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Adaptive Response — Transcript

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  1. 0:03And I have also
  2. 0:05sorry
  3. 0:05>> a question because in this week me and
  4. 0:08Anna were we're looking at the levels of
  5. 0:12adaptive response and
  6. 0:15>> we have some that Raz talks about.
  7. 0:17>> Yeah. I don't know if you if you can
  8. 0:19talk about a little bit more and give us
  9. 0:22some examples for each level because we
  10. 0:25are trying to
  11. 0:27>> understand each level and trying to
  12. 0:29understand what is supposed in each
  13. 0:31level.
  14. 0:32>> Yeah. probably if you can
  15. 0:34>> and and one of our questions, one of
  16. 0:38your our questions was um if that levels
  17. 0:42were only for uh postural control issues
  18. 0:47or for everything because it it likes
  19. 0:52uh very motor, you know. Mhm.
  20. 0:58>> Um yeah, let me I'm trying to find
  21. 1:01>> I in each we don't know in which book it
  22. 1:05is that levels. So we just have that
  23. 1:09part of the levels and so we don't read
  24. 1:12all about it. So
  25. 1:14>> it's it's in um
  26. 1:18what is this?
  27. 1:20No, it's in
  28. 1:22uh the
  29. 1:24SI um theory and practice book. I think
  30. 1:27it's the second edition.
  31. 1:30Um
  32. 1:32>> probably
  33. 1:33>> the orange
  34. 1:34>> I think it's the orange one.
  35. 1:36>> Yeah, I'm looking for I have um a
  36. 1:40picture of that those levels.
  37. 1:43>> I have a print screen. If you want I can
  38. 1:46share.
  39. 1:46>> Yes, please. Let me let me make sure you
  40. 1:49can share. Hold on. Um, that will just
  41. 1:52make it go faster rather than me
  42. 1:53searching through things.
  43. 1:57Okay.
  44. 1:58>> Yeah.
  45. 1:58>> Um,
  46. 2:01so response to passive stimuli, holds on
  47. 2:03and stays put. So, I mean, I think these
  48. 2:08are really um
  49. 2:11like kids that some of the kids that we
  50. 2:14see, they're they're up much higher in
  51. 2:17these levels, right? they're not they're
  52. 2:19initiating sustaining activity.
  53. 2:22Um,
  54. 2:24but what these are is they're just a way
  55. 2:26to kind of understand where a child is
  56. 2:30in terms of their adaptive responses
  57. 2:32that you're looking for. Um,
  58. 2:35and I don't, you know, I know, um, like
  59. 2:38in the UK with, you know, Roz's Roz's
  60. 2:40group, they do a lot, they do use these
  61. 2:42in their ratings. Um, I think it's an
  62. 2:45interesting um thing to consider. We
  63. 2:48don't use use these as a rating for um,
  64. 2:52you know, how we're collecting data or
  65. 2:54we're documenting on a child. Um,
  66. 2:57but I think it is an interesting way to
  67. 2:59look at things. Um, you know, I think if
  68. 3:04you look at this and you also overlay
  69. 3:07like the scaffold of treatment um, that
  70. 3:11we've talked about, it's on page. It's
  71. 3:13on page 77 of the I've said it I found
  72. 3:17it so many times I now know where it is,
  73. 3:19but it's in the clinical reasoning SI um
  74. 3:22clinical reasoning and diverse
  75. 3:24populations book. Um
  76. 3:27there's that scaffold of um
  77. 3:31in treatment. Do you know what I'm
  78. 3:32talking about?
  79. 3:35>> I think so. I think I saw Zen.
  80. 3:39>> Yes, it's um
  81. 3:41>> the intervention model.
  82. 3:43>> Yeah. Yep.
  83. 3:47I just saw where did it go.
  84. 3:54Um,
  85. 3:58where
  86. 4:04I think this
  87. 4:07is an expanded version of this.
  88. 4:13Um, this is a I'll show it to you in a
  89. 4:16second, but um
  90. 4:20Oh, wait. put up put up those those
  91. 4:22levels again Anna if you can.
  92. 4:26So
  93. 4:28So what were you trying to understand
  94. 4:30about these levels?
  95. 4:32just
  96. 4:33>> what is supposed to the child to do in
  97. 4:36each of the levels and um if it's just
  98. 4:41related to postural control to motor
  99. 4:43aspects of um
  100. 4:48>> it is and then as you know as it moves
  101. 4:49up higher you'll see some of those are
  102. 4:51more related to practice
  103. 4:53>> practice also. Yes. So, some of those
  104. 4:55initial pieces, yes, they're related to
  105. 4:57postural control um and stability. Uh
  106. 5:00because if you can't hold yourself up,
  107. 5:03you know, you're not going to be able to
  108. 5:04do much or you know, and and this
  109. 5:08response to passive stimuli holds on and
  110. 5:10stays put. So, what does that look like?
  111. 5:12Like they respond, they're responding to
  112. 5:14your p just being passively moved. What
  113. 5:17is their response looking like? Um
  114. 5:20>> like a smile or asking for more
  115. 5:23>> smile asking for more changes in
  116. 5:26arousal.
  117. 5:27>> Um
  118. 5:28>> yeah like you see like which I guess a
  119. 5:31smile smile would be um a change in
  120. 5:33arousal could could be interpreted as a
  121. 5:35change in arousal. Um and then you start
  122. 5:39to see them discriminate a little bit
  123. 5:40different a little bit more with holds
  124. 5:42on and stays put. Um,
  125. 5:46because now they're they're starting to
  126. 5:49to discriminate movement. Like they're
  127. 5:51recognizing I'm moving and I need to
  128. 5:53hold myself on this piece of equipment.
  129. 5:56Um,
  130. 5:58and then they're starting to, you know,
  131. 6:00alternately contract and relax their
  132. 6:01muscles to pump the swing. So, you're
  133. 6:03starting to see that they're responding
  134. 6:05to the movement and they're starting to
  135. 6:07initiate their have their own initiation
  136. 6:10of of movement. Um, and there I think to
  137. 6:16me that's where we see like that true
  138. 6:18integration of sensation. Um, because
  139. 6:21now they're putting it to use, right? So
  140. 6:23holding on and staying put, they're
  141. 6:25starting to put it to use, but now
  142. 6:26they're really starting to enact it,
  143. 6:28right? They're they're um
  144. 6:32hold they're contracting their muscles.
  145. 6:34They're holding on um in response to
  146. 6:37that movement.
  147. 6:39This is this uh level would be like uh
  148. 6:45uh hold the posture in the swing without
  149. 6:49falling.
  150. 6:50>> Yes.
  151. 6:51>> Yeah.
  152. 6:52>> Yeah.
  153. 6:52>> Okay.
  154. 6:53>> Um
  155. 6:56>> or just or just stay in the chair.
  156. 6:59>> Just stay in a chair climbing on a
  157. 7:01bolster.
  158. 7:03um
  159. 7:04>> Mhm.
  160. 7:04>> that they're just starting to like kind
  161. 7:06of, you know, well, if they're climbing,
  162. 7:08they're being much more active, right?
  163. 7:10Um but like just this passive things
  164. 7:12just to get them there. Like you put
  165. 7:14them on the swing,
  166. 7:16>> can they stay on the swing, right? Like
  167. 7:18how what is their response? So like
  168. 7:22>> maybe we can get a video of this little
  169. 7:24boy that we see in the clinic. He's um
  170. 7:26he has autism and cerebral pausy and um
  171. 7:31you know his body awareness is just he's
  172. 7:34just all over the place and he you know
  173. 7:37even just passively lying down on the
  174. 7:40glider swing he cannot do that he falls
  175. 7:42off um once the swing starts moving. Um
  176. 7:47but then you know we instead of giving
  177. 7:49him like the linear linear movement if
  178. 7:52we put him on bunggees and start kind of
  179. 7:54using more of his odeliths and really
  180. 7:56like trying to give him some more
  181. 7:58there's more propriception in that as
  182. 7:59well. um he he does show an adaptive
  183. 8:04response of holding on and staying put
  184. 8:07um and then starting to contract his
  185. 8:09muscles and maybe he might move from um
  186. 8:12that supine position into um or a prone
  187. 8:17position actually move from a prone
  188. 8:19position into a seated position like you
  189. 8:21might start to see that kind of change
  190. 8:24over time and that's that that um
  191. 8:26integration of sensation he's starting
  192. 8:28to like really gain gain the skills to
  193. 8:31do it. Um, and when I mean over time, I
  194. 8:34mean like, you know, within 20 minutes,
  195. 8:37you know, within a session, not over
  196. 8:39sess, the course of sessions. Um, but
  197. 8:42that's that, you know, change in
  198. 8:44sensation that he's he's starting to
  199. 8:46discriminate. Um, let me put up the
  200. 8:49scaffold now. Um so
  201. 8:57um
  202. 9:01okay
  203. 9:02all right can you see um this table
  204. 9:07>> okay so this is this is from module six
  205. 9:10um so I can't share the doc I can't give
  206. 9:13you the document because it's it's from
  207. 9:16module six um if you take module six
  208. 9:19it'll be
  209. 9:21We have these documents. We
  210. 9:22>> you have it too. Okay. Um so this is
  211. 9:26just an expanded version of that those
  212. 9:30that table that's in um the clinical
  213. 9:33reasoning book. So Suzanne's kind of
  214. 9:35fleshed it out a little bit more, added
  215. 9:37more thoughts to that. Um
  216. 9:41so again, here's that arousal. Um, and
  217. 9:45we're really just kind of looking at
  218. 9:47proximally homeostasis, acquiring and
  219. 9:49sustaining a calm and alert state,
  220. 9:52right? Just kind of those lowlevel
  221. 9:54um goals of can they sustain engagement
  222. 9:59or just to sustain themselves
  223. 10:02um within the environment.
  224. 10:04Um,
  225. 10:06and then, oh, here comes Maria. And then
  226. 10:09um here are different activities that
  227. 10:11you might do to support that.
  228. 10:16And then um any distal goals might be
  229. 10:19that might be related to that. Okay.
  230. 10:23Improve nutrition. So health and
  231. 10:25resilience. Right. Hi Maria. You made
  232. 10:27it.
  233. 10:29>> I made it. I'm sorry guys. I'm late. I'm
  234. 10:31sorry.
  235. 10:32>> No. No. I'm glad you're here. Um we're t
  236. 10:35we're talking about um scaffolding and
  237. 10:39then those levels of adaptive response
  238. 10:42that um we've talked about a few
  239. 10:44different times. Um Roz Roz has brought
  240. 10:46them up a few times because they use
  241. 10:48them um in their documentation
  242. 10:51in her clinic. Do you know what we're
  243. 10:53talking about the levels of adaptive
  244. 10:54response?
  245. 10:59>> I don't know. I don't know if I know
  246. 11:02exactly uh or maybe
  247. 11:06I am calling something different in my
  248. 11:08in my head. Are you are you calling like
  249. 11:10the aa aaa or
  250. 11:13>> no? Um Anna, I'm going to stop sharing.
  251. 11:16Do you want to put them up really quick?
  252. 11:17Anna has a
  253. 11:18>> um
  254. 11:21>> so these are from like the theory and
  255. 11:23practice book. Um the second edition. I
  256. 11:26I believe it's in the second edition. Um
  257. 11:28these are just kind of errors. Um she
  258. 11:32considered these levels of adaptive
  259. 11:33response that a child might go through
  260. 11:35as they're
  261. 11:37>> they're improving their sensory
  262. 11:39integration. Um so you might see this
  263. 11:42happen within a session. And so this is
  264. 11:44kind of um an original model and then we
  265. 11:48kind of overlay that with the scaffold
  266. 11:49which was just up on the screen. Um so
  267. 11:52I'm gonna put that up now.
  268. 11:54>> Yeah, I got it.
  269. 11:56>> Okay. So um so we're kind of overlaying
  270. 11:59that with this scaffold where we can see
  271. 12:03um
  272. 12:05you know how those those interplay
  273. 12:07within this. Right? So this is how we um
  274. 12:10we might elicit those adaptive
  275. 12:12responses. And typically if a child is
  276. 12:14just responding passively to sensation,
  277. 12:17we're working on arousal, right? And if
  278. 12:20they're starting to hold on and stay
  279. 12:22put, maybe we're working more in um
  280. 12:26sensory perception.
  281. 12:28Okay. Um and then they're starting to
  282. 12:30respond
  283. 12:32um by pumping the swing, pushing and
  284. 12:34pulling. Maybe we're starting to see a
  285. 12:36little more postural control.
  286. 12:38Okay. Do you see how those are they're
  287. 12:40kind of like laying on top of each other
  288. 12:43now? These two
  289. 12:45two concepts. I think those original
  290. 12:48adaptive
  291. 12:48>> Yes. I'm kind of lost in that in that
  292. 12:51chart or table. Sorry. Uh can you
  293. 12:54>> can you show show us the the titles?
  294. 12:58Um above above.
  295. 13:02>> Okay. Assessment areas.
  296. 13:06>> You mean like arousal or uh some sensory
  297. 13:10um motor functioning? So what this is,
  298. 13:13this is that treatment scaffold that um
  299. 13:16Suzanne Smith Rolley has in her clinical
  300. 13:19reasoning book.
  301. 13:21>> Um and so we're going over like the the
  302. 13:25different parts of the scaffold, which
  303. 13:28you know, like in a treatment session,
  304. 13:29first we address arousal
  305. 13:32>> and then we address then we see if
  306. 13:34there's challenges. You know, we kind of
  307. 13:35when a child walks in that we're kind of
  308. 13:37quickly assessing where are we going to
  309. 13:39fall in this scaffold.
  310. 13:40>> Yeah. And then Anna and Patricia were
  311. 13:44trying to grasp the the adaptive
  312. 13:46response levels that other other
  313. 13:49document we showed you.
  314. 13:50>> Um trying to trying to understand you
  315. 13:54know where that you know how is that
  316. 13:56really just limited to motor skills and
  317. 13:59practice or is there something more to
  318. 14:02that? Um like where does arousal fall?
  319. 14:06And so I wanted them to see that there's
  320. 14:08kind of similarities between that those
  321. 14:11levels of adaptive response and this
  322. 14:14scaffold
  323. 14:17and and really
  324. 14:19they kind of are embedded within the
  325. 14:21scaffold, right? Those those levels of
  326. 14:23adaptive response. So you can kind of
  327. 14:25see a little bit. I would say the
  328. 14:27scaffold is a more um indepth
  329. 14:31um
  330. 14:32application of those levels
  331. 14:36if that makes sense
  332. 14:38because they're they're just kind of
  333. 14:40woven into this. Um
  334. 14:44but what this table is, so Maria, this
  335. 14:47is from that clinical reasoning book
  336. 14:49>> and this is um Suzanne has kind of um
  337. 14:55expanded it a little bit more and um
  338. 14:58this is in the module six course. So if
  339. 15:01you take module six, you would get this
  340. 15:02document. I can't give it to you because
  341. 15:04it's not mine to give um but
  342. 15:08but I can show it to you. So the so
  343. 15:11here's like the arousal and then what
  344. 15:13Suzanne's done is she's started to
  345. 15:14include some of the data driven
  346. 15:16decision-making language into this to
  347. 15:18help us apply like how does this
  348. 15:20scaffold address you know our proximal
  349. 15:24and distal goals and how do we what
  350. 15:27therapeutic activities are we using to
  351. 15:29get there.
  352. 15:31So,
  353. 15:33you know, if we're just looking at
  354. 15:34arousal, so so you know, approximately
  355. 15:37what we're looking for um with a child's
  356. 15:39arousal is that they really are can they
  357. 15:41can maintain homeostasis, that they can
  358. 15:44stay calm and alert, right? They don't
  359. 15:47have these wild flex fluctuations in
  360. 15:49arousal or attention. Um and that they
  361. 15:52can kind of stay stay with us generally.
  362. 15:55Um,
  363. 15:57and then here's, you know, here's what
  364. 15:59we're doing therapeutically to support
  365. 16:01that. And then distally, what our goals
  366. 16:04might look like, right? When we're
  367. 16:06talking about these kids that are really
  368. 16:07disregulated,
  369. 16:09um, that their arousal is kind of really
  370. 16:11fluctuating, um, you know, their ability
  371. 16:14to have improved nutrition, that they
  372. 16:16can, you know, exercise and sleep, um,
  373. 16:19that there that they're kind of more
  374. 16:21regulated, right? Like we've we've had
  375. 16:24um coming out of COVID, we've had a lot
  376. 16:26of families with these kids that, you
  377. 16:28know, have toileting issues. Um a lot of
  378. 16:31feeding issues, little lot of picky
  379. 16:33eating. Um and and big emotions, big big
  380. 16:38emotions. Um, so a lot of our kids like
  381. 16:41these are what our goals are around that
  382. 16:43they can have like improved regul
  383. 16:46regulatory functions so that their
  384. 16:47interactions and participation are um
  385. 16:52are more comfortable um for everybody,
  386. 16:54not just them, but for the people
  387. 16:55interacting with them too. um
  388. 17:00and that they're like I really like this
  389. 17:02is reduced passive use of free time
  390. 17:04throughout the day, increased active
  391. 17:06participation in play activities alone
  392. 17:08and with others, right? So, you know, so
  393. 17:11many of our kids are using more passive
  394. 17:14participation activities, right? Like
  395. 17:16just they're on devices um and they're
  396. 17:20um they're, you know, just gaming.
  397. 17:23they're in this kind of passive world.
  398. 17:26And is it passive or is it not? Like
  399. 17:28there's some kind of executive
  400. 17:30functioning that's, you know, there's
  401. 17:32more like higher level engagement
  402. 17:34happening cortically. Um, but if we're
  403. 17:37talking about like their physical
  404. 17:39engagement in the world, especially
  405. 17:41those really young ones, right? Like
  406. 17:43it's really important that they're using
  407. 17:46their bodies to help them self-regulate,
  408. 17:48right? that a lot of kids are, you know,
  409. 17:50they're being given devices
  410. 17:53um or they're getting on devices to help
  411. 17:55them regulate. So, we're we're just
  412. 17:57plugging kids into these passive passive
  413. 18:00things. So, you know, one of our goals
  414. 18:03might be that they choose to initiate
  415. 18:06more active play um rather than um
  416. 18:11passive play.
  417. 18:13Um,
  418. 18:15so that's kind of what the scaffold, you
  419. 18:18know, what where those adaptive
  420. 18:20responses fall into the scaffold. But I
  421. 18:22think with that those um adaptive
  422. 18:24response levels that that um Anna had
  423. 18:28put up, what I think what they do is
  424. 18:30they really help you to know what you're
  425. 18:31looking for. Um, I remember, you know,
  426. 18:34when I was first out of school, I think
  427. 18:37my first year, and um, I just really
  428. 18:40struggled with what adaptive respon,
  429. 18:42what am I looking for for an adaptive
  430. 18:44response? What is the adaptive response?
  431. 18:47And that those levels right there just
  432. 18:49helped to give me some guideline, you
  433. 18:52know, guidance of like, okay, can it
  434. 18:55these are the responses to sensation
  435. 18:56that we're looking for when a child um
  436. 19:01when a child is in therapy, we're
  437. 19:03looking for these motor responses. And I
  438. 19:05think um especially especially newer
  439. 19:08graduates, we're not as we we haven't
  440. 19:11developed that skill of observing motor
  441. 19:14responses. Like we can easily observe a
  442. 19:17smile or a request for more. Like that's
  443. 19:20pretty clear to us. Those are really
  444. 19:22clear adaptive responses. But those more
  445. 19:24subtle adaptive responses of not falling
  446. 19:27off the swing, like that's that's what
  447. 19:30we're looking for is that they can they
  448. 19:32can hold on to a swing. And I think um
  449. 19:35what's important for us is that that
  450. 19:38seems like a really reductionistic
  451. 19:41um
  452. 19:43uh observation for occupational
  453. 19:46therapists, right? That they can sit on
  454. 19:47a swing and hold on. Well, okay, big
  455. 19:50deal. Because that's not occupation. And
  456. 19:52so our what's important is for us to be
  457. 19:55able to translate that information from
  458. 19:58well, so what if he can sit on a swing
  459. 20:00and pump it? What does that mean? Okay.
  460. 20:02Well, that means now he can participate
  461. 20:04more fully in childhood play,
  462. 20:07exploratory play, right? He can sit on a
  463. 20:09swing on the playground. He can climb a
  464. 20:12ladder because he can hold on to the
  465. 20:14ladder now and he's got the postural
  466. 20:15skills to sit in the chair and sit at
  467. 20:17rug time at during school. Um, so now
  468. 20:21he's got some of these skills that are
  469. 20:22going to translate into these broader
  470. 20:24occupations.
  471. 20:26Um, and I I also think that we spend so
  472. 20:30much time in school learning about
  473. 20:33occupation
  474. 20:34and the value of occupation that our
  475. 20:37newer graduates still have to learn how
  476. 20:41to observe those underlying pieces that
  477. 20:44build to occupation. Um, and you know, I
  478. 20:47think sensory integration gets a lot of
  479. 20:50um, a lot of people argue with sensory
  480. 20:52integration, saying that we're very
  481. 20:53reductionistic, that we're too too
  482. 20:56focused on the mechanical pieces of
  483. 20:59occupation and not occupation as a
  484. 21:01whole. Um, but you know, I think our
  485. 21:05lens is that if your sensations are not
  486. 21:10providing you the information they need,
  487. 21:12you can't participate in occupation. Um,
  488. 21:16so we're not, you know, and I think this
  489. 21:18is where people get confused that we're
  490. 21:20not just training occupations.
  491. 21:23We're we're training foundations for
  492. 21:25occupation.
  493. 21:28So, um, you know, and you know, I feel
  494. 21:31like that's just a daily discussion,
  495. 21:32right? Like everybody's always wondering
  496. 21:35what we're doing and why how we're doing
  497. 21:37it.
  498. 21:38Annie. Uh, I was I was uh thinking about
  499. 21:41a kid I had uh yesterday and um I was
  500. 21:46wondering because I felt like an adapt
  501. 21:50adaptive adaptive adaptive or adaptative
  502. 21:53in English.
  503. 21:54>> Adaptive
  504. 21:55>> adaptive response. Um uh but I think
  505. 21:59like sometimes we we used to um call
  506. 22:03adaptive responses more uh more related
  507. 22:07with the performance of the kid uh in
  508. 22:09something uh in in in a in a play in a
  509. 22:13task or or or whatever. Uh but this this
  510. 22:17kid um
  511. 22:20uh I I felt like it was an adaptive
  512. 22:23response. But you tell me uh he was I uh
  513. 22:27for me the adaptive response that I saw
  514. 22:29uh on him was he for his own decision
  515. 22:34um uh wanted to explore in his time uh
  516. 22:40when he wanted to uh the ball pit um
  517. 22:44without me to say uh nothing like uh
  518. 22:47let's go to the ball pit I'm on the ball
  519. 22:50I'm I'm I'm in the ball pit. No, nothing
  520. 22:52like that. I just opened the space for
  521. 22:54him to explore. H and and I felt and
  522. 22:58because he is a a kid with a very uh
  523. 23:01lack of um with a very
  524. 23:06uh uh I mean he he doesn't have a a very
  525. 23:10big uh inter list of interests. Um and
  526. 23:15so he is very restrictive uh on it. Uh
  527. 23:19and and and the fact that he wanted to
  528. 23:23go to the ballpit that that was
  529. 23:25something that he never wanted to
  530. 23:27explore for me was an adaptive response.
  531. 23:30uh even not in performing something
  532. 23:35but uh in a global sense for me it was
  533. 23:39uh I don't know if you if you but
  534. 23:42somehow
  535. 23:42>> that's self initiation right ideiation
  536. 23:46self initiation like yes he that was
  537. 23:48promoted for him because he had these
  538. 23:51foundations that allowed him
  539. 23:53>> to um let go of his focus on his body
  540. 23:57right he doesn't have to because all of
  541. 23:59the the sensory systems are doing what
  542. 24:01they need to do. And now he's like
  543. 24:03pushing to that just right challenge of
  544. 24:06okay, well just kind of being passive
  545. 24:09and and waiting for Maria to do things
  546. 24:11for me. I'm I'm outgrowing that, right?
  547. 24:14I'm moving past that and now I want to
  548. 24:16start being more independent and look at
  549. 24:19my space and explore my space. Yeah,
  550. 24:21that's definitely an adaptive response.
  551. 24:23And
  552. 24:25>> and I was just saying that uh that also
  553. 24:29uh I think that it also means uh for me
  554. 24:33that he was able uh in a sensory motor
  555. 24:36perspective he was able to uh plan and
  556. 24:40manage his body to uh uh go into the
  557. 24:43ballpit because it's it's really high
  558. 24:45this this ballpit. It's not it's not a
  559. 24:47small one. Um uh and and I for me it
  560. 24:52also means that that he he he wanted to
  561. 24:55go there because he knew that he was
  562. 24:57able to um independently. Uh and and as
  563. 25:02you were saying like this is not
  564. 25:04occupation but it impacts impacts
  565. 25:06occupation. Um uh because it means that
  566. 25:10probably in his uh uh in his place or or
  567. 25:15at his school um he's more um uh able
  568. 25:21capable to explore also his body in the
  569. 25:24space. So
  570. 25:27>> it's not it's not occupation but it
  571. 25:29impacts occupation. it impacts
  572. 25:31occupation and you know I think I think
  573. 25:34we also need to
  574. 25:36reframe how we're talking about
  575. 25:38occupation when we talk about a
  576. 25:40developmental model right when we're
  577. 25:42talking about children occupation is
  578. 25:45very different it's not you know when
  579. 25:49they get into school like occupation is
  580. 25:51you know being a student participating
  581. 25:53in the classroom all of those pieces but
  582. 25:56we're talking early childhood right and
  583. 25:59developmentally even I mean even if
  584. 26:01they're not chronologically in early
  585. 26:03childhood maybe they're six or seven
  586. 26:04years old but developmentally they might
  587. 26:06be like a three or fouryear-old and when
  588. 26:09we're talking about development
  589. 26:12occupation is play and exploration and
  590. 26:16and if a child can't do that they cannot
  591. 26:18develop um and I think that's where
  592. 26:22where we get a little lost and confused
  593. 26:25in this discussion of occupation
  594. 26:28um because we
  595. 26:30you know, we're we're taught in more of
  596. 26:32an adult model. Um, and and the focus on
  597. 26:35occupation and children is kind of like
  598. 26:37it's one class, right? It's we don't get
  599. 26:39a lot on pediatrics and occupation. We
  600. 26:44get a lot on adult and life lifespan
  601. 26:47occupations really, but and and we apply
  602. 26:50a lot because it's what we know as
  603. 26:51adults, right? We we can we just
  604. 26:53extrapolate all that information that
  605. 26:55we're learning about occupation because
  606. 26:56it's it's relevant to us as adults. We
  607. 26:59know what occupations are for ourselves.
  608. 27:01But when we think about those
  609. 27:03developmental models, I think it's
  610. 27:06really important that we
  611. 27:08we we
  612. 27:10reframe what occupation is. Um, and you
  613. 27:15know, I know there's there's lots of um,
  614. 27:18you know, books on pediatrics and
  615. 27:20understanding occupation. Um, I think
  616. 27:22the playbook by Linda Fasio and Diane
  617. 27:25Prim really explores occupations in
  618. 27:27childhood. Um and I think it's a really
  619. 27:30wonderful book. Uh but I wish we could
  620. 27:34use that more wholly in our discussions
  621. 27:37um around occupation because I think
  622. 27:40people get confused especially when
  623. 27:42we're working in pediatrics how that
  624. 27:44relates. Um it's it's an old discussion
  625. 27:48like we've been having this discussion
  626. 27:49forever. Um, and I even um I had a
  627. 27:54discussion with um uh Roseanne Sha years
  628. 27:58ago. She was talking with um the at the
  629. 28:02time she was the president of um of AOTA
  630. 28:06and um the president was really pushing
  631. 28:09for everyone to use these really
  632. 28:11occupation centered um treatment
  633. 28:15sessions, right? They didn't and and she
  634. 28:17was talking about adults. she truly was
  635. 28:19talking about adults, but she didn't
  636. 28:21have the lens of children at all. So, um
  637. 28:26I believe it was Amy Lamb was the
  638. 28:29president at the time. Um, but she was
  639. 28:31she was telling Roseanne the story of
  640. 28:34how she had Amy had an arm injury and
  641. 28:37she went to occupational therapy to
  642. 28:39improve um her injury. And the
  643. 28:43occupational therapist had put her on
  644. 28:45like a hand bike and was doing all these
  645. 28:48exercises with her to strengthen her arm
  646. 28:50and improve her function. and Amy Amy's
  647. 28:53a tennis player and she and so she made
  648. 28:56the occupational therapist do every
  649. 28:58treatment session with a tennis racket
  650. 29:00in her hand. Um, very occupation-based,
  651. 29:03right? Like that makes sense. And so Amy
  652. 29:06was saying, well, that's how all
  653. 29:08treatments should be. If the goal is to
  654. 29:10improve function towards playing tennis,
  655. 29:12then every every activity should be
  656. 29:14around playing tennis. And and I'm
  657. 29:17thinking, well, that doesn't work in a
  658. 29:19developmental model because the goals
  659. 29:20are like shoe tying. Like I'm a child is
  660. 29:24not going to want to do every activity
  661. 29:26around shoe tying. But maybe we are on a
  662. 29:31pirate ship and we tie the pirate ship
  663. 29:33up to the post, right? And then we do a
  664. 29:36little bit with a rope and we work on a
  665. 29:37knot and you know, but we're not going
  666. 29:40to sit there with shoes in our hands the
  667. 29:42entire session
  668. 29:44and practice shoe tying because that's
  669. 29:46just not a develop model.
  670. 29:48>> How boring. A child would never make
  671. 29:52progress, right? Um but but that's what
  672. 29:56that that's what you know I think I
  673. 29:58think it's up to us as pediatric
  674. 30:00therapists to to clearly define what
  675. 30:05that looks like what occupation looks
  676. 30:07like in our treatment sessions. What is
  677. 30:09an occupation-based session and how does
  678. 30:11that relate back to the goals? Because
  679. 30:13it's not as straight of a line as it is
  680. 30:16in an adult model. Right? If I'm going
  681. 30:18to play tennis, I'm going to have every
  682. 30:20session about tennis. That makes sense.
  683. 30:23But it doesn't make sense in a
  684. 30:25developmental model because that's not
  685. 30:26how children grow, right? We don't we
  686. 30:28don't work on handwriting with a child
  687. 30:31who's two. We don't work with the goal
  688. 30:33of the child being able to write their
  689. 30:35name, you know, when they're four and
  690. 30:37five years old by sitting down and
  691. 30:39having them write their name and
  692. 30:40practice writing their name and showing
  693. 30:42them letters and putting their name
  694. 30:43together and all those thing all
  695. 30:44different ways. No, we start with like
  696. 30:47can you even hold a tool in your hand,
  697. 30:49right? can you can you do you know what
  698. 30:51are the basics like we have to break it
  699. 30:53down for them because you can't write
  700. 30:55your name you can't you know you can't
  701. 30:58run if you can't walk so we have to get
  702. 31:01we have to get that discussion I think a
  703. 31:03little more clear um because we continue
  704. 31:07like people continue to um misunderstand
  705. 31:11what we're doing and why and then I
  706. 31:13think that's where um you know the
  707. 31:15behavioral approach starts to get more
  708. 31:19informed um becau or more useful more
  709. 31:22understood because that's that's more of
  710. 31:25a straight line right to
  711. 31:29this is just my opinion but I think uh
  712. 31:31what changes that is is our our p
  713. 31:35perspective in air sensory integration
  714. 31:38because uh when an occupational
  715. 31:40therapist does uh his work uh without
  716. 31:44this um this lens uh I think It's it's
  717. 31:49much more difficult to uh prove or
  718. 31:52explain why he's just playing because
  719. 31:56when we are playing we know that we are
  720. 31:58working uh sensory motor functionings or
  721. 32:02uh even hyperreact uh reactivity and we
  722. 32:05know exactly why we are doing what we
  723. 32:07are doing for uh participation in in
  724. 32:12daily life uh tasks and everything. uh
  725. 32:15but but when we don't have this
  726. 32:17perspective I think it's much more
  727. 32:20difficult to link um everything I mean
  728. 32:25play and occupation uh and and I think
  729. 32:29that probably the lack of therapists
  730. 32:31without this um
  731. 32:35perspective uh I think uh maybe uh or
  732. 32:41maybe not I don't I don't know I'm just
  733. 32:43generalizing but uh Maybe they uh
  734. 32:46contribute for that misunderstanding
  735. 32:49around occupational therapy in
  736. 32:51pediatrics.
  737. 32:53>> Yeah. I mean, I feel like I'm constantly
  738. 32:56having to explain what an occupational
  739. 32:59therapist does when when um a parent
  740. 33:03comes to me from another clinic that
  741. 33:05doesn't have this training. And so, you
  742. 33:07know, I'm I'm having to kind of
  743. 33:09reintroduce occupational therapy to them
  744. 33:12um because they think it's it's
  745. 33:14exercises and like very behavioral
  746. 33:17approaches and um a lot of executive
  747. 33:21functioning, cognitive behavioral kind
  748. 33:23of activities. And I'm like, "Wow." And
  749. 33:25she's like, "My child doesn't like
  750. 33:27occupational therapy." I'm like, "Well,
  751. 33:28no wonder because this is really boring
  752. 33:31what they were doing and probably not
  753. 33:34getting to what they needed." Um
  754. 33:37but yeah, I think I think we all need to
  755. 33:40continue to um
  756. 33:45make th that lens that understanding
  757. 33:48clearer of what childhood occupation is
  758. 33:51and why our sessions
  759. 33:53look the way they look and what we're
  760. 33:55doing within that.
  761. 33:57>> I'm remembering uh something else. Um
  762. 34:01also uh when I don't know
  763. 34:06uh about you Patricia and Anna, but uh I
  764. 34:11felt like that I uh put the
  765. 34:15little
  766. 34:17uh how do you say like prepar you know
  767. 34:21like uh
  768. 34:23>> the games?
  769. 34:23>> No, when you have game Yeah. Yeah. Thank
  770. 34:25you. Yeah. when you when you you have uh
  771. 34:28prepared games. um uh when at least uh I
  772. 34:34felt that when when um I came through
  773. 34:37this sensor integration perspective uh
  774. 34:40to understand the kids that I uh the
  775. 34:44kids um I I put the games aside uh
  776. 34:49because I understood that I I need the
  777. 34:52body and to function with the bo with
  778. 34:54the body uh in the space and this is
  779. 34:58what this is something that I really
  780. 35:01feel that is really different from OT's
  781. 35:03with SI and without SI because when you
  782. 35:07don't have SI you you you rely all your
  783. 35:10work based on games different games even
  784. 35:14for fine motor skills for example
  785. 35:17>> but when you have the sensory
  786. 35:19perspective you understand that you need
  787. 35:22to work uh uh out of that games because
  788. 35:26you need you really need to work
  789. 35:27foundations
  790. 35:29and and and they are not uh uh workable
  791. 35:33with games with
  792. 35:35>> No. And the children don't make their
  793. 35:37progress is so slow and minimal,
  794. 35:40>> you know, when you Yeah. when you're
  795. 35:42just doing the games.
  796. 35:45>> Yeah. But I think now in Portugal, I
  797. 35:47don't know if it's in the US too, but
  798. 35:49now in Portugal, like going online,
  799. 35:53having your own OT page, there are a lot
  800. 35:56of people putting games like do this for
  801. 35:59practice handwriting, do this. So we are
  802. 36:02seeing more of these things that parents
  803. 36:06think that this is the way for him to
  804. 36:09improve his handwriting. This is the way
  805. 36:11to improve these people are and selling
  806. 36:15games and that kind of stuff. So I'm
  807. 36:18thinking
  808. 36:18>> ah okay like people
  809. 36:21with with own projects. Yes, like
  810. 36:25showing like I do these games to improve
  811. 36:28this and I think
  812. 36:29>> okay okay
  813. 36:30>> I think in especially I think the
  814. 36:32intervention it has to be like
  815. 36:35personalized right to to that kids not
  816. 36:38doing some game that I don't know where
  817. 36:42it came from and having it prepared
  818. 36:45>> I and you know I think our culture is
  819. 36:48kind of um
  820. 36:50I don't know I call it like the
  821. 36:52Instagram culture like everybody body,
  822. 36:54they feel like they can learn anything
  823. 36:56online for free, right? Like, you know,
  824. 36:59and everybody's an expert in something
  825. 37:01and let me show you how to do it. And I
  826. 37:04just had a a call with a a new family
  827. 37:07that was um that we did an intake with
  828. 37:11and and the whole time the mom the mom
  829. 37:14was like, "Yeah, you know, I was I
  830. 37:16followed this this Instagrammer and she
  831. 37:18told she said this and this and this and
  832. 37:20this. So, I tried it and it didn't
  833. 37:22really work and some of the things did,
  834. 37:24but some of them didn't. And, you know,
  835. 37:27they just went on and on. Like, I mean,
  836. 37:29I spent like 15 minutes listening to all
  837. 37:32of the junk that she's tried to do for
  838. 37:34her child that isn't working.
  839. 37:38And
  840. 37:39>> it's really dangerous to put online this
  841. 37:42dangerous. And she was and she was
  842. 37:44calling because she said, "Well,
  843. 37:46somebody said you'd be able to give us a
  844. 37:48really good home program and sensory
  845. 37:50diet for my child." And
  846. 37:52>> that's a very good point.
  847. 37:54>> What?
  848. 37:55>> That's a very good point.
  849. 37:57>> They they just want like they they think
  850. 38:00that sensory can't be improved that it
  851. 38:02just you just need strategies to get
  852. 38:05around it. And
  853. 38:08I I was when I started talking to her
  854. 38:10and telling her about what we do, she
  855. 38:13she said, "So wait, you can get my child
  856. 38:16can be can get better like these he just
  857. 38:20doesn't need a fidget." And I'm like,
  858. 38:21"Well, do you want your child to have a
  859. 38:22fidget for the rest of his life?" And
  860. 38:24she's like, "No." And I said, "Okay,
  861. 38:27well then let's get him better. Like you
  862. 38:29can always get better. The brain and the
  863. 38:31body changed." She goes, "I never
  864. 38:32thought about it like that. I thought it
  865. 38:34was just a behavior.
  866. 38:37And I'm like, yeah, like they think
  867. 38:40these are like they they know that it's
  868. 38:43not a behavior, but it is a behavior.
  869. 38:45So, let's give them a little strategy so
  870. 38:47it's not this ugly traumatic behavior
  871. 38:50approach. So, let's honor how they're
  872. 38:53feeling and give them give them
  873. 38:55something to make them feel more
  874. 38:56comfortable. that
  875. 38:58they don't un they didn't even under she
  876. 39:00didn't even understand that you can
  877. 39:02actually make changes so that they don't
  878. 39:05have to have all these strategies. So I
  879. 39:07so I explained all that to her, you
  880. 39:09know, I gave her my whole like let's
  881. 39:11let's get them better and strategies get
  882. 39:14them by and I gave her that whole talk
  883. 39:16and um and she really understood it at
  884. 39:19the end and she was like oh and she's
  885. 39:21been doing there's this occupational
  886. 39:23therapist in the area that does just
  887. 39:26programs like protocols
  888. 39:28and they use all of the sensory
  889. 39:31equipment and um it's a group program.
  890. 39:33Nothing's individualized. They don't
  891. 39:35assess the child. they just do things
  892. 39:37with them and give them some give
  893. 39:39parents like strategies and and they
  894. 39:42have no training in SI none and um
  895. 39:47maybe they did like a weekend course
  896. 39:49somewhere I don't know but um they so
  897. 39:52you know
  898. 39:54>> what
  899. 39:55>> this I saw it online somewhere and
  900. 39:58>> yeah and um and the mom the mom was like
  901. 40:02oh
  902. 40:03that's so different than what we're
  903. 40:05doing with my child and I'm like, "Yeah,
  904. 40:08it's really specific, very individual.
  905. 40:10Like, your child is very different than
  906. 40:12any other child." Like, and it was just,
  907. 40:15it's amazing that that I'm still hearing
  908. 40:19that from families that they think that
  909. 40:22it's
  910. 40:24>> something. Go ahead, Maria. I I was
  911. 40:27saying that I must confess you guys that
  912. 40:29I um many times feel the pressure from
  913. 40:33family from families um to have
  914. 40:38strategies uh for for them at home and I
  915. 40:42understand from where that that comes
  916. 40:44because they are anxious about their
  917. 40:47child and and and I understand
  918. 40:49absolutely understand this but uh it's
  919. 40:52really complicated and sometime I many
  920. 40:55times I feel that pressure to uh to give
  921. 40:58strategies instead of explain uh all the
  922. 41:02clinical reasoning because what I tell
  923. 41:04them is if you understand the the the
  924. 41:07reasoning uh beyond this um then you
  925. 41:10will be able to to um adapt the
  926. 41:14environment in such a particular way
  927. 41:18that your child needs. But if I give you
  928. 41:20a list of of strategies and and works
  929. 41:24for home and and everything uh that
  930. 41:28might will be um um has like a finitude
  931. 41:34I mean it's not you understand it's it's
  932. 41:38um how do you say um final
  933. 41:44final it's final
  934. 41:46>> not not exactly final but um it it will
  935. 41:50not work always.
  936. 41:53>> And if they understand the reasoning,
  937. 41:55they can adapt the the environment and
  938. 41:58adjust it while the the child responses
  939. 42:02are also changing.
  940. 42:04>> But if I give them a list, a list will
  941. 42:07will respond to a behavior, but not the
  942. 42:12the the change of that behavior.
  943. 42:16But I really feel that families they
  944. 42:18don't they they it's not that they don't
  945. 42:22want I don't believe that but
  946. 42:23>> they want to fix the problem.
  947. 42:26>> Yeah. want to fix the problem and it's
  948. 42:28really difficult for them to uh engage
  949. 42:31with us to understand reasoning because
  950. 42:34they need they they I feel that they
  951. 42:37need something prepared a program
  952. 42:40protocol something and it and I feel
  953. 42:44that pressure
  954. 42:45>> and I feel like
  955. 42:47>> even from schools I sometimes feel from
  956. 42:50schools like even especially in
  957. 42:53kindergarten that they ask the parents
  958. 42:55to oh uh please ask the therapist to
  959. 42:59send me what can I do with the child?
  960. 43:02>> Yeah.
  961. 43:03>> And I tell the parents I'm not saying
  962. 43:05what what they can do with the child.
  963. 43:06They have to
  964. 43:08>> the the child has has to do almost
  965. 43:11everything that the other kids do do. So
  966. 43:14we we just need to adapt some things and
  967. 43:17then I suggest the meeting with the the
  968. 43:19the teacher and
  969. 43:21>> teacher
  970. 43:22>> trying to explain to her why the the
  971. 43:26problems the the sensory problems from
  972. 43:29the sensory motor problems and in which
  973. 43:32occupations it impacts and how we can
  974. 43:34adapt because but the people is like oh
  975. 43:37send me what can I do send me the recipe
  976. 43:40for me to to know how to how to work
  977. 43:43with this kid And it's not that way. It
  978. 43:46doesn't go that way.
  979. 43:47>> We we call it kind of like the the
  980. 43:50cafeteria approach to OT. Like you walk
  981. 43:52into a big cafeteria and there's all
  982. 43:55kinds of food and you can you can choose
  983. 43:57whatever you want and sometimes you
  984. 44:00don't like it and it's no big deal
  985. 44:01because there's other things to choose
  986. 44:02from, but you might not get you might
  987. 44:04not actually enjoy your meal because
  988. 44:07it's you're just picking and choosing.
  989. 44:10You're not really doing it with like
  990. 44:12thought. Um, I just had a call with a
  991. 44:15parent the other day and we she said she
  992. 44:17wanted um classroom strategies and so we
  993. 44:21gave her like you know four four or five
  994. 44:24classroom strategies for her daughter
  995. 44:25and she's like oh no we need more and
  996. 44:28we're like well why don't we just start
  997. 44:30with this?
  998. 44:32This might be all she needs. And then
  999. 44:34like that same
  1000. 44:36>> Yeah. And that that same mom said she
  1001. 44:38has this wonderful teacher um who's
  1002. 44:40who's been using different strategies
  1003. 44:42with her daughter and some of them work
  1004. 44:44and some of them don't. And they put her
  1005. 44:46in a rocking chair and it seemed to be
  1006. 44:47helpful. But then they put her in
  1007. 44:51um and the little girl falls out of her
  1008. 44:52chair all the time, like just falls. And
  1009. 44:57um
  1010. 44:59and then they put her in a wobble, like
  1011. 45:00on a stool that kind of wobbles. And
  1012. 45:03that was tragic. She like just kept
  1013. 45:06falling and getting hurt and and and she
  1014. 45:11was upset about it. The little girl was
  1015. 45:12upset about it. And I told the mom, I'm
  1016. 45:14like, "Look, that's why that's why you
  1017. 45:16want an individual approach." So your
  1018. 45:18teacher has lots of ideas of what
  1019. 45:20sensory kids might need because she's
  1020. 45:22probably seen them on Instagram, but now
  1021. 45:24your daughter has had a traumatic
  1022. 45:26experience because the teacher made a
  1023. 45:29choice that wasn't relevant for her, an
  1024. 45:31uneducated decision on what she might
  1025. 45:34need. and now your daughter's had a
  1026. 45:35traumatic experience around it and she's
  1027. 45:38uneasy having any kind of chair that
  1028. 45:41moves. So now it's backfired. This is
  1029. 45:43why you need a professional to come in
  1030. 45:46and say like what this specific child
  1031. 45:50needs. And and so the mom said, "So what
  1032. 45:54does she need?" And I said, "She needs a
  1033. 45:55rocking chair with a back and arms. She
  1034. 45:58needs to be this size and something
  1035. 46:00needs to be under her feet." And you
  1036. 46:01know, and so we gave her all this. She's
  1037. 46:03like, "Wow, you really are very specific
  1038. 46:05about what her seating needs to be." I
  1039. 46:07go, "Yeah, because she has terrible
  1040. 46:09postural control issues and she's
  1041. 46:11fearful of falling. So, if you do
  1042. 46:14anything else, you're going to just
  1043. 46:18sabotage this whole process. So, let's
  1044. 46:21not do that because we don't want to
  1045. 46:23have to undo the emotional trauma of the
  1046. 46:26wrong tool."
  1047. 46:27um and her feeling like a failure, you
  1048. 46:29know, like for every kid like you see
  1049. 46:32when when they're having a problem, they
  1050. 46:34know that something's wrong. And when
  1051. 46:36you show them a tool that's going to
  1052. 46:38help it, their faces light up and
  1053. 46:41they're so excited. And then when it
  1054. 46:43doesn't work, they're devastated and now
  1055. 46:47they're the problem. So, I don't want
  1056. 46:49kids to feel like that. That's why we
  1057. 46:50need to have these evaluations that are,
  1058. 46:53you know, people just need to stop like
  1059. 46:57trying to fix it themselves. They need
  1060. 46:59to have a professional come in and and
  1061. 47:02identify what the true issue is and how
  1062. 47:05to make it the best way for this child.
  1063. 47:07Um but this so then I went through that
  1064. 47:11whole discussion with this parent and
  1065. 47:13she said yeah the teacher at the very
  1066. 47:15end she goes yeah our teacher so excited
  1067. 47:17to get this report because she knows
  1068. 47:19that these activities will also help
  1069. 47:20some of the other kids in the class
  1070. 47:23and I said actually they won't they will
  1071. 47:25only help your daughter
  1072. 47:29and I said perhaps those other kids
  1073. 47:31might need an evaluation too so you can
  1074. 47:33get the best choice for those children.
  1075. 47:36It was just so she just didn't. It was
  1076. 47:38horrible.
  1077. 47:39These poor kids. And this little girl,
  1078. 47:42you know, it's, you know, some kids,
  1079. 47:43they can they they are um resilient
  1080. 47:48enough that, you know, if they get put
  1081. 47:50in the wrong chair, it's not that big of
  1082. 47:51a deal. But some children really they we
  1083. 47:55can't mess with that. We really can't
  1084. 47:57mess with that. And those are the kids
  1085. 47:58that we see. um we we don't want to make
  1086. 48:02these empty promises to them because
  1087. 48:04that just makes them feel like failures
  1088. 48:06and it devastates them.
  1089. 48:09>> So
  1090. 48:11I just feel like that that Yeah. I mean
  1091. 48:13the evaluation is so important.
  1092. 48:16>> I just talked with a psychologist of a
  1093. 48:19kid and the kid was um chewing
  1094. 48:23everything the the clothes the pences.
  1095. 48:26So they put it what a chewing necklace
  1096. 48:29to the kid but of course it wasn't
  1097. 48:31enough. You chew on the necklace and
  1098. 48:33then the draw from it was even was
  1099. 48:39having a stain on the his clothes and
  1100. 48:42the other kids were making fun of him
  1101. 48:44because of that.
  1102. 48:45>> Yeah.
  1103. 48:46>> And I told her he needs an an assessment
  1104. 48:48because I think it's more than the
  1105. 48:50mouth. It's probably he needs um
  1106. 48:54intervention because we need to figure
  1107. 48:56out what is happening because he has a
  1108. 48:58lot of anxiety.
  1109. 49:00He doesn't want to fail and I don't know
  1110. 49:03how his sensory systems are. So
  1111. 49:07because it's not just giving it a
  1112. 49:09chewing necklace and it will go is going
  1113. 49:12to help because the chewing necklace is
  1114. 49:14giving him other problems because now
  1115. 49:16other kids are making fun of him. We
  1116. 49:19don't want to be around him because he
  1117. 49:21chews and he has draw on his clothes and
  1118. 49:24it smells bad and
  1119. 49:26>> yeah
  1120. 49:29having another problem now.
  1121. 49:31>> Yeah, it just adds to the problem.
  1122. 49:34>> At every school we should be there.
  1123. 49:38Every school needs an OT.
  1124. 49:40>> Yeah, they need somebody. And you know
  1125. 49:42they're like, "Well, we'll just get our
  1126. 49:44classroom OT to come or our school OT to
  1127. 49:46come look at it." And I was like, "Well,
  1128. 49:47oh, do they have training? Are they
  1129. 49:50trained in this?" Um, no, but they're
  1130. 49:53the OT. Like, okay, well,
  1131. 49:57you can only help who wants help. That's
  1132. 50:00what I'm now I can fight it. I can argue
  1133. 50:03it with everybody, but at the end of the
  1134. 50:06day, the only people we can help are the
  1135. 50:08ones that want it.
  1136. 50:10So,
  1137. 50:12yeah, I'm open to helping everybody.
  1138. 50:15They just need to want it. So
  1139. 50:20>> anyway, okay. Um, Patricia, did you want
  1140. 50:23to share your case?
  1141. 50:25>> Maria, do you have a case or anything?
  1142. 50:31>> Maria,
  1143. 50:32>> ah, sorry.
  1144. 50:33>> Yeah. Do you have a case or anything
  1145. 50:35that you wanted to share?
  1146. 50:36>> I don't have nothing specific. No, I
  1147. 50:38just wanted to share something with you
  1148. 50:40guys. Uh but just just to share and I
  1149. 50:44can do it in the end.
  1150. 50:45>> Okay. All right. We'll let Patricia do
  1151. 50:48her case.
  1152. 50:50>> Uh so this is a case that I'm doing
  1153. 50:52intervention for almost two years now.
  1154. 50:56Uh he's four but he's almost five. He's
  1155. 50:59doing five years turning five this uh
  1156. 51:02this month in the end of this month. Um
  1157. 51:05he's premature. He was a premature kid
  1158. 51:08and he has a brother with autism.
  1159. 51:11and he came for intervention because of
  1160. 51:14the language he doesn't he doesn't speak
  1161. 51:16and that's the mainly problems mainly
  1162. 51:19problem for the mainly concern for the
  1163. 51:21parents
  1164. 51:23uh so when I'm I met him almost two
  1165. 51:26years ago uh I saw that he was a very
  1166. 51:29hypo kid that kind of kid that is busy
  1167. 51:33but doing nothing like he was the the
  1168. 51:37sessions were were were him going up and
  1169. 51:40down on the ramp up but doing nothing
  1170. 51:42with it. Uh just moving around on the
  1171. 51:45space but doesn't exploring doesn't
  1172. 51:49involving anything. Um and he had uh
  1173. 51:53poor balance, poor body control,
  1174. 51:57uh poor body awareness, tactile
  1175. 52:00perception also and his practice also
  1176. 52:04really really bad. Um
  1177. 52:07he loves intense stimuli. He loves to be
  1178. 52:11he loves rotation. He loves up and down
  1179. 52:15in the the swings.
  1180. 52:17Um and I'm seeing I I see I'm seeing
  1181. 52:22some changes in him during the
  1182. 52:24intervention especially on the relation.
  1183. 52:27He's more connected with me. He looks to
  1184. 52:30me more. He asks for more in the play in
  1185. 52:34during the play. He's more risky. He's
  1186. 52:37exploring more. Um,
  1187. 52:40and now he's putting less objects in his
  1188. 52:42mouth because in the beginning he
  1189. 52:44everything was to the mouth to the
  1190. 52:46mouth. Um, now not that much. But now he
  1191. 52:50he he chooses specific things to put in
  1192. 52:53his mouth like really really hard things
  1193. 52:56like that he tries to
  1194. 53:01he it doesn't especially the the Z vive
  1195. 53:05and everything has to have to be really
  1196. 53:07really hard because it doesn't if it's
  1197. 53:11really wobbly like uh I don't know how
  1198. 53:14to say the piaza I don't know how to say
  1199. 53:17in English, but
  1200. 53:20>> um
  1201. 53:22>> rigid.
  1202. 53:23>> Yeah. Yeah. More rigid things. Yeah,
  1203. 53:26that's it. That's it. He likes to put in
  1204. 53:28the mouth more rigid things. Um
  1205. 53:31but I think he's now two two times a
  1206. 53:34week. Uh he started once time a week and
  1207. 53:37now he's twice times a week. There was a
  1208. 53:40time during the intervention that I was
  1209. 53:41seeing a lot of improvement. But then he
  1210. 53:46for almost three three months is two
  1211. 53:49months ago he's
  1212. 53:52he's constantly getting sick like he's
  1213. 53:55one week he's sick then he's okay when
  1214. 53:58he um and I think that that is not
  1215. 54:02helping even now he's having um he had a
  1216. 54:07lot of things COVID
  1217. 54:09everything all the diseases he's getting
  1218. 54:12a lot of virus
  1219. 54:13Everyone is. Yeah.
  1220. 54:15>> Yeah. And now he's having a skin
  1221. 54:18problem.
  1222. 54:21The doctor think it's a food allergy to
  1223. 54:23a lot of things like eggs. Uh even um
  1224. 54:29respir respiratory allergies to the dust
  1225. 54:33and a lot of things.
  1226. 54:36But the problem is that he needs to
  1227. 54:40I can see when he's not okay because his
  1228. 54:43skin is when he's not okay the skin is
  1229. 54:46really dry and he's always how do you
  1230. 54:49say this
  1231. 54:52>> scratching scratching his head
  1232. 54:54scratching his arms.
  1233. 54:56So it's a kid that for like two two
  1234. 55:00weeks, two months is three months is
  1235. 55:02it's not that good healthily good.
  1236. 55:06But when he's okay, you can see that
  1237. 55:08he's more able to try new things. Um but
  1238. 55:13even even when he's okay, he's he's
  1239. 55:18really strict in the things that he
  1240. 55:21plays. Like he just likes to go to the
  1241. 55:23Lyra. It's the only swing that he goes
  1242. 55:26in the he goes to the to the the the gym
  1243. 55:30the SI gym and he only goes to the the
  1244. 55:32lyer and he can stays in he's able to
  1245. 55:35stay in the lyra for a whole session
  1246. 55:38and just having rotation going up and
  1247. 55:42down going really fast this is what he
  1248. 55:45enjoys the most when I try to do
  1249. 55:48different things now he's
  1250. 55:51another thing that it's improved that
  1251. 55:53now he is like when I don't want a thing
  1252. 55:56I I I scream I don't I don't want and
  1253. 56:00you are not going to do in the in the in
  1254. 56:03the beginning he was more a passive kid
  1255. 56:06like you putting him doing a thing and
  1256. 56:09he
  1257. 56:10>> he stays there not involving too much
  1258. 56:12but he stayed there but now he's like oh
  1259. 56:15I don't want this I I'm not doing this
  1260. 56:17I'm going to scream until you stop so
  1261. 56:21h he's showing what he wants and what he
  1262. 56:23doesn't want and I think that's that's a
  1263. 56:25good thing but it's being really hard to
  1264. 56:30get him out of the the Lyra doing
  1265. 56:33different things. Um
  1266. 56:36and my sessions it's that it's putting
  1267. 56:38him in the Lyra and he's asking for more
  1268. 56:43I I sing a song then he knows from the
  1269. 56:48song when it's going to be more fast and
  1270. 56:50more intense because he smiles. he
  1271. 56:53starts to to shake himself because he
  1272. 56:55knows something is going to happen,
  1273. 56:57something that he likes.
  1274. 57:00Um,
  1275. 57:02but it's that it's that's it's just and
  1276. 57:05and when I
  1277. 57:08>> How long has he wanted to just be in the
  1278. 57:10Lyra?
  1279. 57:12>> We can be there for a whole session.
  1280. 57:14Yeah.
  1281. 57:14>> But has this been going on for months?
  1282. 57:17Yeah, he
  1283. 57:20it was hard to take him out of the ramp
  1284. 57:22because he just wanted to do the ramp
  1285. 57:24the ramp and then I tried to do
  1286. 57:26different things in the ramp.
  1287. 57:29But since he discovered the then we he
  1288. 57:32he started to go to his platform swing
  1289. 57:35when he he liked to lay down and be
  1290. 57:39spinning or moving fast. So being sh
  1291. 57:42>> all passive
  1292. 57:44>> all passive and now he's he he
  1293. 57:46discovered the lyron is just just the
  1294. 57:50lyra what he likes to do um when we are
  1295. 57:54looking at the levels of adaptive
  1296. 57:56response I think it's always on the one
  1297. 57:59and I'm like oh my god I'm not doing
  1298. 58:01nothing with these kids because
  1299. 58:04yeah there was a time when I tried to to
  1300. 58:08do some the games in the like putting
  1301. 58:11balls inside the lyra and having a
  1302. 58:13basket outside.
  1303. 58:15He kind of be like, "Oh, you are doing
  1304. 58:18this and I don't like it." But he he
  1305. 58:21grabbed the balls and put it on the
  1306. 58:23basket like grabbing and coming outside
  1307. 58:25to put it on the basket. But now he's
  1308. 58:28like, "Oh, I'm not going to do this." So
  1309. 58:30he runs away from it. Um, and even when
  1310. 58:35he goes to toys from the the place where
  1311. 58:39we have the toys, it's like um
  1312. 58:43a thing. Well, we have the choice. I
  1313. 58:44don't know.
  1314. 58:45>> Cabinet or shelf or something.
  1315. 58:46>> Cabinets. Yes. Yes. He goes there and he
  1316. 58:50just grabbed things that he can put
  1317. 58:52rolling.
  1318. 58:54>> Just that just put just he just puts the
  1319. 58:58things rolling. Um, and sometimes I try
  1320. 59:01to, oh, now it's my turn. I'm going to
  1321. 59:04deliver this to you, but he doesn't give
  1322. 59:07a Yeah, I can show you a video of him. I
  1323. 59:10have
  1324. 59:10>> And Patricia, for how long is he
  1325. 59:13choosing to be in the Lyra yet?
  1326. 59:18>> I think almost three sessions for
  1327. 59:22>> more more more
  1328. 59:24>> more than that.
  1329. 59:24>> For a long time. Yeah, for a long time.
  1330. 59:26Definitely. And he wants to do always
  1331. 59:29the same thing inside the Lyra.
  1332. 59:31>> Always just being shaken, just being
  1333. 59:35moved inside the Lyra. Yeah.
  1334. 59:38>> Yeah. It doesn't accept the balls inside
  1335. 59:40and everything.
  1336. 59:42>> Yeah. I'm I'm thinking maybe of taking
  1337. 59:45off the Lyra. I I I tried that once. I
  1338. 59:50took it off. Um but then he found it on
  1339. 59:56on the the he goes
  1340. 59:58>> put a barrel inside of it
  1341. 1:00:01like do something inside of the lycra.
  1342. 1:00:03Put a barrel in the lycra before he
  1343. 1:00:05comes.
  1344. 1:00:06>> What do you climb in the barrel?
  1345. 1:00:09>> What? It's a barrel is what?
  1346. 1:00:12>> The big tunnel like foam.
  1347. 1:00:15>> Um
  1348. 1:00:16>> I don't have that but I have like a a
  1349. 1:00:18ball or something.
  1350. 1:00:20But inside the lyra, you see
  1351. 1:00:23>> a big
  1352. 1:00:23>> something for him to crawl inside of
  1353. 1:00:26even like a box or something inside the
  1354. 1:00:28lycra
  1355. 1:00:30that he is inside of um just to get to
  1356. 1:00:34change it on him.
  1357. 1:00:36>> I mean I just remember Dean remember how
  1358. 1:00:39how long you were on that ramp?
  1359. 1:00:43>> I mean it was like six months,
  1360. 1:00:46eight months of just going up and down
  1361. 1:00:48the ramp. Um,
  1362. 1:00:50>> you know,
  1363. 1:00:52>> I'm always thinking of I I need to get
  1364. 1:00:54him moving because I need him to improve
  1365. 1:00:56his practice. But I think it's just so
  1366. 1:00:59passive that I'm like, oh, even he
  1367. 1:01:02doesn't have any interest in notes
  1368. 1:01:05because when sometimes kids have
  1369. 1:01:07interest in toys, I can put the toys
  1370. 1:01:09like, oh, it's here in the Lyra up. So,
  1371. 1:01:13he he has to crawl or climb to get
  1372. 1:01:16there. But he doesn't have he doesn't
  1373. 1:01:19doesn't give a damn for any
  1374. 1:01:25>> Yeah, he has internally his nervous
  1375. 1:01:29system is really inflamed. It sounds
  1376. 1:01:32like he's so sick and um
  1377. 1:01:37>> you know it's probably really
  1378. 1:01:38uncomfortable for him to do anything
  1379. 1:01:40else.
  1380. 1:01:43you know,
  1381. 1:01:44>> when his skin is not okay, I feel like
  1382. 1:01:48>> he has that sensation of I I need to
  1383. 1:01:50take this out. And I I I imagine it's
  1384. 1:01:53it's kind of awful. Yeah. But but the
  1385. 1:01:56parents is they are the kind of parents
  1386. 1:01:58that think that going to the therapy
  1387. 1:02:00like they they can't they can't skip it
  1388. 1:02:04because it's it's a huge problem because
  1389. 1:02:06he can so sometimes he goes to the
  1390. 1:02:09therapy and he's sick. There was a time
  1391. 1:02:11when he gets to therapy and I check his
  1392. 1:02:13fever and he was he was hot and I I
  1393. 1:02:16needed to send him away.
  1394. 1:02:18>> Yeah. You can't come to therapy.
  1395. 1:02:21>> Yeah. Because
  1396. 1:02:21>> the kid is trying to survive.
  1397. 1:02:25>> Yeah. And and the parents think it's he
  1398. 1:02:28needs to go all the times to session
  1399. 1:02:30because this is the time he he is going
  1400. 1:02:33to get better, you know, but it's not.
  1401. 1:02:35He's it's not okay. So,
  1402. 1:02:37>> he's sick. Yeah. He needs to get
  1403. 1:02:39healthy.
  1404. 1:02:40>> Yeah.
  1405. 1:02:41>> I mean, I think I want to see a video,
  1406. 1:02:44but he, you know, he's he's sick and
  1407. 1:02:49it's going to take him a long time
  1408. 1:02:50because he's sick.
  1409. 1:02:52>> Yes. Yeah. Yeah.
  1410. 1:02:56Let me just put this was in the
  1411. 1:02:58beginning of the session. He was already
  1412. 1:03:01on the when I put it video. He's able to
  1413. 1:03:05climb to it. He was not on the
  1414. 1:03:07beginning, but now he climbs and he goes
  1415. 1:03:08inside for for himself.
  1416. 1:03:19And when I do this more, he goes to my
  1417. 1:03:22my hands and ask for more.
  1418. 1:03:26>> What if you wrapped the Lycra around
  1419. 1:03:29that platform swing
  1420. 1:03:32next time he came? So he has it even
  1421. 1:03:35even if it was under the like the
  1422. 1:03:37platform swing but so he's on the
  1423. 1:03:39platform swing
  1424. 1:03:42>> the the green one you are saying or the
  1425. 1:03:45black one this one
  1426. 1:03:47>> the black one the black one and make
  1427. 1:03:49like a tent around it sort of that's
  1428. 1:03:51suspended
  1429. 1:03:53um just clip the lycra swing around it
  1430. 1:03:56don't even hang it up but just clip it
  1431. 1:03:58around it so it's enclosed
  1432. 1:04:01um
  1433. 1:04:02in the in the red one. Uh in the the
  1434. 1:04:05green one, I already put it a lycratone
  1435. 1:04:08in
  1436. 1:04:10>> but he didn't he didn't want to go
  1437. 1:04:11inside there
  1438. 1:04:13>> because he had the other one. So
  1439. 1:04:15probably if I took off the other one,
  1440. 1:04:18maybe he will.
  1441. 1:04:20Yeah, he will. But sometimes I feel like
  1442. 1:04:23if I take this off and he cames in and
  1443. 1:04:25he's really bad
  1444. 1:04:27not in a good like
  1445. 1:04:31he's not feeling okay. Um he he won't
  1446. 1:04:34have the thing that he loves the most
  1447. 1:04:36and the thing that it calms him calms
  1448. 1:04:39him down the most.
  1449. 1:04:41But yeah, I I have to try I have to try
  1450. 1:04:44to take it off because now he's able to
  1451. 1:04:46find the lyra where it's um when I take
  1452. 1:04:51it off, he already knows where it is and
  1453. 1:04:53he goes there and he he asks me to put
  1454. 1:04:56it.
  1455. 1:04:57>> So I mean that that can be part of part
  1456. 1:05:00of the therapy too is you know put it
  1457. 1:05:03places that
  1458. 1:05:05>> yeah it's harder for him to get to. it's
  1459. 1:05:08harder for him and he has to help you
  1460. 1:05:09pull it over. He has to help you clip it
  1461. 1:05:12up. He, you know, build things to get up
  1462. 1:05:15there. So, that process is really
  1463. 1:05:18important, too. Um,
  1464. 1:05:20>> I don't know if he's able to engage that
  1465. 1:05:22much. Uh, but
  1466. 1:05:25>> yeah, you scaffold it the way you think
  1467. 1:05:26he needs, but just to add in a little
  1468. 1:05:28bit more
  1469. 1:05:30>> if he really wants that lycra, you know,
  1470. 1:05:33you can get a little bit more. you know,
  1471. 1:05:35put pillows in his way, let him crawl
  1472. 1:05:37over pillows, through a tunnel, whatever
  1473. 1:05:40he needs to get to it. Um, so you're
  1474. 1:05:43getting a little bit more propriception,
  1475. 1:05:46some, you know, postural work if he's
  1476. 1:05:49crawling across the pillows.
  1477. 1:05:52Um,
  1478. 1:05:58>> he won't hold on to a rope or anything
  1479. 1:06:00in there.
  1480. 1:06:02>> I already tried. He doesn't. He let it
  1481. 1:06:05go. Yeah.
  1482. 1:06:09[Music]
  1483. 1:06:17>> Yeah. You want him will he hold on to
  1484. 1:06:18the Lyra at all?
  1485. 1:06:22>> Uh I think when he feels that he's
  1486. 1:06:24falling, he tries to to put himself uh
  1487. 1:06:28>> Oh, he repositions. Okay, that's good.
  1488. 1:06:31>> Yeah. Yeah. Okay. That's an adaptive
  1489. 1:06:33response that he's registering.
  1490. 1:06:36>> It is. It is. Yeah. He now he's able to
  1491. 1:06:39do that. Uh
  1492. 1:06:41>> but you know his ideation and practice
  1493. 1:06:43are so poor he's really limited.
  1494. 1:06:46Um and he likes to roll things. You said
  1495. 1:06:50>> yeah.
  1496. 1:06:51>> Yeah. So I I don't know if you remember
  1497. 1:06:54the tube that Dean would put balls in.
  1498. 1:06:58We just put balls down a tube and the
  1499. 1:07:01tube was really tall. So he had to climb
  1500. 1:07:04up to he had to be up high to get a get
  1501. 1:07:08the ball and then the ball was down low
  1502. 1:07:10and he we only had one ball
  1503. 1:07:12>> and he put it down the ramp put it down
  1504. 1:07:15the tunnel.
  1505. 1:07:16>> You don't remember? It's it was like a a
  1506. 1:07:19long box. I think we got a carpet or
  1507. 1:07:22something in the box. Um, but it's just
  1508. 1:07:25a tube and a ball pit ball fits through
  1509. 1:07:28it. And so I would stand it up really
  1510. 1:07:30tall and he'd have to climb up on
  1511. 1:07:32something to put the ball in the tube
  1512. 1:07:34and then it roll out the bottom and then
  1513. 1:07:36he'd have to go and get that ball and
  1514. 1:07:38then come back and do it over and over
  1515. 1:07:39again.
  1516. 1:07:41>> But just, you know,
  1517. 1:07:44challenging his
  1518. 1:07:47his his gravity and his propriceptive
  1519. 1:07:51system. it,
  1520. 1:07:53>> Patricia. It's remember it was months.
  1521. 1:07:55It was a long time.
  1522. 1:07:57>> I know. I know.
  1523. 1:07:58>> Long, long time before Dean started
  1524. 1:08:01doing anything.
  1525. 1:08:04>> At least it looks like he enjoyed when
  1526. 1:08:06when he was
  1527. 1:08:08>> He loves that. That's tickling. Tick
  1528. 1:08:10tickling. I don't know.
  1529. 1:08:12>> Yeah. And look, he got in there by
  1530. 1:08:14himself. That's not easy.
  1531. 1:08:16>> He He does. He does. That's That's
  1532. 1:08:19improvement. Yeah, because he didn't do
  1533. 1:08:21this by himself. He asked me to help him
  1534. 1:08:23and now he's is able to go inside by by
  1535. 1:08:26himself.
  1536. 1:08:28>> What about uh I don't know if it makes
  1537. 1:08:30sense, but what about if you join him
  1538. 1:08:32inside the Lyra and maybe with the
  1539. 1:08:35interaction
  1540. 1:08:37with you know like with your interaction
  1541. 1:08:40>> mediate mediating something different
  1542. 1:08:42like can we change? I go to that side
  1543. 1:08:44and you come to this side, you know,
  1544. 1:08:46like all inside the Lyra. But
  1545. 1:08:49>> use the relationship as your the
  1546. 1:08:52meaningful activity. Yeah.
  1547. 1:08:54>> Yeah.
  1548. 1:08:55>> Yeah.
  1549. 1:08:56>> Because now that's a good thing. I think
  1550. 1:08:57he when he sees me, he's he's happy. He
  1551. 1:09:01hugs me because he likes to to come to
  1552. 1:09:03to the room. And that's an improvement
  1553. 1:09:05because
  1554. 1:09:07uh months ago he he didn't it's like
  1555. 1:09:11it's me or other person. It's for him
  1556. 1:09:15it's all the same.
  1557. 1:09:16>> But now
  1558. 1:09:18>> now he enjoys uh
  1559. 1:09:21he asks more for relation. Yeah. More
  1560. 1:09:25touch like the tickling and everything.
  1561. 1:09:27He asked for it. Yeah.
  1562. 1:09:30>> Then yeah, Maria's right. use that use
  1563. 1:09:32that relationship.
  1564. 1:09:34Um
  1565. 1:09:36>> and maybe if you you're inside with him
  1566. 1:09:39and he he likes to spin maybe you can
  1567. 1:09:43ask him now we are here uh uh with you
  1568. 1:09:47together. How can we make it spin? How
  1569. 1:09:50can we do that? So maybe it can
  1570. 1:09:52challenge him to think about something
  1571. 1:09:55different to put I don't know if he can
  1572. 1:09:58put his hand on the floor to make it
  1573. 1:10:01spin, but maybe you can and you're
  1574. 1:10:02giving him a model or maybe you can use
  1575. 1:10:05the rope with yourself like giving him a
  1576. 1:10:08model to use the rope to spin and then
  1577. 1:10:11you two spin inside a lyra. Maybe he's
  1578. 1:10:17>> Yeah.
  1579. 1:10:17>> Yeah. You pull the rope and he puts his
  1580. 1:10:19hands on you.
  1581. 1:10:21Yeah. You know, help me pull. Help me
  1582. 1:10:23pull.
  1583. 1:10:24>> Yeah. Yeah. Yeah.
  1584. 1:10:25>> Those kinds of things.
  1585. 1:10:27>> Um,
  1586. 1:10:28>> that's a good idea
  1587. 1:10:29>> because he accepts you when you are uh
  1588. 1:10:32down
  1589. 1:10:33and almost inside the Lyra.
  1590. 1:10:37At least it looks like he's he's not
  1591. 1:10:39rejecting you.
  1592. 1:10:40>> No, no, no, no.
  1593. 1:10:44I'm I'm I'm showing him um emotions like
  1594. 1:10:48you are really happy when
  1595. 1:10:50>> like just now
  1596. 1:10:52>> I'm showing him I give him to him the
  1597. 1:10:54happy face and I'm telling him oh you
  1598. 1:10:56are so happy when you are in the LRA and
  1599. 1:10:58then I'm showing him because I'm trying
  1600. 1:11:01him to use more the the images. So now
  1601. 1:11:05I'm trying to get getting showing him
  1602. 1:11:09there is a images where if he points to
  1603. 1:11:12it he can have more that it's the same
  1604. 1:11:15of this. It's the images the images. So
  1605. 1:11:19we are because me and the speech therapy
  1606. 1:11:21we are trying to use more these uh
  1607. 1:11:25images to get him communicate more
  1608. 1:11:30to get him more involved. Yeah.
  1609. 1:11:32>> Yeah.
  1610. 1:11:34the the parents are are really all they
  1611. 1:11:38want is him for him to speak but I don't
  1612. 1:11:41know if that's going now he's producing
  1613. 1:11:44more sound especially when he has this
  1614. 1:11:46intense distillary input but they are
  1615. 1:11:50just sounds not that
  1616. 1:11:55what they want they want him speaking
  1617. 1:11:57>> well you want words yeah
  1618. 1:11:59>> yeah and he's almost five so we need to
  1619. 1:12:01get him communicating
  1620. 1:12:06Yeah,
  1621. 1:12:10>> I was trying to put it okay and he was
  1622. 1:12:12getting angry like
  1623. 1:12:15>> I know you're probably very bored in the
  1624. 1:12:17session,
  1625. 1:12:19>> but keep it up. He'll change another
  1626. 1:12:22piece of equipment.
  1627. 1:12:23>> Two times it's two times a week and I
  1628. 1:12:25feel like I'm always doing the same
  1629. 1:12:27thing. I'm like, "Oh my god."
  1630. 1:12:30>> But he might need it. He might need that
  1631. 1:12:32more. Yeah. But yeah,
  1632. 1:12:35it's not,
  1633. 1:12:35>> you know, if his skin is really like if
  1634. 1:12:37he's itchy and his skin is
  1635. 1:12:39uncomfortable, the Lyra probably feels
  1636. 1:12:41really good to him.
  1637. 1:12:43>> Yeah.
  1638. 1:12:43>> You know, his tactical system is
  1639. 1:12:45probably really confusing for him.
  1640. 1:12:48>> Yeah.
  1641. 1:12:50There are some days that even his face,
  1642. 1:12:53you can see that something is wrong with
  1643. 1:12:56him.
  1644. 1:12:57He didn't sleep much because sometimes
  1645. 1:13:00he don't sleep much because of this
  1646. 1:13:01because he's scratching and everything.
  1647. 1:13:05[Music]
  1648. 1:13:07>> Yeah.
  1649. 1:13:08>> Would he like to
  1650. 1:13:09>> I don't know if it was the COVID that
  1651. 1:13:11gets that
  1652. 1:13:14I don't know. We don't know much about
  1653. 1:13:15COVID, but he didn't have this kind of
  1654. 1:13:17problems um before
  1655. 1:13:20>> before he gets get CO.
  1656. 1:13:22>> It might Yeah, it might have triggered
  1657. 1:13:23something.
  1658. 1:13:25>> Yeah. I mean we know causes inflammation
  1659. 1:13:29but
  1660. 1:13:29>> I even have a kid with diabetes that his
  1661. 1:13:32diabetes get worse uh after he had co
  1662. 1:13:36the levels the levels are are always
  1663. 1:13:38disorganized getting really high
  1664. 1:13:42and I get like oh was this the COVID
  1665. 1:13:44thing I don't know yeah
  1666. 1:13:47we don't know much
  1667. 1:13:49>> we don't know much we know more than we
  1668. 1:13:51used to but we're still learning more
  1669. 1:13:53and more right Yeah. Yeah.
  1670. 1:13:57>> Well, you're doing the right thing for
  1671. 1:13:59him.
  1672. 1:14:02>> Yeah, I know. I know it's it's the right
  1673. 1:14:04thing because he enjoys it, but
  1674. 1:14:06sometimes I get like, oh, I need to do
  1675. 1:14:09more because these kids needs to improve
  1676. 1:14:12more. I don't know. And
  1677. 1:14:15>> well, I think just take some of the
  1678. 1:14:16suggestions you got like what Maria was
  1679. 1:14:18saying about using your relationship and
  1680. 1:14:21um and then put things in the way if he
  1681. 1:14:23wants to get to the swing like you know
  1682. 1:14:25make it a little more challenging for
  1683. 1:14:27him to to get it and
  1684. 1:14:30>> and the process of hanging up the swing.
  1685. 1:14:32Help him with the process and even if
  1686. 1:14:34it's just like communication gestures
  1687. 1:14:38um those kinds of things
  1688. 1:14:41>> that would be beneficial too. And do you
  1689. 1:14:43think that the it's okay the spinning
  1690. 1:14:46because he enjoys a lot and I think he
  1691. 1:14:48gets really really good after the the
  1692. 1:14:51spinning because he spins really a lot.
  1693. 1:14:53He can
  1694. 1:14:55>> Yeah, because you spin him and you
  1695. 1:14:57bounce him. Um so you're giving him some
  1696. 1:14:59more propriception and maybe like give
  1697. 1:15:01him a little squish in there too so he
  1698. 1:15:03gets some propriception with it.
  1699. 1:15:05>> Um
  1700. 1:15:07>> have you done his PRN? Do you know what
  1701. 1:15:09his post diagnosis is? Yeah, it's I I
  1702. 1:15:13tried but he was not on the right
  1703. 1:15:15posture because on the chair it was
  1704. 1:15:18impossible. He was always leaning out of
  1705. 1:15:20the chair. I just tried it on the swing
  1706. 1:15:22but with him laid down and I didn't see
  1707. 1:15:25any.
  1708. 1:15:26>> It's the wrong one. Yeah. Okay.
  1709. 1:15:28>> But it was not the right position of the
  1710. 1:15:30head. So
  1711. 1:15:31>> yeah, you want to get that lateral.
  1712. 1:15:33>> Yeah.
  1713. 1:15:35>> Yeah.
  1714. 1:15:36Okay. Well, you're doing your best.
  1715. 1:15:38You're doing I think you're doing the
  1716. 1:15:40right things. It's gonna take a long
  1717. 1:15:42time, but once practice turns on, it
  1718. 1:15:45really takes off. It really does.
  1719. 1:15:49>> Yeah.
  1720. 1:15:50>> I hope so.
  1721. 1:15:51>> Yeah.
  1722. 1:15:52>> And for tactile perception, do you think
  1723. 1:15:54that I should do more? Sometimes I put a
  1724. 1:15:56vibration toy inside and you
  1725. 1:15:59>> No, I mean full body tactics. Sometimes
  1726. 1:16:02he takes it off from the like he doesn't
  1727. 1:16:04want that the vibrations. I mean, you're
  1728. 1:16:06giving him full body tactile and deep
  1729. 1:16:09pressure and every time he moves the the
  1730. 1:16:11input changes and you know, if you twist
  1731. 1:16:14it, you know, there's a fold in the
  1732. 1:16:16Lycra and he that's a different tactile
  1733. 1:16:18sensation. No, I think you're doing his
  1734. 1:16:21t you're giving him all the tactile he
  1735. 1:16:22can can handle right now. You know,
  1736. 1:16:27>> when he's ready, you can bring in foam
  1737. 1:16:29and like wet textures, but
  1738. 1:16:33the best way to get the full body is
  1739. 1:16:35what you're doing.
  1740. 1:16:36>> Yeah. He doesn't like to touch the wet
  1741. 1:16:38textures, too. Yeah.
  1742. 1:16:40>> Yeah. So, wait, you know, wait on that.
  1743. 1:16:43But, I mean, you're crashing him in the
  1744. 1:16:44pillows, you're squishing him. He's he's
  1745. 1:16:47getting all kinds of tactile sensations.
  1746. 1:16:48And every time he moves, it's different.
  1747. 1:16:50So, and he has to re reregister that. So
  1748. 1:16:54>> that's good.
  1749. 1:16:56>> Yeah.
  1750. 1:16:57>> Um
  1751. 1:16:59>> yeah, keep on
  1752. 1:17:02>> Maria, what was your update?
  1753. 1:17:04>> Uh I was uh I wanted just to give you
  1754. 1:17:07another suggestion or or asking you like
  1755. 1:17:10does he this kid like to uh go from one
  1756. 1:17:15layer to another? Do you think he he
  1757. 1:17:17would enjoy it or he just wanted to stay
  1758. 1:17:20inside? You know, he doesn't want to
  1759. 1:17:23explore one or or another layer of
  1760. 1:17:25lyros.
  1761. 1:17:26>> He likes to be on the the higher layer.
  1762. 1:17:29Sometimes he falls to the the lowest and
  1763. 1:17:32he goes up again. Yeah. He likes to be
  1764. 1:17:35on the higher because he I can swing him
  1765. 1:17:39more on the higher low level.
  1766. 1:17:43Yeah.
  1767. 1:17:46Okay.
  1768. 1:17:46>> Okay. Well, he moves. He's moving. So
  1769. 1:17:53>> what I what I was sharing uh it's
  1770. 1:17:56something that it's just curious uh
  1771. 1:18:00especi
  1772. 1:18:04uh something symptom in kids or not but
  1773. 1:18:08especially in this last year I I'm
  1774. 1:18:10receiving a lot of kids with two three
  1775. 1:18:13uh sorry with three four five years um
  1776. 1:18:17uh that kind of the girl that I shared
  1777. 1:18:20with you in the the last call. Uh that
  1778. 1:18:24busy kids that are everywhere but not
  1779. 1:18:26really anywhere doing something. Uh or
  1780. 1:18:30they are but then they disorgan they
  1781. 1:18:32they keep the almost every session in
  1782. 1:18:36the same activity. uh because there's
  1783. 1:18:38something with motor planning and
  1784. 1:18:40ideiation and everything but um uh but
  1785. 1:18:44they are not really good doing something
  1786. 1:18:47and then it they change and then they
  1787. 1:18:49change again and then they get
  1788. 1:18:51disorganized because because of all the
  1789. 1:18:53movement and and and and sensory uh
  1790. 1:18:57input um uh but but I I I'm really
  1791. 1:19:01receiving these kids and they are uh uh
  1792. 1:19:04the majority of them are really smart
  1793. 1:19:07actually like with pretty good cognitive
  1794. 1:19:10functionings functioning. Um
  1795. 1:19:14uh but really disorganized and intense
  1796. 1:19:18like usually parents call them like uh
  1797. 1:19:21it's an intense kid really intense kid
  1798. 1:19:24frustrates a lot every a little thing
  1799. 1:19:27it's a big uh problem and then they
  1800. 1:19:31crave autonomy because I that's what I
  1801. 1:19:34feel like they want control in their
  1802. 1:19:36lives and so they crave for that
  1803. 1:19:39autonomy and independence so they
  1804. 1:19:42doesn't want parents to to do um uh
  1805. 1:19:47things for him because they want to do
  1806. 1:19:49by theirelves but then they fail and
  1807. 1:19:52then then they frustrate and then they
  1808. 1:19:54are very intense in the in their
  1809. 1:19:56behavior and then when when they go to
  1810. 1:19:58the therapy it's the same pattern and
  1811. 1:20:01I'm really receiving a lot of kids like
  1812. 1:20:02this um and actually I have to uh still
  1813. 1:20:07listen the last call because you you you
  1814. 1:20:09you suggested a lot of good ideas to um
  1815. 1:20:13to assess when we we can't we can't have
  1816. 1:20:17the collaboration to sip them. Um and I
  1817. 1:20:20still have to to do that work.
  1818. 1:20:22>> Uh but I just wanted to share that with
  1819. 1:20:25you. I don't know if you're you also are
  1820. 1:20:26receiving this with this kind of kids
  1821. 1:20:28and that's some kind of new for me. Uh
  1822. 1:20:32and yeah and suddenly a lot of kids like
  1823. 1:20:35this.
  1824. 1:20:37>> Yeah. a lot of big emotional kids,
  1825. 1:20:39right? Like and and they're three, four,
  1826. 1:20:42and five. So, they were probably born
  1827. 1:20:44during the pandemic, right?
  1828. 1:20:46>> Um or just before. So, I mean, they were
  1829. 1:20:51they were born during such a um
  1830. 1:20:54stressful time, right? Their parents
  1831. 1:20:56were stressed. They were and they were
  1832. 1:20:59being raised in that stressful
  1833. 1:21:01environment as infants. Um, so I wonder
  1834. 1:21:05and and I also wonder if um you know
  1835. 1:21:09what also happened to those babies. Were
  1836. 1:21:11they were they not held as much as they
  1837. 1:21:14normally would have been?
  1838. 1:21:17um because parents had to work and they
  1839. 1:21:21didn't have the you know normally when a
  1840. 1:21:24baby's born there's lots of people
  1841. 1:21:26family and everybody's coming over and
  1842. 1:21:29helping and holding the baby and caring
  1843. 1:21:32caring for the baby with you and those
  1844. 1:21:35babies didn't have that most of them
  1845. 1:21:38right they they were just with their
  1846. 1:21:40parents and um perhaps their parents had
  1847. 1:21:44to work so they had to put the baby
  1848. 1:21:46down. So, the baby was wasn't being held
  1849. 1:21:49as much as they were they usually were.
  1850. 1:21:51So, now they're not getting any of that
  1851. 1:21:52like nice movement, the regulating
  1852. 1:21:54movement, but also that movement that
  1853. 1:21:56teaches them about their bodies. And
  1854. 1:21:59then, you know, are they are they even
  1855. 1:22:01being put on their tummies? Are they
  1856. 1:22:04just being put in a seat, right? Are
  1857. 1:22:06they just being put in these containers
  1858. 1:22:08and just being held in different in ways
  1859. 1:22:11that weren't facilitating their motor
  1860. 1:22:13skills either? Um but then their
  1861. 1:22:15exploration was limited because they
  1862. 1:22:17couldn't go out. And then the novelty of
  1863. 1:22:20just having different people around too,
  1864. 1:22:22right? Like everybody brings a new way
  1865. 1:22:25of doing something every person that
  1866. 1:22:27they meet. And if they're really
  1867. 1:22:30isolated,
  1868. 1:22:31they're probably not getting exposure to
  1869. 1:22:35novelty and that exploration of how to
  1870. 1:22:38do something different. They're stuck in
  1871. 1:22:40their house and the house never changes
  1872. 1:22:44and they just go to these static
  1873. 1:22:45environments that just don't change,
  1874. 1:22:48right? The playground, they probably
  1875. 1:22:49went to the same playground all the time
  1876. 1:22:52and then their home doesn't change. And
  1877. 1:22:53unless the family is really good about
  1878. 1:22:56putting those changes in place and
  1879. 1:22:58giving environments for their child to
  1880. 1:23:00explore,
  1881. 1:23:02yeah, I think those are the kids that
  1882. 1:23:03that we're starting to see. And they're
  1883. 1:23:05anxious because they don't know how to
  1884. 1:23:06move their body. They're anxious because
  1885. 1:23:08their environment was anxious.
  1886. 1:23:10>> More use of devices. I had a lot of kid
  1887. 1:23:12that spend the time with devices because
  1888. 1:23:15parents were working.
  1889. 1:23:18>> Yeah.
  1890. 1:23:18>> Even the relation they don't know how to
  1891. 1:23:20relate to other people because they
  1892. 1:23:23didn't learn it.
  1893. 1:23:24>> It also makes me think about uh I don't
  1894. 1:23:27know if it was Suzanne but Chel Lane
  1895. 1:23:31said the same in the SI and neuroscience
  1896. 1:23:34course. Um and maybe because of of that
  1897. 1:23:39p family dynamic
  1898. 1:23:42um uh they they uh kind of got um uh
  1899. 1:23:50attached to an a an arousal state and
  1900. 1:23:56>> and you know and and like that anxious
  1901. 1:23:58and everything and that toxic cortisol
  1902. 1:24:02uh without can be um liberated
  1903. 1:24:07um and maybe they attach to that arousal
  1904. 1:24:09state
  1905. 1:24:10>> to maybe just something else
  1906. 1:24:13>> because that's what they know. They know
  1907. 1:24:14stress.
  1908. 1:24:15>> Yeah. Because that's what they know and
  1909. 1:24:16how to interact.
  1910. 1:24:18>> Yeah. And so
  1911. 1:24:20yeah, I mean it was a stressful time and
  1912. 1:24:23it was a stressful time for a long time,
  1913. 1:24:25right? A lot of families were for a
  1914. 1:24:28year, right?
  1915. 1:24:29>> More.
  1916. 1:24:30>> And then some families are still working
  1917. 1:24:32from home.
  1918. 1:24:34and having to raise children and and
  1919. 1:24:38you know work and have a livelihood. So
  1920. 1:24:42it's there's a lot of stress I think and
  1921. 1:24:45yeah I think that arousal state is
  1922. 1:24:49is pretty embedded and so we need to
  1923. 1:24:51kind of help with that arousal state.
  1924. 1:24:54Mhm. Mhm.
  1925. 1:24:55>> I have I have a kid now that it was a
  1926. 1:24:59few months ago. She went for the first
  1927. 1:25:01time to um she she was four and she went
  1928. 1:25:05for the first time to a restaurant and
  1929. 1:25:08the mother told me that she was like she
  1930. 1:25:10told me she never sits stay seated for a
  1931. 1:25:13long time and she was seated and like
  1932. 1:25:16observing everything like people talk
  1933. 1:25:21different colors and lightnings and
  1934. 1:25:23everything and she was like just sitting
  1935. 1:25:26still for the whole meal for the whole
  1936. 1:25:28time sensory deprivation. It's like
  1937. 1:25:30those
  1938. 1:25:31>> Yeah,
  1939. 1:25:31>> they've had some deprivation. And I
  1940. 1:25:34mean, I think if we probably look back
  1941. 1:25:36at some of those Romanian orphan
  1942. 1:25:37studies, we might see some similarities,
  1943. 1:25:40>> some similarities.
  1944. 1:25:42>> You know, they these kids have been
  1945. 1:25:44really isolated.
  1946. 1:25:46>> Yeah.
  1947. 1:25:48>> So,
  1948. 1:25:49>> yeah, it makes sense. Absolutely. Yeah.
  1949. 1:25:53>> Yeah. And and I also tell the parents
  1950. 1:25:56about what once a thing you once told
  1951. 1:25:59that probably these kids have a fragile
  1952. 1:26:02nervous system and if you don't if we
  1953. 1:26:04didn't have a COVID they probably get
  1954. 1:26:07through it with more or less
  1955. 1:26:09difficulties but we had a COVID and they
  1956. 1:26:13nervous system it was not
  1957. 1:26:16>> didn't get the opportunities it needed.
  1958. 1:26:18Yeah.
  1959. 1:26:19>> Yeah.
  1960. 1:26:19>> Yeah. They don't have the the
  1961. 1:26:21strategies, the the things they need to
  1962. 1:26:24cope with everything.
  1963. 1:26:28>> These poor little guys. It'll get
  1964. 1:26:30better. You just have to keep up.
  1965. 1:26:32>> I hope so.
  1966. 1:26:32>> I'm just interested in all the research
  1967. 1:26:34that's going to come out. Like just
  1968. 1:26:36>> Yeah.
  1969. 1:26:37>> So interesting. Like what
  1970. 1:26:39>> do you know if there's is anything uh
  1971. 1:26:41being released or
  1972. 1:26:44No,
  1973. 1:26:44>> I don't know. I mean, I know there's
  1974. 1:26:45developmental research happening like
  1975. 1:26:47people are looking at, you know, we and
  1976. 1:26:49we know kids are two years delayed. Um,
  1977. 1:26:52they're seeing that academically
  1978. 1:26:55um in the testing scores. So
  1979. 1:26:57>> there's an occup there's a Portuguese
  1980. 1:27:00occupational therapy doing a research uh
  1981. 1:27:03I think uh related with her uh master uh
  1982. 1:27:07I don't know if you girls uh knew about
  1983. 1:27:10this um if she contacted you somehow I
  1984. 1:27:14can share the link she's um sharing a
  1985. 1:27:18Google form uh for us to um respond with
  1986. 1:27:23with our experience but I really got
  1987. 1:27:26stuck when she asked me like how many
  1988. 1:27:29kids were you receiving before COVID per
  1989. 1:27:32month and how how many kids are you
  1990. 1:27:35receiving new kids per month after CO
  1991. 1:27:38and I I was like I have no idea
  1992. 1:27:46>> but many
  1993. 1:27:49>> before I was like one or two and now I'm
  1994. 1:27:52like four
  1995. 1:27:54>> do I what see a difference in the number
  1996. 1:27:55of kids we're seeing.
  1997. 1:27:57>> Yeah. Per month before and after.
  1998. 1:28:00>> Yeah.
  1999. 1:28:00>> You felt you feel I saw a difference
  2000. 1:28:03too, but I don't know the numbers.
  2001. 1:28:05>> Exactly. And I I really wanted
  2002. 1:28:07>> numbers, but I've never like looked at
  2003. 1:28:09them.
  2004. 1:28:10>> Yeah. I really wanted to participate.
  2005. 1:28:12It's so interesting and we really need
  2006. 1:28:14this data, but I don't know how to
  2007. 1:28:16answer that.
  2008. 1:28:18>> Yeah. I mean, I would say on average I
  2009. 1:28:20was talking to like one or two families
  2010. 1:28:23a week.
  2011. 1:28:24>> Uhhuh.
  2012. 1:28:25um before COVID and now I'm it's like
  2013. 1:28:28four or five families a week are
  2014. 1:28:30contacting me.
  2015. 1:28:31>> Okay.
  2016. 1:28:31>> Every week.
  2017. 1:28:35>> Yeah. I just did four four intake calls
  2018. 1:28:37last week. I've got another four this
  2019. 1:28:39week. Um four or five this week. Yeah.
  2020. 1:28:45>> Yeah.
  2021. 1:28:46>> It's a lot. And psychologists in our
  2022. 1:28:48area are like they have six month
  2023. 1:28:50waiting lists. They're not even taking
  2024. 1:28:53anymore. And
  2025. 1:28:56>> yeah,
  2026. 1:28:56>> our weight list is about two months.
  2027. 1:28:59>> I felt just after COVID, but because all
  2028. 1:29:04of us were at home.
  2029. 1:29:06>> So just after COVID were a lot of kids
  2030. 1:29:08because uh on that month they were
  2031. 1:29:11waiting to start developmental
  2032. 1:29:15um appointment with the doctor and
  2033. 1:29:17everything. So there was like every
  2034. 1:29:20everything stopped but because of that
  2035. 1:29:23because of that because there was like a
  2036. 1:29:26break uh
  2037. 1:29:28>> I think there was the break people were
  2038. 1:29:30waiting and now they now they want to
  2039. 1:29:31move forward but I also think
  2040. 1:29:34>> um that we were getting a lot of
  2041. 1:29:36school-aged children for a long time
  2042. 1:29:38like six and seven years seven eight
  2043. 1:29:41year olds
  2044. 1:29:42>> and I think because parents were seeing
  2045. 1:29:45finally seeing the issues their children
  2046. 1:29:47were having at school um that they they
  2047. 1:29:51were like, "Oh, no. This is a real
  2048. 1:29:53issue." Like, I thought the teacher was
  2049. 1:29:54just kind of saying it, but now I really
  2050. 1:29:56understand what the teacher's been
  2051. 1:29:58saying. Like, so there's been a lot of
  2052. 1:30:00that. Um
  2053. 1:30:03>> and now we're Yeah. In the beginning,
  2054. 1:30:05and now we're getting a lot of young
  2055. 1:30:07ones, like the three and four year olds,
  2056. 1:30:08the ones that were born during COVID.
  2057. 1:30:10>> Um those are starting those kids are
  2058. 1:30:13starting to come with a lot of emotional
  2059. 1:30:14issues. We also have like four or five
  2060. 1:30:17little girls with um a lot of tactile
  2061. 1:30:19issues around not wanting to wear
  2062. 1:30:21underwear
  2063. 1:30:22um and then having trouble recognizing
  2064. 1:30:26if they've dry dried themselves enough
  2065. 1:30:28when they wipe after they go to the
  2066. 1:30:30bathroom
  2067. 1:30:32>> and very upset that they feel like
  2068. 1:30:33they're not dry enough and they
  2069. 1:30:35obsessively obsessively wipe themselves.
  2070. 1:30:39It's an interesting phenomenon that
  2071. 1:30:40we're getting like repeatedly from
  2072. 1:30:42families.
  2073. 1:30:44big emotional issues around toileting.
  2074. 1:30:47>> Okay.
  2075. 1:30:48>> Yeah, it's really interesting the things
  2076. 1:30:51that we're seeing. So, anyways, okay,
  2077. 1:30:55time is up. Um, our next group meeting
  2078. 1:30:59will be the 18th.
  2079. 1:31:02>> Wednesday. Yeah,
  2080. 1:31:03>> Wednesday. Yeah.
  2081. 1:31:04>> Yep.
  2082. 1:31:05>> Okay.
  2083. 1:31:05>> Thank you. Was a really nice discussion
  2084. 1:31:07today.
  2085. 1:31:08>> Yeah. Thank you you guys. All right.
  2086. 1:31:10Take care.
  2087. 1:31:11>> Have a nice weekend. Bye.
  2088. 1:31:12>> Bye. Have a nice weekend. Byebye.
  2089. 1:31:15>> Bye.

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