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#107 - NAIA Y SU GRITO A LA VIDA: Un Legado Imborrable en Roca Project — Transcript

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0:02Friends, Naya, the protagonist of this
0:04episode, is no longer with us. She
0:07passed away on July 18, 2026,
0:10surrounded by people who loved her. The
0:15entire Roca Project team sends a big
0:18hug to her family and friends. We truly
0:20appreciate her. Her wish was for this
0:24program to be recorded and broadcast
0:26after she was gone. And today we are
0:29going to fulfill that wish. So, dear
0:33Naya, this is our tribute in your
0:35memory and to your cry for life. Don't
0:39you
0:39realize how much you want to live until
0:41something like this happens to you?
0:43Naya, what is wrong with you and how
0:45are you? I have metastatic bone cancer
0:50in my head and
0:53I knew that this was not going well and
0:55I just shed a few tears and moved on. I
0:58swear that I found strength that I
1:00didn't know I had inside me. I
1:02mean, fortitude from minute one.
1:04Tremendous, huh?
1:05Yes. How are you going to tell a father
1:08that his daughter is going to die or me
1:11, a 15-year-old girl, that I have my
1:13whole life ahead of me? And there comes
1:17a point when you accept it, but it's
1:19not fair. It's
1:21not. It's true, he's right. It's not.
1:24Either of your parents would change
1:26places with you. I
1:29know.
1:30How do you make the most of your time
1:32with your siblings? I love them so much
1:34and we're much closer. I don't know,
1:37it's unconditional love. I'm grateful
1:40that it happened to me and not them or
1:43any other member of my family. I'm
1:46hallucinating. I mean, I said brave,
1:49but that's an understatement. Why did
1:53you want to come here? I
1:54know I have a lot to tell and I wanted
1:57to express myself and tell my whole
1:59story. Well,
2:01you asked me for this to come out when
2:03you were no longer here.
2:05My wish was for it to be published when
2:08my family was ready. Well, that's how
2:11it will be.
2:12Thank you.
2:13Thank you for trusting me. Thank you
2:15for awakening in me a little bit of the
2:18courage that you have. Thank you for
2:20teaching me here, sitting here, for
2:22teaching me a life lesson.
2:23It's very easy to trust you. People
2:26trust you behind the screen when they
2:28watch your programs. That's why so many
2:30people want to come, right?
2:38In mid-May 2026, I received a call from
2:43a doctor friend named José, who told
2:47me about Naya, a 15-year-old girl with
2:51complicated cancer, with no apparent
2:55cure, who was in palliative care. That
3:02girl had told her palliative care nurse
3:05, Ana, that she wanted to come to Roca
3:08Project to leave a legacy, to come and
3:11tell her story. I confess that I
3:16immediately felt a certain rejection.
3:18No, I can't do this. It was too
3:23difficult. But immediately after, the
3:27doctor said that she was Bea's daughter
3:29. Bea Gallardo, my high school
3:33classmate since I was 12 years old and
3:35a person with whom I have always had a
3:37loving relationship. I was immediately
3:41overwhelmed. My heart sank and I said
3:47yes. When I spoke to her mother, Naya's
3:51mother, I remember her telling me, "
3:53Carlos, aren't you going to do
3:55everything you can so that Naya can
3:58come to Roca Project?" And here she is.
4:04That's why today and now on Roca
4:07Project I have with me Anaya Yabrés,
4:10an extremely brave girl of 15 years old
4:13,
4:14almost 16. Yes,
4:16almost 16, who has come to the program
4:19to show that while there is life, every
4:23minute is worth living intensely. How
4:27are you, Naya? Welcome.
4:28Thank you very much. Well, a little
4:31nervous, but good. I've been
4:34thinking about this interview for a
4:36while. I've been wanting you to sit
4:39here since I said yes. And it's been a
4:42bit of a race against time, huh?
4:44Yes. How was it? Why did you want to
4:46come here? And how did you feel when we
4:49said yes?
4:52Well, when you said yes, I was
4:54distressed,
4:56because it was, well, a wish that I had
4:59, but that I hadn't planned to express
5:02in May, you know? I wanted to do it
5:08later, but having deep conversations,
5:11with Ana, who asked me to make
5:16my life as comfortable as possible, so
5:21I ended up telling her this wish and it
5:25was said and done when they told me yes
5:30, practically the same day. They got in
5:34touch with you. Yes, I stayed, let's
5:35get out of here.
5:38I spent a few nights without sleeping
5:40because I was so nervous, I was so
5:41nervous.
5:42Yes, I feel bad about that because, of
5:44course, I immediately took action so
5:46that you could come.
5:47Yes. And I appreciate it because it's a
5:49very good thing. But,
5:50of course, of course, but it's a bit
5:51scary, isn't it? At first.
5:53Yes.
5:54Why did you want to come here? Because
5:57I know I have a lot to tell, but it's
6:01not hard to know who to tell,
6:07when, and you don't just start telling
6:10hard things you've experienced just
6:12like that. Hm.
6:15And I wanted to express myself and
6:18explain my whole story well,
6:22finding yourself well and doing it well
6:24with the right time and space, you mean
6:26, right? Yes, of course. I wanted to
6:30delay it, as I told you, it wasn't in
6:33my plans to express this desire, but
6:35Ana told me, "You have to do it as soon
6:38as possible, because now you're fine,
6:41you're feeling fine."
6:43Sure.
6:44And here I am, right?
6:45Sure, sure. Naya, what do you have and
6:48how are you? Well, I have bone cancer,
6:55a metastatic osteosarcoma in my head,
7:00which, to begin with, is not typical to
7:05have in your head. Sarcomas are usually
7:10found in the legs, knees, and
7:13extremities
7:15of the body, and well, I have it in my
7:18head with pulmonary metastases. Has it
7:21spread to your lungs?
7:22Yes. Right now you're
7:24fine. Right now,
7:26yes. In your lungs. Yes, my head is a
7:29little uncomfortable,
7:31but fine.
7:33Sure. Uh, have you had days where you
7:35don't feel well?
7:38Yes, there are days when I'm more
7:40exhausted, but they're due to different
7:44factors, like
7:46resting more, resting less, or the
7:49treatments.
7:51Sure. How did this start? Because
7:53you're 15 years old. How many months
7:55ago did they detect this?
7:58Well, I'll explain to you a little bit
8:00about how
8:02I was diagnosed. At the end of 2024, I
8:06noticed a lump, a lump on my head, but
8:09well, since it didn't hurt at all, I
8:12didn't pay attention to it because,
8:15like, I told my friends, my parents,
8:18but I played a lot of basketball, so I
8:21would beat myself up all day long. Sure
8:24.
8:24And it could be a bump,
8:26a bruise.
8:27Yes.
8:29And then in 2025, at the beginning, I
8:31started getting throbbing pains and the
8:34lump was hard there.
8:36In what area, Naya?
8:37Here. Okay.
8:40And well, I get throbbing pains,
8:42nothing unbearable, but you say, "I
8:45don't understand this." But I was calm
8:50as it was, but I explained more to my
8:52mother, my mother, and my father, "I
8:54have this, it hasn't gone away." And so
8:58there, my mother made medical
9:02appointments, but well, it takes weeks
9:06for the appointments to arrive. One day
9:10we went to the emergency room because
9:13they were giving me quite a few
9:15injections, they did an X-ray, they
9:17said they couldn't see anything and
9:19they were like, how can they not see
9:21anything if you can see with the naked
9:24eye that I have a huge lump there. And
9:29well, and from that point, from general
9:32practitioners to various specialists in
9:35Menorca.
9:37Mm,
9:38and months went by, I spent months
9:41going to internal medicine, who did a
9:44CT scan and told me they couldn't see
9:47anything, that they could see the lump,
9:50but that maybe my skull had grown.
9:53Oh.
9:53And that was it.
9:54Like a protuberance. Yes, like, I don't
9:57know, like a part of my body had grown
10:00and I went to anaesthetists, to surgery
10:04. Well, and we were already like, I've
10:09been like this for months, this isn't
10:12normal, it's not going away and I've
10:15been like this for half a year now and
10:17they sent us to surgery, but because
10:20they always told me about a biopsy, but
10:23logically, you don't have to be a
10:25doctor to understand this. It's in your
10:29head. There was no neurosurgery in
10:32Menorca. Yes, Menorca is very limited
10:34in terms of issues.
10:35Yes, Menorca is very limited. So it was
10:37logical that they had to refer me to
10:40Mallorca, but they didn't pay much
10:43attention to us. They made me go
10:45through normal surgery. Well, and my
10:47mother moved heaven and earth to have
10:52all the tests done. Hm. And that
10:56everything be done as fast as possible.
10:58She even met with the hospital manager
11:01because otherwise he was going to take
11:03me to Mallorca and he was going to show
11:05up there saying
11:06that we were on vacation and that I
11:10felt bad and I had this.
11:11Yes,
11:12because they didn't pay much attention
11:14to me. Until finally, in May 2025, I
11:18think, a neurosurgeon from the hospital
11:23who comes every 3 months, I don't know,
11:27came and gave me an appointment with
11:31her and she just touched my head, I
11:35mean, she didn't even have to inspect
11:39much. She did like this and told me, "
11:41This has to be removed, you have to
11:42have surgery." Mm. That's when I got
11:46really scared.
11:47Of course, you felt scared. Hm.
11:49Yes, because of the surgery, because
11:51otherwise I was calm. I mean, it hadn't
11:54happened, I had
11:55spent months going after doctors, but
11:57not with anxiety, you know? No, I
12:00wasn't worried. I felt it was something
12:03benign, that, I don't know, it had
12:04grown and that's all, it's nothing. But
12:07seeing that concern about this, it has
12:09to be removed, right? That's when it's
12:10already activated.
12:11Yes. That's when the whole operating
12:14room and anesthesia scared me. Yes,
12:18that's what I was
12:19afraid of, your head. Of course, it's
12:23your head, not a leg. Well, the
12:28neurologist told us, "I need an MRI,
12:31and well, it takes a long time to get
12:34them, but my mother didn't do anything
12:36to get them as soon as possible
12:40and to give me a date for the operation
12:44, which was June 5th, in other words,
12:49almost a year and a bit ago, a
12:52little over a year. We're recording
12:53this at the end of June,
12:55okay?
12:56Yes. So, on June 4th, we left for
13:00Mallorca, I slept there and went to the
13:03operating room first thing in the
13:06morning. I was, let's say, super
13:08nervous, I wasn't really scared of
13:13having the operation.
13:17But anyway, it was a very complicated
13:21operation. They told us it would be
13:24about 3 or 4 hours and that's it, in
13:27the end they put you to sleep. I didn't
13:31understand anything, but it turns out
13:34that my parents explained this to me a
13:36few days later, when I was already
13:39awake and everything, that the
13:41operation was complicated because the
13:46tumor was strong and it was attached to
13:51veins,
13:53and of course they were trying to
13:56remove it, like, cut it open and
13:58accidentally cut it open. They cut the
14:02main part of my brain and I had a
14:06major hemorrhage in the middle of the
14:08operation.
14:09Okay.
14:11Well, I don't know how they did it
14:13right, they sewed the part up. Uh, the
14:16operation lasted 9 hours.
14:18Wow.
14:19Yes. I can't imagine how bad my parents
14:23were. All I know is that my entire
14:26family from Menorca came suddenly when
14:28they said it had gotten complicated.
14:31Yes.
14:33And I was in the ICU for a few days, I
14:36mean, they operated on me on Thursday
14:40morning. I woke up from the anesthesia
14:47on Friday, afternoon, night, but I was
14:52conscious on Saturday because I had
14:54been under a lot of pressure
14:57and so my vision was blurry, I was
15:01vomiting, I wasn't well. But they told
15:05them those 24 hours were critical, a
15:07matter of life or death. It
15:10could have gone very badly or it could
15:14have gone very well, which luckily is
15:17how it happened. Do
15:19you regain consciousness after the
15:21operation? Yes, because I could have
15:25died during the operation from this
15:29brain hemorrhage or I could have been
15:32left dazed if not. of not knowing who I
15:37am,
15:38but I recover perfectly. I mean,
15:41and they manage to remove the tumor. It
15:43is a tumor, I understand, right? They
15:45remove it during the operation. They
15:47remove 10 cm of my skull.
15:5010 cm of...What are you saying?
15:53Yes, I just keep forgetting, I keep
15:54forgetting. I'm a little nervous.
15:57Um, yes, they remove a 10 cm piece of
16:00my skull, which is where the tumor was
16:03mainly on the outside, which was where
16:06I could feel the lumps, but also on the
16:09inside. I
16:11mean, I mean, it doesn't just grow
16:13inwards and not outwards. I don't even
16:16realize I have a tumor
16:19and yes, they remove a good piece of my
16:23skull and the neurosurgeon, who is a
16:26star, reconstructs everything with
16:30cement, prosthesis, I don't
16:34know, it wasn't like cement and screws.
16:38That's why you're wearing a
16:40handkerchief, Naya, because you have a
16:41scar or
16:42Yes, they opened me up from here, from
16:45half my head to Here. Let's
16:48see, I had
16:49about 40 staples in my head. Yes, I
16:54have a big scar and, well, the lumps
16:58that are still there
17:00because there are new lumps. Sure, they
17:03try to take as much as they can. It
17:05seems that my head looks great with a
17:07round shape, very cute. I'll be
17:10hospitalized there for two weeks
17:13and then return to Menorca. Um, I'll
17:17spend six days in Menorca, during which
17:20I was happy with life because I felt
17:22perfectly fine. I had faith or hope, I
17:26was very calm, I wasn't worried about
17:29what that lump could be. I
17:32felt or wanted to feel that it was
17:34benign, right? So I went with my
17:36friends, everyone was very worried
17:38about me, but when they saw me, when I
17:41returned, everyone was calm because
17:43it's as if nothing had been done to me.
17:46They've
17:46removed the bad stuff and that's it,
17:48right?
17:48Yes. And well, six days later they call
17:52us and we go back to Palma, and I tell
17:55my friends," No, but I might go one day
17:58and I'm returning just so they can
18:00check my head after the operation, see
18:03how it's healing, and that is all. "And
18:07in these pediatric spaces, the hallway
18:11has like two sides and in the center,
18:15well, where all the nursing is, let's
18:19say. And there's one side that's where
18:23I was when I had surgery, which is for
18:26admissions of normal children or those
18:28with other problems,
18:31and then the oncology hallway. So, when
18:35we arrived, the nurses told us to go to
18:38the room, I don't know what number it
18:42was, but it was the oncology hallway.
18:46And I was still there calmly. I mean,
18:49yes. Because you didn't understand it
18:51or because you didn't
18:52understand it, but I didn't beat myself
18:54up. I was calm.
18:57Mika, my main referring doctor, and Isa
19:00, the oncologists, come and take my
19:03parents out of the room and explain it
19:07to them, and they go back in. I was
19:10still calm there watching TikTok. And
19:14your parents? My parents were outside
19:18with the doctors and when they came in,
19:19they were devastated
19:22and after explaining it to them, they
19:25explained to me, I don't remember the
19:28words very well, that well, I have
19:30cancer, a Sarcoma, which hasn't yet
19:33been identified because there are many
19:38types of sarcomas and I'm going to
19:40receive chemotherapy, the goal of which
19:43is to cure it. And I just shed a few
19:47tears and moved on. I swear I found
19:50strength that I didn't know I had
19:52inside me. I mean, I took it as if it
19:55were a cold, a personal challenge, I
19:57don't know. I was very sure of myself,
20:00that I would get through this because I
20:04felt good. I mean, in fact, the first
20:07people had to do more tests on me and
20:09such, but what I told my parents was,"
20:11Come on, let's go to a hairdresser's,
20:13get my hair cut shoulder-length and
20:15have them make me a wig with my hair,
20:17that's it,
20:19okay?
20:20And let's get hats, and so on, I mean,
20:24determination from the very first
20:25minute. Tremendous, huh? Yeah, I don't
20:28know, I didn't take it badly, I faced
20:30it very,
20:31very well. Do
20:33you see why I called you a brave girl?
20:38Well, I was there at the end of June,
20:40where they were doing tests on me, MRIs
20:43, and X-rays. And on July 1st of last
20:48year, they operated on me to put in the
20:50Portacat, which is like a little
20:53capsule that they stick the needle into
20:55you like for a blood test, and the
20:58treatment goes through there. And on
21:02July 2nd, I did my first chemo. Well,
21:07let's see, obviously you find the side
21:10effects bad, but anyway. What's it like
21:12to
21:12have chemo? The first thing you start
21:15to feel
21:17each time, even if it's the same
21:19chemotherapy, it felt different to me.
21:24I mean, the first time it seemed great
21:26and when it was over, well, I was
21:28vomiting everything, the second time
21:31they gave me the same one it was like
21:33nothing, like nothing. The third time,
21:38I had a spell and almost fainted. I
21:41mean, each time it could be the same
21:43drug
21:44but each time you can feel it
21:46differently. Well, I started with
21:50chemotherapy that combined something
21:52called methotrexate, which was the
21:55first one they gave me, and then
21:57cisplatin adriamycin, in other words,
22:00three different drugs
22:04that they programmed for you and you
22:06had to build up defenses because, of
22:08course, it kills the bad stuff, but
22:10also the good stuff. Yes,
22:13chemotherapy,
22:14of course, is like killing flies with a
22:16cannon, right? And it goes on like this
22:19all summer. They did five cycles on me
22:23and then, at the beginning of September
22:26, just when it started, they did
22:28another MRI, a CT scan to see how it
22:31was going, and they also operated on me
22:38because I had metastasis at that time,
22:41the local tumor. Then I had the
22:45pulmonary metastasis, which was just a
22:483 mm nodule in the lung. And then I had
22:53a nodule here and another one here,
22:56okay?
22:57That could be felt. Here I have the
22:59scar and such, and they also operated
23:02on me from here to do the necrosis test
23:04, which if not incorrectly calculates
23:06the percentage of dead cells
23:10and there were only 30%, which for them
23:13is very little.
23:15Okay?
23:17So from there we change treatment
23:20branch. I
23:22mean, let's say they see that the chemo
23:23is not doing what it was supposed to do
23:24. It is not enough for them, the
23:27results are not good enough and apart
23:31from the fact that I had poisoning that
23:34they considered severe, I was feeling
23:37fine, but my kidneys were bad, I felt
23:41bad during one of the chemotherapies,
23:44so they gave me one more cycle of
23:47Adriamycin Platinum, I had already had
23:50six, and then a new line of treatment:
23:55Metoposide and Famide. And
24:00how easy it is for you to remember
24:02names, huh? They are not easy.
24:04Yes, I remember some, others I don't,
24:07but I was interested in things like,
24:09it's unfortunate, I wish we didn't have
24:11to hear all this, but I don't know,
24:13whenever they came to give me results
24:15and tests, like how my defenses are, I
24:18don't know, I'm interested in the
24:19biology of the human body.
24:22Look.
24:23Yes. And well, new 6-day chemotherapy.
24:30Oh, and combined with immunotherapy,
24:34which they gave me a few, one, like
24:38almost 20 of these immunotherapy
24:42sachets.
24:43While this is happening, are you
24:44hospitalized? Yes, I'm hospitalized for
24:48...Sure, I didn't explain it well, uh,
24:50during the explanations it was great,
24:53but I'll ask you questions to get more
24:55information.
24:57Yes, during the chemotherapy, I am
24:58hospitalized, there are chemotherapy
25:00sessions that last hours, there are
25:02others that last days and you have to
25:04stay there for days, weeks and we'll
25:06talk, are you still in Mallorca, then?
25:08Of course, I haven't explained this. I
25:12was just diagnosed, I stayed in
25:14Mallorca, I wasn't going back to
25:17Menorca, I haven't received any
25:20treatment in Menorca because they don't
25:23have pediatric oncology there and since
25:27I'm a minor, I'm in pediatrics even
25:30though I'm over 14. Well, yes, I was in
25:35Mallorca. Everything, everything I've
25:37experienced has been in Mallorca, in
25:40these spaces. Well, more chemotherapy,
25:44some of which made me feel better,
25:46others worse, and I fainted. It was a
25:51bit like a facelift, but my blood
25:53pressure dropped and I fainted. They
25:57also did neurological tests on me, they
26:00saw something strange in the tumor
26:03areas, like damage. And well, I've been
26:06taking Kepra, which is a preventive
26:10medication for elliptical seizures, I
26:13always say it wrong.
26:15Epileptic.
26:16Epileptic, I always say it wrong. Since
26:19November or so, well, I've only
26:22received two cycles of those chemos
26:25because they're given every three weeks
26:28, the body has to recover with time and
26:31such. And at the beginning of December,
26:36I was admitted because I had to have
26:38another cycle, but they had just done
26:43another re-evaluation of the MRI tests
26:49and all that,
26:51okay?
26:51And the results were even worse
26:55after the chemo.
26:56Hm. The chemo had not been effective at
27:00all, I would say less than the previous
27:02first-line treatment,
27:06so it did not do me any good because
27:09each chemo has its side effects, such
27:12as neurological and heart effects.
27:16Sure. Yes, it does weaken you, but it
27:18does not weaken the cancer. Sure, the
27:21risk-benefit ratio did not make sense.
27:25So they sent me to Menorca, because
27:29luckily I could go there every month,
27:32at least for a couple of days, to see
27:35my family. The longest I have been
27:38without Menorca was a month and a bit.
27:42It is good that it is also difficult
27:44because you miss your home, your
27:45siblings. Sure,
27:47everything.
27:48When you say that they send you to
27:50Menorca, you mean that they give up on
27:52you.
27:53No, no, no,
27:54no. Now I mean during the treatment,
27:57okay?
27:58Uh, during the process, they sent me to
28:01Menorca, so I could relax,
28:03okay? Like, rest.
28:05Yes. When I get better, I mean, after
28:09chemo, I boost my defenses and I still
28:11have a few days or whatever for the
28:13next one. Well,
28:16if possible, the doctors always listen
28:18to my needs, everything, and they send
28:21me to Menorca, but to relax, to be with
28:23my friends, with my family, right? I'm
28:27still undergoing treatment at that
28:29point. It's the end of 2025 and well, I
28:37spent quite a few days and weeks
28:38without treatment because they had to
28:40discuss everything with the National
28:42Committee to see what the best option
28:44was,
28:45because it's a rare case in childhood
28:48cancer.
28:48Yes, it's unusual. Yes, to start with,
28:52because of the area it's in, it's not
28:54usual. It progresses quickly, it's very
28:59resistant. And well, they told me that
29:03the new branch of treatment that I was
29:06going to master was going to be
29:08radiotherapy,
29:10which my parents and I tried to insist
29:12on being proton therapy because it is
29:15less toxic, but it is only available in
29:18Madrid, but there is a long waiting
29:20list and it had to be radiotherapy,
29:22okay? In 16 high-dose sessions combined
29:29with chemotherapy, the gene that is
29:32supposed to enhance the effect of
29:35radiotherapy
29:38and well, that in January and of course
29:43, radiotherapy can leave you with a lot
29:46of inflammation for months. So, I had
29:51just finished radiotherapy, they didn't
29:53do any tests or anything, they gave me
29:55more chemo. And then in March they did
30:03an MRI and a CT scan and they showed
30:13great progress, like great growth. Of
30:18course. That's when I was told in
30:21December that the second line of
30:23treatment wasn't going well, I was
30:25already aware of what my situation
30:27would be, because in the end, whether
30:30you like it or not, you search the
30:32internet, and I knew that this wasn't
30:36going well. In the end, I felt the
30:40lumps and I saw that they were making
30:42them smaller or that they were keeping
30:44them the same size. I already knew what
30:50to expect, I was aware, but anyway, I
30:53remained calm because it was out of my
30:56hands. The only thing in my hands was
31:02to be there as best as possible and
31:04receive the treatments and the rest was
31:08in the hands of the doctors and science
31:11and how my body reacted. And on March
31:1927, we met with my main doctor, my main
31:26oncologist and the palliative care team
31:29, the palliative care team that I
31:31already knew from before. In fact,
31:35three or four months after starting
31:37treatment, they came to see me because
31:40they knew that it was a complicated
31:42case. Well, I was there with my parents
31:49, the psychologist was there too, and
31:53they told us that there was significant
31:57growth, that they had tried everything
32:01they could give me and,
32:03risk-benefit-wise, there was nothing at
32:07the moment that would cure me, and that
32:15they were sending me to Menorca so that
32:19I could live my life there until my
32:22body could take it, let's say. Of
32:28course, that's what I react to. I
32:30didn't even shed a tear. I was a little
32:33nervous, I knew they were going to give
32:35me bad news, but I didn't expect them
32:37to tell me, "That's it, no, we don't
32:39have anything to give you." Well, as
32:43you know, they gave me the pill, the
32:46anti-nip cape, which is a pill from a
32:48clinical trial, but it doesn't cure, it
32:51only delays, that's its function. And
32:57the moment they told me that, I was
33:00filled with rage, not with the doctors,
33:03but with the
33:06helplessness that I've spent there for
33:0989 months fighting with everyone. He
33:12said that they had never seen me shed a
33:15tear, I almost did it very well, that
33:18it was very strong and it was like you
33:21didn't want to accept it, you didn't
33:24want to accept it because I really
33:27wanted to live, you know? And to be
33:30told that it wouldn't be possible, it
33:33left me feeling terrible and above all
33:36I had a hard time seeing my parents in
33:39such bad shape. It was very complicated
33:45,
33:46it was very complicated to receive that
33:50news and well, and on March 27th, my
33:53life changed once again for good. I
33:58went back home and nothing, and that
34:04same afternoon I met up with my friends
34:06. A lot of friends came to my house. I
34:10acted like nothing had happened. I
34:12don't have that capacity, I think, to
34:17have a good time, even when I was in a
34:22bad situation. And I wasn't like that,
34:27I don't know, since I was diagnosed
34:31I've seen a part of myself that I
34:34didn't know about and I don't know, the
34:38hardest moment, without a doubt, was
34:41telling my
34:42little brothers. They are the people I
34:47love most in the world and in a way I
34:53am grateful that it happened to me and
34:55not them or any other member of my
34:57family because I really couldn't have
34:59endured that. I am hallucinating. I
35:09mean, I said brave, but that is an
35:16understatement. Let's see, let's see,
35:27what is that first moment like with
35:29your parents, with your family, when
35:30you have to talk about this? I mean,
35:32the doctors tell you that there is no
35:34way out, right? So, uh, the certainty
35:37of death becomes present in your life.
35:41Yes.
35:41When you want to live. Is
35:45there an initial conversation with your
35:47parents to talk about this? With Bea
35:49and Paco, I don't
35:50think so. Mm. I don't like talking to
35:57them about this, because in the end,
36:00what I suffer the most for is myself,
36:04for my family. Talking about this so
36:09directly with them is like, “No,
36:13don’t tell me anything” or “I
36:15won’t tell you anything” because,
36:19of course, how are you going to tell a
36:23father that his daughter is going to
36:27die or me, a 15-year-old girl who
36:30doesn’t have my whole life ahead of
36:34me, as they say, you know? That’s why
36:37you didn’t want them to be here.
36:39Exactly, because you suggested that my
36:43mother come, but I
36:45know I wouldn’t have expressed it in
36:48the same way or when, of course, now
36:51I’m in palliative care, then they ask
36:54you questions and you have
36:56conversations that are extremely
36:58uncomfortable and you don’t want to
37:01have them because they ask you things
37:04that you’ll never have a 100%answer
37:07to. When they ask me, where do you want
37:11to be? In the San Clemente cemetery in
37:14Maón, you want them to burn you to
37:16ashes, it’s like, what do I know?
37:19Of course, I don’t
37:21want to, you know? Straight up.
37:22Of course, you don’t even want to
37:24consider that possibility. No,
37:26no, in the end I have it, I talk to Ana
37:30, who is an angel fallen from heaven,
37:33the nurse I am with in Menorca,
37:35honestly. I connect very well with her
37:40and she is a very good person and she
37:42helps me a lot in every way. But, would
37:46I rather die? In the hospital or at
37:50home? I don't want to die, you know? Of
37:55course,
37:55but anyway, in the end you accept it,
37:58that it is the situation you have
38:02and you have accepted it.
38:05I feel that partly yes, partly no,
38:07because it is what it is, I mean, I
38:09have accepted that it is what it is and
38:11I cannot change it. But one thing I was
38:15talking about with Ana the other day is
38:18acceptance, that she thinks I am doing
38:20very well, that there are adults who
38:22cover their eyes, if I don't see it, I
38:24don't believe it
38:26and that's it. And I do see it, but the
38:29will is another thing. So it's like I
38:33know it is what it is, but I don't want
38:35it, I don't want it. No, at first,
38:40every time I returned to Mallorca, I
38:45begged the doctors to please find
38:47something, and I know that if there was
38:50something better, they would send me
38:53wherever they needed to, but they
38:56didn't consider it. And I spent many
39:00weeks with my mother and everyone
39:02searching for information on the
39:05internet, writing to centers on the
39:07peninsula, private and public centers.
39:12Everyone already knows my house, like
39:16the national bone cancer committee, and
39:19there comes a point when you accept it,
39:23but it's not fair. It's not fair. It's
39:28not. It's
39:30true, he's right. It's not. Any of your
39:35parents would change places with you. I
39:40know, I know, but I'll tell you what I
39:47said. I'd rather be me than my siblings
39:52, but what I'm really afraid of is the
39:56time to go, to leave it there because I
40:03feel like it's like when you're
40:04anesthetized in an operation, you're
40:06unaware of everything, you just kind of
40:08cease to exist, let's say.
40:11Yes. But life goes on and on, it's like
40:16, no, no, I can't imagine leaving the
40:20world. I won't even find out in the end
40:24, but I can't imagine it when I see
40:26that the time has come. I don't know.
40:32Do
40:33you think death is a full stop or is it
40:36a full stop? I've always thought,
40:40because I've always been an atheist,
40:43that it's a full stop,
40:46but I like to, I don't know if I should
40:49think sometimes to tell myself good
40:52things. Um, although I really think
40:56about it deeply and I say, "No, it's
40:58not like that. How could it be like
40:59that? I wish." I say, "But I'm going to
41:03be fine. I'm going to go with my
41:06grandparents, with my grandfather, who
41:08I almost, well, I knew him, but he
41:10passed away when I was almost a year
41:13old and I'm going to be there with my
41:15family and I'm going to be at peace,
41:17calm, or that's how I would like it to
41:20be, right? And as that moment
41:25approaches, that possibility has more
41:28weight. I don't know. I don't know. I'm
41:38just that, since I'm fine now and I've
41:40always wanted to know everything,
41:42everything about my treatment...because
41:45the doctors are very good, the
41:47professionals, and they're very kind
41:49and human, I mean, they have a lot of
41:52humanity and they listen to you a lot.
41:56And when you say:" That's it, I don't
41:57want to hear any more, talk to my
41:58parents ", they respect it, but I've
41:59never been like that. I've always
42:01wanted to know absolutely everything.
42:05Because I wasn't scared. I wasn't...I
42:08wasn't afraid of all this.
42:13But what I didn't want to ask or want
42:15to know is what prediction, because in
42:17the end you can never know 100%...it
42:20could be more time or Less time,
42:23but what time prediction
42:27do you think I have left? I don't want
42:30to know because I think I'm going to
42:32live in anguish.
42:33Sure.
42:34So now, despite how bad I am, I still
42:38feel fine, I don't see it as necessary
42:42to put that burden on myself, which is
42:45also more emotionally burdensome.
42:50They often say that we should live our
42:53lives as if it were our last day. That
42:56can happen to all of us. I mean, death
42:59is uncertain
43:01for you and it is for me.
43:02Yes,
43:03because it may seem health-related or
43:07maybe I have something I don't know. I
43:09mean, imagine, I could be here fine and
43:11tomorrow something could go wrong. This
43:13is the same for everyone.
43:14Yes, you don't have an accident,
43:15whatever.
43:16Yes. A guest who came to the podcast a
43:19while ago, Francisco Torralba, said
43:21that death is democratic. Death is
43:24democratic. It affects us all, it
43:26treats us all equally, right?
43:28Although sometimes it comes too soon.
43:33What does that mean for you, I mean,
43:35how do you live your life knowing that
43:37life is not going to be as long as it
43:38is? that you would like? I think that
43:44many people, myself included in the
43:47past, have a very normalized view of
43:50health
43:53and it is a great gift.
43:55It is true,
43:56it is a great gift. Like, when you were
44:00little, I don't know, the typical thing
44:04that happens is asking the Three Wise
44:07Men:" and mom, health "and you, like,"
44:10well, I'll have this toy "...But it is
44:14a gift that we do not know how to see
44:17well because it is so normalized and...
44:20and I, since I was diagnosed, have
44:26valued things so much that I did not
44:29give them the value they have because,
44:33gosh, how I would love for my problems
44:37to go back. Oh, I can't keep up with
44:40all the basketball days I have and the
44:43exams. I can't keep up. I wish all
44:45problems were like that.
44:49So, you put
44:51everything into perspective much more,
44:52don't you?
44:53What things do you value most now? The
44:58simple things, I mean, everything,
45:03everything.
45:05For example, what are you enjoying the
45:07most with your parents? Well, the
45:15concerts I go to with my mother...than
45:17in the hospital, well, you have to
45:19weigh: everyone party, like your life
45:21is on hold, but the Machigue guys. And
45:24what made me really excited and happy
45:27there, when I was in the hospital, was
45:30that they bought me, well, concerts
45:32with the hope that I could go, and well
45:35, I enjoy that and value it a lot.
45:38Which ones have you been to? Now, very
45:41recently I went to Mallorca, to Dani
45:43Martín and Aitana and well, and next
45:45month, well, in July, on my birthday,
45:48I'm going to see Bruno Mars, I'll go to
45:50Shakira, Morat,
45:53that makes me really excited. You've
45:55had
45:55a good tour, all in different places.
45:58Of course, right?
45:59Yes. Well, these have been in Mallorca
46:01and no and all the ones I have left are
46:02in Madrid. Sure,
46:06but I don't know now, I feel I value
46:09everything so much. It's like, I don't
46:12know, a friend who has come to see me
46:14even if it's just for an hour. Thank
46:17you. Mm. And I owe a lot to many people
46:23. I've had very good people around me
46:27who have shown me a lot and have been
46:30very important to me. That I was like
46:37in Mallorca in a bubble all by myself.
46:41If you didn't write to me, I would
46:44hardly write to you. It was very...You
46:48were locked up there. It's just
46:53that I was alone, only my parents were
46:55there. And when my best friend Inoa
47:00came over, she would come over whenever
47:02she could, she's the best. I was so
47:07grateful for it, you know?
47:11Anything.
47:13How do you make the most of your time
47:15with your siblings?
47:19What are their names, to start with?
47:21Kirian and Carla.
47:22And how old are they?
47:24Kirian is 14 and Carla is 10.
47:28Okay.
47:30Before, we weren't exactly close,
47:33obviously we love each other like
47:35siblings, but my siblings are so
47:37annoying. And since I was diagnosed, I
47:42swear, it's like I felt, especially
47:45because of what I'm suffering, it's for
47:49them and it's such a deep love and I
47:52love them so much and we're much closer
47:55and I don't know, it's this
47:58unconditional love. With them who are
48:03younger, have you talked about that
48:05future moment to
48:07prepare them or do your parents do it?
48:10I didn't explain it to them like it was
48:12just my father, my mother and I,
48:16but as much as When I was diagnosed, we
48:18told them, “Look, they’ve done the
48:21tests, and I have this, and I’m going
48:23to be here while they give me treatment
48:26.” Well, in the end, Kirian is a
48:31closed person, he doesn’t express his
48:33feelings, he sheds a few tears and does
48:36this and holds them in. And Carla, on
48:39the other hand, is super expressive.
48:41Carla, as I know, was devastated by her
48:43world and that broke me a thousand
48:45times,
48:46but I explained it to them and when we
48:49returned to Menorca, of course,
48:51they’re not stupid and they need to
48:54know that it’s not at all nice to
48:56have to tell them. It’s something I
48:59didn’t want to say, but I had to.
49:00Of course, they have the right, right?
49:02And yes, and they broke down and I,
49:08well, I always try to be strong for
49:11them because if I see them broken down
49:17I feel worse. I mean, I’m very strong
49:23and I’m not afraid of feeling bad
49:26myself. What I can’t stand is for
49:30them to be. Of course.
49:33So, well, we explained it to them, they
49:35cried a lot, they were very worried and
49:38I said," Come on, let's go, it was a
49:41very windy day and come on, let's go to
49:43the park with the scooter, something
49:46like that, I mean, to distract them, to
49:50spend some time with them and also have
49:57to tell them, obviously, to my closest
50:00friends.
50:02Nowadays, do they know the reality of
50:03your life, Naya? Your friends?
50:05Yes, yes, my
50:07close friends.
50:09Close friends, yes, the people I
50:11consider my friends, yes, because I
50:13can't hide it, I can't lie to them,
50:15it's not fair for them to tell me, "I'm
50:17fine now." And then suddenly one day to
50:22the next it turns out that I'm not and
50:24that I'm leaving people because when I
50:27returned to Menorca I decided to go
50:29back to high school to do the last term
50:31that I had done remotely in the
50:33hospital classroom,
50:36which was one of the best things about
50:39Mallorca because of course, as I was
50:41telling you, I was in a bubble there,
50:43there was no
50:45one to get me out of that cloud, I
50:47don't know.
50:48Yes. But there is the hospital
50:52classroom with wonderful teachers,
50:56beautiful people who I love very much,
51:00they have helped me a lot. They did
51:03more than just teach, of course, but I
51:05continued the course from there. When I
51:08returned to Menorca, I decided, even
51:10though it was uncomfortable, because I
51:12was going as a Spanish person, I
51:14decided to go back to high school
51:16because, well, high school is just, ugh
51:19, how boring, because you really
51:21appreciate it when you don't have it.
51:24Hm. Being able to be with your
51:26classmates, learning, you see the good
51:27part, right?
51:28Yes. And no, I didn't do anything, I
51:31mean, during the course I thought about
51:33it a lot, but when I returned I went
51:35there. Not with the aim of studying, I
51:39didn't study at all when I returned to
51:41Menorca, but with the aim of being with
51:45my friends
51:47and spending and letting the hours go
51:49by and having a good time.
51:51It is important to take time for
51:53yourself at these times. Yes, but when
51:58I first got back around April, I don't
52:00know, I was strong, I did great, I was
52:03running around, I didn't stop, and
52:07lately it's been harder for me because
52:12I stopped sleeping well for a month and
52:14a bit. So, that was causing me a lot of
52:19discomfort. My body needs a good rest
52:24after everything it's been through.
52:29And when I was in those weeks of not
52:32sleeping, I got into a cycle of not
52:34leaving the house, of not seeing anyone
52:36, and now I'm trying to get out of it
52:39little by little. Now the heat doesn't
52:42help at all. Of course, of course. But
52:45I am aware that I don't always do it,
52:48no, I don't always do it so well, but I
52:51do have to make the most of my time,
52:54just as I have to allow myself to feel
52:57bad and if I don't feel like doing
52:59something, well, not forcing myself,
53:02but also sometimes forcing myself to do
53:06things that, even though they're hard
53:09to start, like in high school or
53:12whatever, will later feel good to me.
53:15In addition to those cool concerts that
53:18you mentioned, are there other things
53:20that you've set out to do to squeeze
53:22all those minutes of life?
53:25Well, things as such, right? But I went
53:28back to Menorca and I'm telling you,
53:30Dad, Mom, let me get a tattoo. They
53:33would never have let me before.
53:35Well, now I have seven tattoos.
53:39You're taking advantage that they don't
53:40say no. Yes, a little bit.
53:42Okay, okay.
53:44The belly button piercing, which my
53:46father didn't do, a little bit, yes to
53:48everything.
53:49Yes,
53:51obviously being responsible because
53:53there are things or places that I can't
53:56do, I can't be, I mean, I can't get out
53:59and drink alcohol now because who knows
54:01what with the pills and everything I've
54:04been carrying around,
54:07you know? Sure,
54:10but I do try to enjoy myself at least
54:12at home with my friends and the company
54:13. Do
54:15you have a partner, Anaya?
54:16No, no, no.
54:18Have you ever had one?
54:20Yes, when I was little, my goodness, I
54:23started really early. Yes, yes. In
54:27first and second grade, I was with a
54:29boy for a year and a bit.
54:33My goodness, that's a good story, but
54:37no. I was in a relationship with ups
54:43and downs the first two years of high
54:45school. Then a third one was like I was
54:49very focused on my studies, that I
54:52wanted to get very good grades and in
54:54basketball and then at the end of the
54:57third year of ESO, well, that's it, the
54:59whole process began and now, well, it's
55:02been more than a year since I started
55:04with all this,
55:07that time flies, how do you face the
55:11next few months, as long as you feel
55:13good, what things are you going to try
55:15to do, a normal life or continue doing
55:17things that are a little out of the
55:19ordinary to take advantage of it.
55:23No, I want to be normal and for people
55:26to see me as normal as Naya, as who I
55:29am, because obviously I have this thing
55:32that makes me different from others,
55:34more in the sense that we are not
55:37living the same teenage life. I have a
55:41real threat that I have to deal with,
55:44living like this every day, but I want
55:47to be normal. I want people to see me
55:51as normal, no more feeling sorry for me
55:54, because people are not bad, obviously
55:57they just worry.
55:59Because you have noticed a difference
56:01in that sense since people knew that
56:03you had a problem.
56:04Yes,
56:04yes. What do you notice? What do you
56:06perceive?
56:07Well, sometimes people, well, there are
56:10people that I get along with, but who
56:12never wrote to me and said anything.
56:15Many times it's because they don't know
56:17how to do it,
56:18because it's really complicated to tell
56:20them, "
56:21Come on, you can do it."
56:24Sure.
56:24Or everything will be okay, right? When
56:26they tell you, "Everything will be okay
56:27." You don't know. You don't know if
56:30everything will be okay. What's
56:31the best thing they can tell you? I
56:34mean, when there's someone who's in
56:35your situation on the other side of the
56:37screen, unfortunately, you won't be the
56:39only one. How can those friends be good
56:44companions, being emotionally close and
56:46not causing guilt, rejection, or
56:47overwhelm? What you just told me
56:49is very important. I don't think there
56:54is anything you can say, as every
56:57person is a world; it might help me to
56:59hear certain things, while others may
57:01prefer that you not talk about the
57:03subject or whatever. But it's not about
57:08saying, "Come on, you can do it," but
57:11simply about accompanying and making
57:13people feel, making them feel present,
57:16that is, knowing that they have you
57:19there, you know? I'm here. Yes, it's
57:23not
57:24that,
57:24even though it might be unpleasant for
57:26the sick person to know that they have
57:29a friend, that they have a family
57:31member that they can talk to, that they
57:33can vent to. It's above all that, I
57:38think, for everything in general,
57:39because each person is their own world,
57:41but everyone needs reinforcement. Where
57:47is the balance for someone who loves
57:49you to say, "Look, I'm with you and at
57:52the same time I'm very sad and at the
57:54same time I'm very happy?" How do you
57:57express that without it being a burden
57:58for you?
58:00It's difficult. I
58:03mean, I think about your parents, for
58:05example, right? I was talking to them a
58:07few weeks ago, they need to talk
58:10normally and they need to break down
58:12and cry too. And it's part of the
58:14process, right?
58:14Yes. How do you give space to all that
58:17without turning it into a drama, so how
58:23do you do it well? Communication is
58:28important, but it's very difficult to
58:31talk about this with people you love
58:33and who care about you because it's
58:35uncomfortable. I can talk about, you
58:40can start talking as if it's nothing,
58:42about a sick person and you say, "Poor
58:44thing," but in the end you don't know
58:47them, it doesn't affect you at all, and
58:49it's not hard to talk about someone
58:52else. But when it's with my parents, I
58:56don't want to talk about it, they don't
58:58want to talk about it much because I
59:02know I have them, I know I can count on
59:05them, but I try, I don't try either. I
59:09was really racking my brains or the
59:11other day I was talking to my best
59:13friend because lately she was always
59:15trying to bring this up and she was
59:18telling me, "Naya, I want to know how
59:20you are and I, I'm fine there, right?
59:23We're having a good time now, let's not
59:25start talking." Like I was living it up
59:28a little bit because I don't like to
59:30make others suffer either,
59:33because in the end I'm not fine. Hm. As
59:37far as you can say fine. I'm as fine as
59:40you can be.
59:45So, I don't know, in the end the other
59:48day I ended up talking to Ainoa about
59:50this and she said to me, "Do you know
59:53what I'm saying? I want you to count on
59:58me because when I'm feeling bad I never
1:00:00tell you anything or whatever." But I
1:00:03also asked her, "And how are you?"
1:00:07Because when I told Inoa that news,
1:00:10apart from the fact that she imagined
1:00:13it a little because she had been the
1:00:17most present of all my friends, she
1:00:21reacted, you know? It was like, of
1:00:23course, you no longer know what to say.
1:00:26In this situation, they cannot tell you
1:00:28all will be well,
1:00:30because not all will be well. It was a
1:00:33tough conversation, yet it was nice
1:00:36that we were there together, hugging
1:00:39and crying, telling each other how much
1:00:42I love you and thank you for everything
1:00:46.
1:00:48How important is it to be grateful,
1:00:50right?
1:00:51Yes. Yes, it is. Is
1:00:56there anyone you would like to thank
1:00:57while you are still here with us? To a
1:00:59lot of people, to start with, to the
1:01:02doctors, to the entire team of doctors
1:01:06at Sones. I have a lot of affection for
1:01:11them. They're wonderful people who do
1:01:14their job very well and to the best of
1:01:17their ability. They always try to cheer
1:01:21you up in one way or another. I mean,
1:01:24there's not enough money in this world
1:01:27to pay those people.
1:01:29Look, there's
1:01:30not enough money in the world.
1:01:35Especially to Canay and Yuis, to the
1:01:38teachers in the hospital classroom, who
1:01:40have been a fundamental pillar in my
1:01:42process, to the psychologist at Aspanov
1:01:47, from the hospital. to the Aspanov
1:01:50Cancer Association, to Cristina, to
1:01:52Javi who I used to do sports with in
1:01:55the hospital, who is a physiotherapist.
1:02:00Then to all my friends who have been
1:02:01able to support me because there are
1:02:03others who haven't and I have felt very
1:02:04alone. There have been months when I
1:02:07have felt very alone,
1:02:08but there are...No, to Maria, to Mikel,
1:02:12to all my friends. If I have to name
1:02:16them, and to my family, obviously to my
1:02:20parents who have been the ones who have
1:02:23spent the long hours in the hospital
1:02:26with me and to my brothers for filling
1:02:29me with life. I have many people to
1:02:36thank. Do you feel as if gratitude and
1:02:41the desire to live can prolong time? Do
1:02:45you have that feeling or do you think
1:02:47that time is what it is and you have to
1:02:49accept it? I don't
1:02:51know. I don't know what to tell you. I
1:02:54mean, closing yourself off from life,
1:02:57you know? I
1:02:58try to do it. I try to do it, of course
1:03:01, but I don't know. This is something
1:03:05that I think I will never know because,
1:03:08in the end, the disease is the disease.
1:03:12I don't know if it's because I'm
1:03:13clinging to my desire to live, which
1:03:15I've always done since day one, because
1:03:18what I've always wanted is to live and
1:03:20you don't realize how much you want to
1:03:22live until something like this happens
1:03:24to you.
1:03:28But in the end, the cells reproduce
1:03:32anyway. So, I have no idea.
1:03:37When
1:03:37I wish so. Sure, when we were here on
1:03:41set before filming, your mother
1:03:43expressed her wish that someone knew
1:03:48what to do, right?
1:03:50Yes, I've also thought a lot about
1:03:53seeking help, but I've talked so much
1:03:56with my doctors and they tell me that
1:03:59the pill we're giving you is the best
1:04:02that will work best for you. We've been
1:04:10in contact with more professionals on
1:04:13the peninsula and everyone in Spain,
1:04:15like the National Sarcoma Committee,
1:04:18knows about my case. They all agree
1:04:24that this is it now. But I still insist
1:04:30that I know that things aren't created
1:04:33that way, but please, someone create
1:04:36something for me, like someone create a
1:04:39drug for me from scratch. This doesn't
1:04:44happen overnight, but I also have that
1:04:47desire and I've begged the doctors a
1:04:49lot, please, please, please. But in the
1:04:54end you end up accepting it. I know
1:04:58that if by chance there was something
1:05:02they thought could help me, they would
1:05:05give it to me and let me know. But time
1:05:08is against us. Well, scientific things
1:05:13don't happen quickly, but do
1:05:22you have any advice for the teenagers
1:05:24who are watching you who are worried
1:05:26right now? I don't know, because of
1:05:30tomorrow's exam,
1:05:33nothing is as important as we think,
1:05:38like things are only as important
1:05:41because of the importance we give them.
1:05:46The exam isn't that important, that
1:05:49grade isn't that important because I
1:05:51was very demanding of myself. Nothing
1:05:56is that important. We have to know how
1:05:59to give each thing the importance it
1:06:02deserves; that it's not worth wasting
1:06:04time with people who don't contribute
1:06:07to us; that they should take care of
1:06:09themselves. I don't judge people who
1:06:15take substances, obviously, but take
1:06:19care of yourselves, don't smoke,
1:06:24because one day you have everything and
1:06:27the next, suddenly, it seems like you
1:06:30have nothing.
1:06:34This is something you've learned from
1:06:36life, right?
1:06:37Yes. Is there
1:06:38anything else you've learned? I want to
1:06:43make it very clear that the important
1:06:44thing
1:06:45is health. It's about physical and
1:06:55mental health, being happy, being
1:06:59yourself, knowing life is short and not
1:07:03worth it. And I say this from
1:07:09experience, because we live in a very
1:07:13critical society where whatever we say,
1:07:17they won't judge it. That's right.
1:07:22Well, don't overthink things. If you
1:07:27want something, do it. No, don't
1:07:29overthink it so much. Life is very
1:07:32short and you shouldn't hold back on
1:07:34anything. It's
1:07:35true. It's true. Or say I love someone
1:07:42out of fear of anything, and try to
1:07:46have the life you want to have.
1:07:53That's important, right? Not the one
1:07:56that others tell you you have to live,
1:07:58right? Being able to be yourself, being
1:07:59able to do what you want.
1:08:01Yes. Not doing what is right in society
1:08:08, being yourself. Yeah, I don't know,
1:08:12sometimes the most important thing is
1:08:14the simplest. The simplest thing is the
1:08:19Yes, there's
1:08:22a topic I want to talk about. Normally,
1:08:26this program would be broadcast
1:08:29immediately after a
1:08:30few days or weeks of recording, but you
1:08:35asked me to air this after you were no
1:08:37longer there. Right. Hm. I've thought
1:08:44about it a lot, but now that I've
1:08:46returned to Menorca, people think that
1:08:49I'm fine, that's what I need, that not
1:08:52everyone is here, oh, poor thing, poor
1:08:55thing,
1:08:57I want to be just one more, you know?
1:08:59Just another girl in the crowd. No one,
1:09:01no one important or interesting. I just
1:09:04want to be me. Me, Naya, with my people
1:09:07, calm down, that's it. So, um, well,
1:09:11you have a lot of numbers and that's
1:09:14normal because it's an incredible
1:09:17program, but I don't think it would
1:09:20benefit me right now if it came out now
1:09:23, because you know better than anyone
1:09:26that we all know each other in Menorca.
1:09:30Yes,
1:09:31yes. And I wouldn't be able to walk
1:09:34down the street in peace. If sometimes
1:09:37you already feel strange looks because
1:09:39of the handkerchief or whatever, if
1:09:45people now knew this information, it
1:09:47wouldn't let me live in peace. Of
1:09:50course. So, that was part of the reason
1:09:52for coming here, to feel that that
1:09:54would be respected.
1:09:56Yes. I want to give you the freedom so
1:10:00that if at some point in your life,
1:10:02which I hope will be very long, Naya,
1:10:05thank you.
1:10:06You want this program to be broadcast,
1:10:08I'm just a WhatsApp, a phone call away.
1:10:12No, maybe it's what you said, that he
1:10:15had planned to leave it as a legacy,
1:10:17but I obviously want to watch the
1:10:19program.
1:10:21Sure, you'll watch it. We'll edit it
1:10:22and you'll watch it. But maybe when I
1:10:25see that the situation in the future is
1:10:28getting more critical,
1:10:30before I go I'll say, publish it,
1:10:33please, because it might be what I said
1:10:35before, I want to see the impact it
1:10:38generates,
1:10:39okay?
1:10:40Or how people receive it.
1:10:43Perfect. Let's leave that possibility
1:10:45open.
1:10:46Maybe this will come out and Naya will
1:10:49still be with us. We'll do everything
1:10:52we can so that you see it before
1:10:55and we'll go to scenario number two,
1:10:57that it be broadcast when you're no
1:11:00longer here or how long after you want
1:11:02it to be broadcast. I want your wishes
1:11:06to be respected and I'm convinced that
1:11:07your parents will want your wishes to
1:11:09be respected, so if you say so, it'll
1:11:10be much easier for everyone. My wish,
1:11:14if it were broadcast as a legacy, is
1:11:19that my family's time be respected.
1:11:24How nice.
1:11:25Because in the end I won't realize it,
1:11:27I don't care anymore.
1:11:30But the ones who are going to be
1:11:32suffering at those times are my parents
1:11:35, my siblings, my grandparents, my
1:11:38friends, my uncles. So, um, the ones
1:11:42who will be suffering are them. Maybe
1:11:46the right thing to do wouldn't be to
1:11:48broadcast it right after I leave
1:11:51because, of
1:11:52course, just like I don't
1:11:54want people to come to me with pity,
1:11:57because now they want to be calm, I
1:12:00imagine my parents don't want many
1:12:03people to see this and need to go
1:12:06through their mourning. So, my wish
1:12:10would be for it to be published when my
1:12:14family is ready.
1:12:16Well, that's how it will be.
1:12:18Thank you. That's how it will be.
1:12:20We'll wait as long as we have to.
1:12:24Hopefully I never have to publish it.
1:12:26Hopefully. It
1:12:27would be good. No, it'll take a long
1:12:29time. It would be
1:12:30good. I'm
1:12:32learning a lot of things from you.
1:12:35First of all, you speak the same way
1:12:37your mother spoke when she was 14. It's
1:12:39amazing, you know? I mean, I went to
1:12:42high school with her and I also
1:12:44remember sharing a table with her.
1:12:46When she told me, I was blown away.
1:12:48Yes, the same high school, Joan Ramis
1:12:50and Ramis. And also, note that I've
1:12:52gone to class with many people and with
1:12:54your mother, we've always met, seen
1:12:56each other, there's always been
1:12:57affection. And I've also seen you grow
1:13:01because I went to Menorca on vacation
1:13:03and I saw how that girl who looked like
1:13:06my friend was growing up
1:13:09and starting to look like her mother
1:13:10too, right? And it's been really
1:13:13amazing to have you here, to meet you
1:13:15when I talked to you about coming, I
1:13:17spoke on the phone, do you remember? I
1:13:21called you after I had spoken to
1:13:23everyone, to doctors, to your parents,
1:13:27uh, I saw a maturity in you and an
1:13:30emotional intelligence, a poise, a
1:13:33poise, a courage that I immediately
1:13:36conveyed to my team. I said, "It's a
1:13:40resounding yes, this girl has to come."
1:13:42Thank you, thank you. She has to
1:13:44come. Uh, is there anything I haven't
1:13:47asked you that you want to say? That's
1:13:50important.
1:13:50Hm.
1:13:53You can take your time to think. Uh, I
1:13:55need it. I'm
1:14:02trying to remember because Ana and I
1:14:05prepared ideas and points that the
1:14:07palliative care nurse
1:14:10wanted to explain and I know I've left
1:14:12quite a few things out. Do
1:14:14you want to go over something mobile or
1:14:15something?
1:14:16No, I don't have a piece of paper lying
1:14:17around. Hm. Uh, what it's like to
1:14:22rebuild your life in Menorca,
1:14:26yes, in a
1:14:28completely different way, because you
1:14:31have to adapt again and sometimes you
1:14:34feel misunderstood by the people around
1:14:37you and it's not their fault, but of
1:14:40course, and like I have ulcers on my
1:14:42head now that aren't going to get
1:14:46better. Mm.
1:14:47They can only get worse, I suppose, and
1:14:50they hurt if you touch them. And maybe
1:14:53a brush from a friend that they didn't
1:14:56even notice unintentionally.
1:14:58I say, "You've hurt me a lot, be
1:15:01careful." And they're like, I haven't
1:15:03even touched you
1:15:04yet.
1:15:05Or going out partying and I feel like I
1:15:09want to leave and for them it's just
1:15:11the beginning. It's hard to reconnect
1:15:17with some people because I lead a
1:15:21different lifestyle, because of my
1:15:25circumstances, and no one is to blame
1:15:32for that.
1:15:33Most people think that you're cured,
1:15:35that you're going to be cured, except
1:15:36for your trusted circle.
1:15:38I think so. I mean, yes, people who ask
1:15:46me or who see that I'm back and who
1:15:49obviously aren't trustworthy and don't
1:15:52know this, I think they think, well,
1:15:55I'm fine now
1:15:57and that sometimes, of course, when
1:15:59they ask you it's a bit uncomfortable
1:16:04or and you're fine, I don't know what,
1:16:06because you're back and you are, yes,
1:16:08and they want to cut some conversations
1:16:10short because there are people you
1:16:12don't feel like talking to.
1:16:15Sure. Or having to give a lot of
1:16:16explanations, right?
1:16:17Yes. But yes, I think, and this is what
1:16:22I want right now, for people to think
1:16:25that I'm fine and to see me for who I
1:16:28am, not as the sick girl from Maón or
1:16:31anything like that. Do
1:16:38you think that in Spain childhood
1:16:40cancer gets all the attention it
1:16:43deserves? I know that it does from
1:16:45doctors. I'm talking to you as a
1:16:46society. As you say, for doctors, yes;
1:16:51I mean, we are top priority in the
1:16:53oncology field, children. But I also
1:16:58wanted to come here to give more
1:17:00visibility to the reality of other
1:17:02people, because sometimes we think that
1:17:05our life...ugh, how difficult our life
1:17:07is that everything...I mean, I don't
1:17:09want to belittle any problem, because
1:17:12everyone has their problems and things
1:17:14that aren't easy. But there's a lot
1:17:20that's known. I mean, before I was
1:17:24diagnosed, I was like, I know that
1:17:26childhood cancer exists, but that's it.
1:17:30Just like leukemias are known,
1:17:35especially
1:17:37lymphomas, but I feel that, for example
1:17:39, my cancer is not well known, I feel,
1:17:42uh, I don't know, but I didn't know it
1:17:45existed, at least in the sarcoma guys I
1:17:48knew that Edwin's sarcoma existed, but
1:17:50not much else. And there are many types
1:17:54of cancers that are not all blood
1:17:56cancers, and those other cancers that
1:17:59are also more complicated because now
1:18:02leukemia, for example, luckily has many
1:18:05studies and most people are cured. Hm.
1:18:12Others that are not so common should be
1:18:17given more of a voice. That's
1:18:21absolutely
1:18:22right, right? Although few people have
1:18:25them, right? Allocate resources to that
1:18:27.
1:18:28And in Menorca, I had also forgotten
1:18:31about this, um, as I said, pediatric
1:18:39oncology resources. And it's very
1:18:43difficult because having to move away
1:18:45from home, if you're 15 years old, well
1:18:50, being any age is already difficult,
1:18:52but seeing how everyone goes out and
1:18:53you're locked up in a hospital makes
1:18:58the process even more complicated
1:19:00because of
1:19:01course, on a personal level, of course,
1:19:03you can spend a month without seeing
1:19:04anyone. How great it would be if in
1:19:07Menorca there were hospital care with
1:19:08many more professionals, with more
1:19:10resources
1:19:12so you wouldn't have to leave the
1:19:13island. Sure, because we, the people of
1:19:16Menorca and Ibiza, because those from
1:19:19Ibiza also move to Mallorca because in
1:19:21the end they are spaces, it is the main
1:19:23hospital of the Balearic Islands, the
1:19:26big hospital,
1:19:28but those of us from Menorca and Ibiza
1:19:31have the right to the same resources in
1:19:34our home. Of course, those of you who
1:19:38see us understand that the islands
1:19:40operate very independently in terms of
1:19:42lifestyles, although then you depend on
1:19:44Mallorca. Those who live in Menorca
1:19:47live in Menorca, not in Mallorca. They
1:19:50may
1:19:50never have been to Mallorca, unless
1:19:51they have had a problem. So, there is
1:19:54no sense of a united autonomous
1:19:56community, no. Each island is its own
1:20:01world, right? And there may be fewer
1:20:04people, much fewer than in Mallorca,
1:20:07but my life, my comfort and my
1:20:12well-being are just as important as
1:20:14those of a Majorcan. I mean, I hope
1:20:17that one day all the necessary care and
1:20:24professionals will be available on all
1:20:27the islands so that we are all in the
1:20:29same conditions and with the same
1:20:31rights to be at home, because
1:20:34I know that if I had been younger,
1:20:36everything would have been much easier.
1:20:38You would have more support in terms of
1:20:41friendships and that you wouldn't give
1:20:43up on your relationships with your
1:20:46friends, you know? It would be like
1:20:49when you leave, you go home. When I was
1:20:54no longer hospitalized, I would go to
1:20:56the Aspanop apartment that the
1:20:58association let us use, which I am very
1:21:01grateful for, they are incredible,
1:21:05but there is no place like home. And
1:21:10for example, Ana, my current nurse, as
1:21:13she explained to me, I understand that
1:21:15there is no pediatric palliative care
1:21:17in Menorca, there is none. I mean, Ana
1:21:24and Dr. Borras are doing me a favor,
1:21:27they take me to my home. I don't think
1:21:31anyone is doing me a favor.
1:21:34It is also important for you to be able
1:21:36to receive it at home.
1:21:38Yes. It's more convenient because I
1:21:42don't see Ana or Dr. Borras every few
1:21:45weeks to check on me neurologically
1:21:48because I
1:21:49could have, well, symptoms
1:21:53because it's in the brain, it's close
1:21:55by. Of course, it's not the disease
1:21:58itself, it's in the skull, let's say,
1:22:00but in the end it's already reached the
1:22:05layer that covers the brain, the mother
1:22:08, well, I don't remember now. And I
1:22:13don't know if it's already reached the
1:22:16brain, but I take preventive measures
1:22:18for that, epileptic seizures, because I
1:22:21can later, which has never happened to
1:22:23me and I feel fine or anything, but I
1:22:25can have seizures. Of course, we're
1:22:31talking about the head and then the
1:22:34lungs, I mean, they're vital organs,
1:22:36it's not like I have these sarcomas in
1:22:39my knee that could possibly be
1:22:41amputated, which is a drag, obviously
1:22:44having your leg amputated, but at least
1:22:46you're still alive.
1:22:51When we get to the end of the program,
1:22:53which you know, I always ask two
1:22:54questions. One is about the certainty
1:22:59of death. How do you deal with the
1:23:00certainty of death? This one has
1:23:02already been answered, I'm not going to
1:23:04ask you. And the other one is, how
1:23:07would you like to be remembered when
1:23:08you're gone?
1:23:11And I'm not going to ask you that
1:23:12either because you don't want me to. I
1:23:16have a very clear answer.
1:23:18Yes, I'm going to ask you and then I'll
1:23:20ask you another one that I'll change
1:23:22from the first one. Naya, how would you
1:23:25like to be remembered when you're gone?
1:23:27How do you want to be remembered when
1:23:29you're gone?
1:23:30As a good person.
1:23:33As a good person and as who I am Naya
1:23:39and with my virtues, my flaws, but as a
1:23:43good person. That's how I'll
1:23:46remember you. By the way,
1:23:50a super good person. In fact, I'm going
1:23:54to change the first question about
1:23:57death. I want to ask you, how would you
1:24:03like your parents to live their lives
1:24:06when you're gone? I hope you are happy
1:24:11because it will be a difficult grief to
1:24:16overcome, obviously losing a child, but
1:24:22I can't tell you anything else than
1:24:25that you be happy and my brothers even
1:24:30more so that I hope that, I mean, I
1:24:33know that they will keep me in mind,
1:24:37obviously. But that they feel me, you
1:24:41know?
1:24:43I want them to feel that I am there
1:24:45every step they take and that I hope
1:24:51that in many years to come I will be
1:24:54waiting for them there.
1:24:58So be it. So be it. Before going to the
1:25:04gift, is there
1:25:06anything I can do for you? Besides
1:25:09having brought you here.
1:25:13No, thank you very much. I think you
1:25:15have done more than enough. You're
1:25:18welcome. I
1:25:19can only thank you.
1:25:21No, thank you for trusting me. Thank
1:25:25you for awakening in me a little bit of
1:25:29the value that you have. Thank you for
1:25:34teaching me sitting here, for giving me
1:25:36a life lesson. It is very easy to trust
1:25:41you. You are trusted behind the screen
1:25:44when you watch your programs. That is
1:25:46why so many people want to come, right?
1:25:48Wow.
1:25:49You watch a program.
1:25:50Thank you.
1:25:51Very good. You are a very humane person
1:25:55, with a lot of humanity and you know
1:25:58how to listen very, very well. Did you
1:26:04enjoy your time on the program? Yes, I
1:26:06am very happy. You are
1:26:08leaving now with peace of mind. I was
1:26:11nervous, I stumbled when I spoke, but
1:26:14yes, that's it, that's
1:26:16it. You saw how it wasn't that
1:26:18difficult,
1:26:18right? You
1:26:20did extraordinarily well.
1:26:21Thank you, Carlos. I mean, you
1:26:23explained things amazingly, didn't you?
1:26:27I mean, it's obvious that in addition
1:26:30to being brave, you're intelligent,
1:26:32because explaining things in the order
1:26:35that you did with the right and real
1:26:37emotion requires knowing how to sit
1:26:40there, right? It's not easy to come
1:26:44here. It's
1:26:45not anymore, I assure you. It's not.
1:26:49And for a girl of 15, almost 16, in
1:26:51this situation, this is worthy of
1:26:54applause, worthy of the utmost respect
1:26:57and for that I am the one who is
1:27:00grateful. I see a gift in a beautiful
1:27:03box there. Yes. You
1:27:05can tell me what it is or let me open
1:27:08it a
1:27:08lot. Let's
1:27:09see,
1:27:09because let's see,
1:27:12also for me having another person from
1:27:14my homeland, from Menorca, is very
1:27:15special. Yes, but I must assemble this;
1:27:18it wouldn't fit in the box if I don't.
1:27:20Okay. How cool. Let's
1:27:22see how it goes.
1:27:24It looks like a frame, right? Or
1:27:25something like that,
1:27:27right? You said a frame
1:27:29or something that holds up, right?
1:27:31Yes, but right now I don't know how to
1:27:33assemble it, huh? And look how easy it
1:27:36is. It might
1:27:38bend, it doesn't get
1:27:40stuck, but I don't know how.
1:27:44Ah, yes. I think that goes first. There
1:27:47, there you have it.
1:27:48There,
1:27:49here.
1:27:50Okay. Hey, this is very cool, isn't it?
1:27:55Let's
1:27:55see.
1:27:57Okay. Wow. Wow. Those of you who are
1:28:08listening to the program, it's worth
1:28:09watching.
1:28:12Well, more or less, right?
1:28:13Yes. I'll explain it to you.
1:28:15Yes, explain it to me.
1:28:16Well, I don't know if you want it.
1:28:17Yes, you take it. Thank you very much.
1:28:21Um, well, it's a cancer cap, which is
1:28:24what I always wear, always. As you can
1:28:30see, it's the way I feel most
1:28:32comfortable, because, of course, I have
1:28:36everything there on my head and this is
1:28:39very comfortable for me; but this one
1:28:42is special because it's only worn once
1:28:46for a few hours, which is the cap that
1:28:49I bought on purpose for my graduation
1:28:55day.
1:28:57Which was an important day for me
1:28:59because, well, I was in the fourth year
1:29:02of high school, I already missed the
1:29:04end-of-year trip, which is something I
1:29:06was really looking forward to, and I
1:29:08was very happy just a little while ago,
1:29:1110 days ago or so, to have been able to
1:29:13attend the graduation and well, this
1:29:18cap means overcoming for me and in the
1:29:24end it's something that is my day to
1:29:29day and it also symbolizes all the
1:29:33people who suffer from cancer.
1:29:38We put it here
1:29:40so that it ends up in the center, okay?
1:29:44As a reminder of how important it is.
1:29:47Thank you, Naya. Thank you, Bea, Paco,
1:29:51Naya's entire family. Thank you to the
1:29:53doctors,
1:29:54especially
1:29:56to the people with a heart. Thank you
1:29:59again for coming here and for trusting
1:30:00in me. It's been a tremendous gift to
1:30:04meet you. I truly, truly feel very
1:30:08lucky. And
1:30:14thank you for being so beautiful on the
1:30:16outside, but also on the inside.
1:30:19Thank you, Carlos.
1:30:20Thank you. I'll shake your hand just
1:30:22like I do with everyone. Thank you, Nay
1:30:24,
1:30:25to you
1:30:25and to you for another week. Thank you
1:30:29for being on the other side, for making
1:30:31this possible, and for being sensitive
1:30:33to uncomfortable realities that are
1:30:36worth discussing here. This is what
1:30:38life is all about. Thank you and see
1:30:41you soon. Tam.

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