple ways and it's for many of us
  830. 44:18it's it's an easier smoother way to
  831. 44:21access video content.
  832. 44:25>> Thank you.
  833. 44:27I think we have time for one more
  834. 44:29question.
  835. 44:31Lauren asks, "I would love to hear your
  836. 44:34thoughts on person first language. Is
  837. 44:38disabled person offensive because it
  838. 44:41puts the disability before the
  839. 44:43personhood or is it simply descriptive?"
  840. 44:56A great question.
  841. 44:58the this the disability community is
  842. 45:01very very diverse. People have different
  843. 45:04opinions and that's okay. That's part of
  844. 45:07a healthy community is having so many
  845. 45:10different perspectives and opinions.
  846. 45:14If I can say I am a woman with pride, I
  847. 45:20should be able to say I am disabled with
  848. 45:23pride. And that is embracing that term.
  849. 45:28an an identity.
  850. 45:31In person first language, we are putting
  851. 45:34the person first before the
  852. 45:39and and and re-emphasizing that they're
  853. 45:42a person. So instead of saying I am a
  854. 45:46woman, I would have to say I am a person
  855. 45:49who is a woman, which is longer and more
  856. 45:54clunky. It's more direct to just say I'm
  857. 45:58a woman.
  858. 46:00Same with disabled.
  859. 46:02Ultimately, we should be able to talk
  860. 46:05about disability in similar terms to the
  861. 46:09way we talk about other different
  862. 46:12identity groups. We shouldn't have to do
  863. 46:15linguistic gymnastics to talk about
  864. 46:19disability.
  865. 46:21And by 2026,
  866. 46:24we should all know disabled people are
  867. 46:27people and shouldn't have to keep
  868. 46:30reminding ourselves that disabled people
  869. 46:33are persons.
  870. 46:34So those are some of the arguments for
  871. 46:37embracing identity first language
  872. 46:41instead of person first language which
  873. 46:44can feel longer, more awkward, more
  874. 46:48clunky. But we need to embrace all the
  875. 46:53different ways people identify. So if
  876. 46:56someone tells me they want to be
  877. 46:58addressed with person first language,
  878. 47:01I'll do that for them. So respect all
  879. 47:05the different ways people identify.
  880. 47:08>> I love it. Hobin, I suspect that our Axe
  881. 47:13Con attendees would like to spend
  882. 47:16another hour with you, but we have to be
  883. 47:19respectful of your time. So, thank you
  884. 47:24so much. You've reminded us that
  885. 47:27accessibility is not just about
  886. 47:29technology. It really is about people
  887. 47:33and lived experiences and the
  888. 47:35willingness to remove barriers together.
  889. 47:39You've shown us that disability really
  890. 47:41can drive innovation and that our acts
  891. 47:44of advocacy can create lasting change.
  892. 47:49You've reminded us that this work is
  893. 47:52deeply collaborative. None of us do it
  894. 47:54alone. And to everyone here, thank you.
  895. 47:59Thank you for being part of this
  896. 48:00community as we continue moving digital
  897. 48:03equality forward. Havin, we are so
  898. 48:07grateful for your insight, your wit, and
  899. 48:10your leadership.
  900. 48:12Now to all of you, go carry this energy
  901. 48:15into the rest of your day and enjoy
  902. 48:18Axecon.

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